Does anyone else suffer from false hypos ? Not diabetic but shaking ,disorentiated ,visual disturbance .

[Whattodowiththesewindows]

Having a run of them and wondering if the heat/bright sun/dehydration are contributing.

Yes. Infact I had an attack today out at the shops. Shaking, sweating, feeling faint and sort of “floaty”.

Obviously. But I don’t have hypos, so why would I test?

I have actually advised the OP to get a meter and, if she really is having hypos, seek medical attention. I think you have misread my posts.

Does anyone know which meter is easiest to use?
I imagine I need to test while having an episode and I'm very vague then.
Nb sorry about the user name muddle , I'm violet queen and windows . Accidently!!
I've deleted windows account now .

All glucose meters are pretty much the same, stick a test strip in and dip it in blood.

No. Hyperglycaemia is a sign of being prediabetic.

Lots of non diabetics get hypoglycaemia for lots of different reasons. It’s not really dangerous to a non diabetic though - whereas if your insulin dependent it can kill rapidly.

I used to get these all the time, I think I was over exercising and under eating. It's the worst feeling in the world. Also, would get cramp in my feet.
I carry around those packets of oat cakes which are very good slow release and no sugar.

I get this occasionally, and have done since my teens (I'm now 60). I have fairly low blood pressure too - it may be a contributing factor. My son is T1 diabetic so we tested using his meter, and it seems I get genuinely low blood sugar sometimes. I have found that fewer carbs/less sugar, regular meals, plenty of water and a handful of nuts between meals have made a big difference. It's also much steadier since menopause so I think that fluctuating hormones might have something to do with it too.

I’ve always struggled with these, I eat a high protein breakfast currently Greek yoghurt, fruit & muesli or eggs as that’s the only thing that will get me through the morning.
I also plan, eat regularly and never travel without snacks.
its a horrible feeling but over the years it happens less often as I’m better at avoiding it

I had this a few times. It's definitely not due to being underweight or not eating enough in my case! It always seemed to happen at the beach and after a bit of puzzling I identified the culprit....pancakes and maple syrup at McDonald's, which is where we'd always stop for breakfast en route to the beach!

Obviously it wasn't specific to the pancakes but I think it was just eating a meal of very refined carbohydrates and the sugary syrup (at the time, it was maple-flavoured syrup rather than actual maple syrup) that must have caused a spike of insulin to be released, resulting in low blood sugars two hours later.

I try to avoid that sort of overly-refined carby food now, and I haven't had that horrible weak, shaky feeling for a long time now.

I get a lot of these and have done since I was a young child. I carry Kendall mint cake and Dioralyte to sort me out when it happens. I assume it is linked to diet, as I get more if I eat less, but I am also worse in hot weather so maybe dehydration is a factor. I take tablets to lower my blood pressure (which fluctuates wildly) so that probably doesn't help either.

There are a couple of rare conditions that cause hyperinsulinaemia and genuine very low (<2 mmol) blood glucose. If OP is having these real hypos it is pretty dangerous. If not - and she probably isn’t - then you are right of course.

This is migraine aura for me. I have migraines without headache usually, which would make it harder to realise if you haven't had them before.

My symptoms are feeling disassociated, strange vision which I find hard to describe - first it's tunnel vision and then it's like things disappear for a nano second and reappear. As if an electric current is switched on off.
The next thing is a weird sensation of muscular jerking , but I don't think it's visible .
The next stage , which has only happened once, is that I fall down and shake a lot , like I imagine a seizure would be . But I am conscious.
When things have passed , in the Immediate aftermath I am overwhelmed by an urge to eat .
Then I'm exhausted .

What you are describing sounds as though it could be a genuine spontaneous hypo, a migraine or a seizure. You can exclude the hypo by testing at the point of symptoms, but really this needs medical attention.

When you know what you’re dealing with a bit better there will be people who have been in your shoes who can support you. But at the moment it could be anything, so you’ll get a lot of potentially irrelevant advice.

Buy a continuous glucose monitor like the Libre 2 and wear it for a fortnight, if you want to look into this yourself. They cost about £50. Probably ought to see your GP as well really, though.

Nobody has mentioned yet checking your blood pressure during one of these episodes.

It's pretty rare for someone who isn't a diabetic on insulin to have a low blood sugar.

However low blood pressure, especially on hot sunny days is very common.

The description of feeling faint, vision going weird, needing to lie down, feelingas if you have narrowly avoided actually being unconscious, being exhausted and needing to eat - is absolutely textbook.

I've had this since puberty, to the extent I have to warn employers that I can self manage it but on a hot day I may have to put myself on the floor and call for help - apparently I look very dramatic. As I work in healthcare, people have checked my BP during an episode and it is scary low and they have to be deterred from calling an ambulance for me.

That's interesting @AnnaMagnani .
I went to the GP some.4 years ago about this and as a result had tests to rule out epilepsy and other neurological conditions.
I was referred to a clinic for inherited metabolic disorders .
I found the clinician I saw unhelpful ,I think she may have mainly dealt with children .
Sternly asking me if I followed the diet recommended for people who've had surgery for cancer at junction of oesophagus and stomach.
( There really isn't one )
And when I was trying to guesstimated how long an episode might last and describing that the traffic lights had changed at least twice ( I was standing holding onto the pillar)she thought that must be a minute. Wouldn't believe me when I explained that I was familiar with the lights and they had quite long phasing .
Im afraid I was so put off that I declined the opportunity to be an inpatient, fed sugar and monitored.
But I think I'll have to take further steps now.

@violetqueen6 given your surgery, has anyone spoken to you about Dumping Syndrome?

I would guess the specialist you saw was trying to work out if this is what you have by asking if you followed the diet. Unfortunately there isn't one diet and most people have to experiment to find out what works for them.

Just one further thought on top of the helpful suggestions you have already received @Whattodowiththesewindows , do you by any chance take an ACE inhibitor? I found that they can cause a side effect of what felt exactly like a hypo - as I'm T1 it was very disconcerting and potentially dangerous to have something that so precisely mimicked the symptoms of a hypo.

I've always had reactive hypoglycaemia. I only realised after watching I'm A Celebrity Get Me Out of Here many years ago. They had only eaten rice, were starving, stomach pains etc, yet went off to do trials. If I don't eat I'm faint, panicky, confused, sweaty and trembling! I once called the friend I'd just left in town when I had an episode and she reminded me I was holding a bag full of food shopping I could eat. Its very scary how confused it makes me. I always carry Dextrose tablets and eat little and often.

@AnnaMagnani thanks for thinking of me ! I do get dumping, early and late , but it's characterised by food leaving my body very quickly.
@MaMisled it is very scary , particularly if you're not at home and you're alone.