Motor neurone disease

[KingKitty]

I don't know anyone personally with this condition.

Just reading about a lady who had motor neurone disease. She first got symptoms in the winter of 2013. Diagnosed in the spring of 2014. Gone within a year of diagnosis.

Such a sad and horrible condition.

I heard about Motor Neurone before but I never really understood it. I know it can be bad. I just had so much ignorance about it. I thought it was a genetic condition but apparantly not all the time and anyone can get it.

My mum cared for a man with MND. He lived for several years and died just before covid

An old family friend was diagnosed with MND in his 60’s, gone very fast. It’s an awful disease

My friend's husband started sounding slightly slurred when he spoke 3 years ago. Now he can't talk, or walk or swallow (has a gastrostomy tube) , has a ventilator and is basically waiting for his respiratory muscles to quit. He was super fit (which is probably why he has lived this long) It's an utterly devastating disease with no cure, no treatment.

Very sad op. Brother in law had it. He never reached 50. Took a huge toll on family. I try and be thankful for my health now.

Lucy https://www.bbc.co.uk/news/articles/cjr3zwpyvljo is an amazing and inspiring woman. She can give everyone suffering from this disease hope.

Thank you for sharing this. It's beautiful and positive and also a little bit sad. Wishing Lucy and her family the very best and all my love in the world.

My Uncle had MND, it's a horrible cruel disease. It started in his hand, and progressed. My Aunt cared for him, for 4 years before he died. My Godmother's husband also had it too, he died 18 months after he was diagnosed. The brain, which generally is fine, is locked into a body that slowly degenerates, until all functions disappear.

I am not affected by the condition personally but I was upset learning about a lady who got symptoms and became disabled within 6 months and death approx 11 months after diagnosis and all in all about 15/16 months of a journey for her. I just think it is so so so sad. It happened so quickly.

I was ignorant towards understanding MND. I thought it was genetic but apparantly anyone can get it.

Regarding the genetic part of this: I read online that there is link between FTD which is a type of dementia and MND. I think I might facing a path down FTD with my mother and I think her mother had it too but I was only called dementia and there was no subtype.

It's so sad. Does anyone know why it happens? Are there any risk factors? What if anything can be done to minimise it?

My old school friends DH was diagnosed 2 years ago, after experiencing numbness and loss of balance. He deteriorated so rapidly but made it to his youngest DD’s wedding
He was 56. 16 Months from diagnosis to the end. Heartbreaking

That is so so so sad.