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Anyone diagnosed with any heart conditions help me out

7 replies

Jalen223 · 15/02/2025 11:08

Went in yesterday after a super fast episode of palpitations where I just felt weird, and my chest felt weird. Had to pull over driving. Was quite scared. Each showed mini attack scary! Blood tests done twice showed that didn’t happen. Then went to get an echo also showed that didn’t happen but they want me to wear a heart monitor soon, discharged to outpatient. One doctor mentioned sinus tachycardia? Any ideas? Last few weeks my heart rate is just constantly beating faster, I’m feeling more out of breathe. I’m healthy , good weight and height. Blood tests ruled thyrioid but consultant mentioned it, but I said it was ruled out. They mentioned beta blockers but discharged me no medication?I could have done with them, I do need to calm down. Just want me to have a Holtor monitor. Thanks

OP posts:
Giggorata · 15/02/2025 11:38

I would say that if your symptoms are still bad and distressing, return to the GP.
They probably don't want to medicate you without a diagnosis, but might be able to give you something to help calm down, or might start you on beta blockers.
I have had SVT for years and went through all sorts of tests before being placed on my (permanent) meds.
I always explain it to people, who always think heart attack, that it is a wiring issue, not a plumbing one., ie not a heart attack.
I have several triggers which I have learned to avoid, but sometimes it just happens. You might be able to work out your triggers.
I am sorry you are having this, heart things are always worrying, but if it is SVT or tachycardia, there are treatments to help.

Stillplodding · 15/02/2025 12:03

My eldest son (21) has SVT. He has (thankfully short!) episodes where his HR suddenly climbs up to 200 bmp (his record is 227!) for 5/10 min and then goes back to normal as suddenly as it started. There are no obvious triggers. He’s a normal weight (low BMI but he gets his body shape from his dad- tall and thin).

He had blood tests (normal) and ECGS (normal). What actually helped his diagnosis was a smart watch that had an ecg feature in addition to being able to describe his symptoms. It meant he could actually show the consultant what was going on. Obviously it wasn’t medical grade or anything and was viewed in addition to his description of symptoms.

He has these episodes completely randomly so he’s never been in a medical setting when he’s had one. He might have 3 or 4 episodes in a fortnight … then nothing for 2/3 months… then repeat.

He was told that meds (beta blockers) wouldn’t be suitable for him, because his BP and resting HR are quite low, normal but on the lower end of the scale, and as he’s incredibly tall the dose required to deal with the SVT would lower his BP too much etc… and a small enough dose not to upset his BP wouldn’t be large enough (considering his size) to help the SVT.

He was offered an ablation after electrical studies (I can’t remember the medical name but basically they thread a catheter through his groin and electrically stimulate the heart to work out where the electrical short circuit is, then they go in with a different catheter and zap the bad cells to stop the issue).

He wasn’t keen on that. There were v small but significant risks ( inducing a heart attack, and something going wrong resulting in needing a pacemaker for life) that he wasn’t happy with.

The consultant said watching and waiting was a valid option, and he could reassess at a later date. That’s what he’s decided on for now.

His episodes are awful (his description, feels like you’re about to die!) but pass very quickly and are infrequent enough that at the moment he’d rather put up with them.

Hopefully you get some answers soon OP.

17to35 · 15/02/2025 15:50

If you were told that you have sinus tachycardia, that is not the same as SVT
If they have ruled out thyroid issues then stress is likely to be a factor. You mention this yourself.
Obviously a 24 hour monitor is looking for the bigger picture and this will be discussed with you later.

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CookieCrumbles23 · 15/02/2025 16:15

I have episodes of SVT. It’s hard for echos etc. to pick up SVT as there’s not necessarily a problem with the heart structure. My highest rate was close to 195. In the past, blowing hard on a syringe has helped, but a few times I’ve had to go into hospital and administered medication to essentially reset my heart because it wouldn’t slow down naturally. Have you got the heart monitor app on your phone? I always used it during my episodes as it records HR, date and time, so there’s a record if further intervention is needed.

Mine started all of a sudden in my 20’s, so it was a complete shock and I thought I was going to die. My trigger is stress, but once was triggered by raspberry leaf tea (I believe).

thornbury · 15/02/2025 16:53

DH had atrial flutter, it was similar to what you're describing. They tried medication when he got taken to the hospital but it didn't work so they shocked him. It kept recurring so he had two catheter ablations about a year apart before it settled. He had beta blockers for a while but stopped as he couldn't exercise on them.

Jalen223 · 16/02/2025 11:45

Thank you for all the replies . It was pretty bizarre. I’ve had an echo scan , blood tests and ecg. The only thing they are saying is possible rhythm issues, so will fit a heart monitor. In my discharge papers it mentions ‘primary diagnosis, palpitation query anxiety?!

yes, I’ve been feeling unusually more anxious and stressed, but there is no way anxiety could make me pull up in car whilst driving, and feel totally disoriented and my chest was beating so fast and tight. Anxiety for me just causes my stomach to ache a bit, maybe mild palpitations. I was discharged 1.5 later after my echo so I’m assuming they just want I do heart monitor to find out what’s going on.

OP posts:
Jalen223 · 16/02/2025 11:47

Stillplodding · 15/02/2025 12:03

My eldest son (21) has SVT. He has (thankfully short!) episodes where his HR suddenly climbs up to 200 bmp (his record is 227!) for 5/10 min and then goes back to normal as suddenly as it started. There are no obvious triggers. He’s a normal weight (low BMI but he gets his body shape from his dad- tall and thin).

He had blood tests (normal) and ECGS (normal). What actually helped his diagnosis was a smart watch that had an ecg feature in addition to being able to describe his symptoms. It meant he could actually show the consultant what was going on. Obviously it wasn’t medical grade or anything and was viewed in addition to his description of symptoms.

He has these episodes completely randomly so he’s never been in a medical setting when he’s had one. He might have 3 or 4 episodes in a fortnight … then nothing for 2/3 months… then repeat.

He was told that meds (beta blockers) wouldn’t be suitable for him, because his BP and resting HR are quite low, normal but on the lower end of the scale, and as he’s incredibly tall the dose required to deal with the SVT would lower his BP too much etc… and a small enough dose not to upset his BP wouldn’t be large enough (considering his size) to help the SVT.

He was offered an ablation after electrical studies (I can’t remember the medical name but basically they thread a catheter through his groin and electrically stimulate the heart to work out where the electrical short circuit is, then they go in with a different catheter and zap the bad cells to stop the issue).

He wasn’t keen on that. There were v small but significant risks ( inducing a heart attack, and something going wrong resulting in needing a pacemaker for life) that he wasn’t happy with.

The consultant said watching and waiting was a valid option, and he could reassess at a later date. That’s what he’s decided on for now.

His episodes are awful (his description, feels like you’re about to die!) but pass very quickly and are infrequent enough that at the moment he’d rather put up with them.

Hopefully you get some answers soon OP.

Aww bless him! Yes, it’s freaky scary as it comes out of nowhere. The cardiologist mentioned to get the watch thing to work out what’s going on.

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