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Original poster

DH - Blood in urine - not bladder, kidney or prostate. What is causing it?

51 replies

Ohlife2020 · 18/03/2025 17:36

As the title says:

Lots of blood in urine started four weeks ago. Since then, it's not as visible, but still ongoing.

DH has seen the consultant today: ultrasound, cystoscope and PSA screening all clear. A tiny kidney stone unlikely to be the cause. No infection either.

What could this be? I'm desperate searching online and wanting to cry.

I can't unload this in RL to anyone...

OP posts:
tilligan · 18/03/2025 17:39

Can be just a UTI or a simple infection, GP should be able to confirm.

Original poster
Ohlife2020 · 18/03/2025 17:40

No infection. That's the first check before they referred him.

OP posts:
HomeBodyClub · 18/03/2025 17:41

My dad had a fright when he was passing blood. It turned out to be kidney stones.

Interested in this thread?

Then you might like threads about this subject:

General health
anyolddinosaur · 18/03/2025 17:52

Trauma? Any hard exercise or exercise where he may have been hit by a ball? Is he a beetroot fan? Any possibility of sickle cell anaemia? Is he on any medication?

Original poster
Ohlife2020 · 18/03/2025 17:53

But his kidney stone is too small to cause so much bleeding. So the consultant concluded..

OP posts:
Original poster
Ohlife2020 · 18/03/2025 17:55

anyolddinosaur · 18/03/2025 17:52

Trauma? Any hard exercise or exercise where he may have been hit by a ball? Is he a beetroot fan? Any possibility of sickle cell anaemia? Is he on any medication?

Edited

No medication. No vigorous exercise. It's been a whole month.

Can sickle cell anemia show in blood test? His standard blood count test was all normal too.

OP posts:
TuxedoJunction · 18/03/2025 17:58

When you say PSA all clear. Is this his first time he’s had a PSA test? Or has he had previous, so can benchmark against? It may be a prostate issue, but still be a score that appears to be within the nhs acceptable range for his age.

Original poster
Ohlife2020 · 18/03/2025 18:01

TuxedoJunction · 18/03/2025 17:58

When you say PSA all clear. Is this his first time he’s had a PSA test? Or has he had previous, so can benchmark against? It may be a prostate issue, but still be a score that appears to be within the nhs acceptable range for his age.

It's his first time. But if within range, shouldn't be in a state causing blood in urine?

OP posts:
Original poster
Ohlife2020 · 18/03/2025 18:03

Forgot to say, they will schedule a CT "in a few weeks".

I'm not sure if we can wait through this "few weeks".. shall we get a private CT done?

OP posts:
Justwingingit2005 · 18/03/2025 18:04

My DH has had this on and off for 5 yrs.
He's had tests, cameras, scans etc. Consultant has diagnosed him with prostatitis.

Istilldontlikeolives · 18/03/2025 18:07

With my son it was his kidneys leaking which sounds a lot worse that it was and they healed over a few years. Was he run down/ill recently or taking painkillers?

Original poster
Ohlife2020 · 18/03/2025 18:08

@Justwingingit2005 . Is prostatitis a form of infection? He's tested negative for infection several times.

OP posts:
Original poster
Ohlife2020 · 18/03/2025 18:09

Istilldontlikeolives · 18/03/2025 18:07

With my son it was his kidneys leaking which sounds a lot worse that it was and they healed over a few years. Was he run down/ill recently or taking painkillers?

He's been feeling not himself. Easier to feel cold, lose energy. Has been having soup for his dinner in the past three weeks!

OP posts:
Original poster
Ohlife2020 · 18/03/2025 18:09

@Istilldontlikeolives Hope your son is completely recovered. Do you mind sharing how it was diagnosed?

OP posts:
mynameiscalypso · 18/03/2025 18:12

I was treated for a kidney infection even though my urine wasn't showing any markers of infection. A course of strong antibiotics got rid of it. Doctors just shrugged and said it can happen albeit was quite unusual

RedCatBlueCatYellowCat · 18/03/2025 18:13

Ohlife2020 · 18/03/2025 17:55

No medication. No vigorous exercise. It's been a whole month.

Can sickle cell anemia show in blood test? His standard blood count test was all normal too.

Show quote history

Sickle cell anemia is a genetic condition. He will not have got to adulthood and then suddenly developed it.

Stick with the consultant rather than googling and scaring yourself. Hope they find an answer and a solution for him soon.

Istilldontlikeolives · 18/03/2025 18:17

Ohlife2020 · 18/03/2025 18:09

@Istilldontlikeolives Hope your son is completely recovered. Do you mind sharing how it was diagnosed?

It was a while ago. I went to the gp with a urine sample that wss very very dark. She poo pooped me and said it was normal’ for boys . Hmm. I collected more over the next few days with them increasing in darkness and an almost sludge like consistency at thr bottom when they settled. I went back and showed her, again said i was wasting time but did a urine test to humour me. Called me back an hour later and told me to go straight to hospital. They told me then that his kidneys were leaking, likely either due to having had a really bad cold (he did get them pretty bad back then) or possibly too much medicine (may have been other suggestions but these are the two i remember). There was no cure, just wait and hope they stop leaking which they did. He wet himself a few times, not even realising he needed the toilet but no other major aches or pains. It probably took about 3 years to heal. We had yearly hospital appointments.

Minnie798 · 18/03/2025 18:17

Does he have normal full blood count, kidney function tests etc. If a urological cause has been ruled out, perhaps it's kidney related.

Original poster
Ohlife2020 · 18/03/2025 18:18

mynameiscalypso · 18/03/2025 18:12

I was treated for a kidney infection even though my urine wasn't showing any markers of infection. A course of strong antibiotics got rid of it. Doctors just shrugged and said it can happen albeit was quite unusual

Before they did any test, GP gave him antibiotics for 7 days. Nothing changed.

OP posts:
anyolddinosaur · 18/03/2025 18:20

Has he had antibiotics anyway? infection tests are not 100% reliable. I dont know enough about sickle cell testing, just know that carriers of the trait can have blood in urine. It's not common but the common things seem to have been ruled out. I'd be asking about other urine tests, like this one https://focuslabs.online/uti-testing/utis-cystitis/

Original poster
Ohlife2020 · 18/03/2025 18:21

@Istilldontlikeolives , sorry for your son and you having been stressed for so long until it's sorted.

But if that's something shows up in urine test, they would have noticed by now. DH had probably 3-4 times urine tests already.

OP posts:
Original poster
Ohlife2020 · 18/03/2025 18:22

@anyolddinosaur , yes he had the antibiotics for 7 days and didn't see any effect.

OP posts:
Original poster
Ohlife2020 · 18/03/2025 18:23

Minnie798 · 18/03/2025 18:17

Does he have normal full blood count, kidney function tests etc. If a urological cause has been ruled out, perhaps it's kidney related.

Edited

I think he did do kidney function test. All normal too.

Very frustrating!

OP posts:
IMustDoMoreExercise · 18/03/2025 18:27

Ohlife2020 · 18/03/2025 18:08

@Justwingingit2005 . Is prostatitis a form of infection? He's tested negative for infection several times.

The UTI test results are not always accurate.

anyolddinosaur · 18/03/2025 18:41

Has anyone actually done a rectal prostate exam? Was the cytoscopy performed by the consultant?

If it is prostatitis he'd need several weeks of antibiotics, not 7 days.

Any pain when urinating or in groin/ back/ anywhere else?