Combination of fatigue/ gastrointestinal/ musculoskeletal symptoms

[uncomfortablydumb60]

I’m posting on behalf of my DS1 best friend who is 30
She was diagnosed with ME at 16but has these additional symptoms now
Yesterday a red sore rash appeared all over her body and legs.
Daily bouts of diahorrea to the point where she has had accidents understandably limit her activities
Her DM has T2 diabetes and RA and a colonoscopy for Crohns was negative.
Her GP is out of ideas which I think is ridiculous.
Im wondering about EDS as she is hyper mobile
I’m sad for her as she’s so lovely
Any thoughts much appreciated.

I have all of these and have EDS, was only diagnosed when I was 48 despite years if being under specialists for various seemingly unrelated things which all can occur under EDS.

TBF the diagnosis is almost more of a burden these days, many roll their eyes. I have a concurrent diagnosis of fibromyalgia which I never mention for the same reason.

The diagnosis was validating for me, but frustrating as many of my issues can't be fixed. And it's makes surgeons more reticent to operate due to my skin's complete inability to stay sealed after stitches.

If you have a real valid reason to think a diagnosis will help they can ask for referral to rheumatology, I did and they then referred me to the pain management suffice which was helpful. Many others haven't found then so but many on my courses felt heard and validated for the first time in their lives.

I work full time, and still have fairly good mobility so having EDS doesn't mean being resigned to a life on benefits (though I understand some have concurrent issues which mean they can't work). None of my kids have inherited from blown EDS but all have some aspects of it (and PoTs - both DS faint fairly regularly when they stand up!)

Coeliac disease with Dermatitis Herpetiformis perhaps?

https://www.nhsinform.scot/illnesses-and-conditions/skin-hair-and-nails/dermatitis-herpetiformis/

The symptoms of coeliac disease can often be misdiagnosed as chronic fatigue/ ME as well.

https://www.nhsinform.scot/illnesses-and-conditions/stomach-liver-and-gastrointestinal-tract/coeliac-disease/coeliac-disease/#symptoms-of-coeliac-disease