Mum lied about me having a condition

[Mylovemine]

When I was younger mum took me to the GP and they said I don’t have hypermobility as their standards are different. I remember going to a centre to get assessed for hypermobility privately and afterwards my mum told me that I have it. I have soft stretchy skin that bruises easily and I was prone to spraining or breaking bones and falling. but I can’t dislocate my joints and put them back into place or do anything crazy. I am not flexible or skinny. I have always assumed that my falls/lightheadedness/pain when walking, in my ankles and knees and stomach issues that I have had throughout my life were down to the condition. Now I am older I am aware there are a number of conditions that can cause those symptoms.
Years later when I needed the diagnoses report to get disabled housing they had to take my word for it because mum told me that she doesn’t remember me having any of those issues and that the report of my diagnoses was lost and she is not sure that I have the condition! I am worried that I may never have been diagnosed and that it was a lie.
I also claim the mobility component of disability partly because of the condition and I am worried that my life is about to be turned upside down or that I could lose my house if I’m found to not have the condition.
I am going to the GP to investigate my symptoms and I’m worried they may say that I don’t have it.

Can’t you just ask your gp! Even if private tests they will have sent the results to your dr

They don’t have them on record. I am worried that my mother had lied about it. She is a narcissist

My hypermobility sounds like a less severe version of yours. It's not always about dislocations, but it does sound like yours impacts you day to day, and you do need mobility support.

You know yourself that you went to a clinic to be checked. Trust your own memory.

With regard to your needs, it's not about the name of your disability, the equality act states that it impacts you considerably in your every day life, had lasted over 12 months and is unlikely to be cured.

Every adaptation you have is needed. The name of why doesn't matter.

you will get mobility PIP based on proven needs NOW not a report when you were a child so I wouldn’t worry about that.

I wouldn't worry about the report, as PP has said they will rely on assessing how you present now. Have you asked about Ehlers Danloss syndrome? If not then this is something you should mention. There can be a real challenge in getting diagnosed, but it sounds like it's worth mentioning from your symptoms.

You don’t need to dislocate joint to be hypermobile. After my child showed iff her party tricks my child’s NHS pyhsio that she is hypermobile but he also said it isn’t something they think it’s helpful to diagnosis in it’self so don’t formally diagnosis it. They work on current problems and what they can offer to improve the situation.

I'm also thinking that you should look into Ehlers Danloss syndrome. The stretchy skin is one of the symptoms of it.