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Private vs NHS dx & meds - how do handle the 'ettiquette' please?

30 replies

medianewbie · 18/12/2024 11:04

Ds has had poor experience with local NHS Cardiac Consultant.
(currently suggests 'watchful waiting' when Ds MRI show clear deterioriation)

So we went to see a private Consultant. He couldn't comment much on that part as no access to MRI scans (diff health board & ours 'don't send out of county') but did suggest we ask GP / NHS consultant for THE standard med (which I'd researched & thought Ds should have been on from the start). He said that he couldnt instruct NHS consultant or GP but 'ask & it wont' be a problem' (it will)

He also dx POTS & prescribed meds, & said we should stop NHS med & start his med for PoTS. I was given a handwritten letter ('typed to follow') but I can't get a GP appt to turn this into a prescription. Do I go back for a private one or just hand into GP REception & hope for best? (time short for Xmas hours now)

I thought we should write to NHS Consultant to advise we'd been to private?
He wont be happy - he'd said it was all 'in Ds head' & did a Psych ref (no ref to this in his covering letter re the worse cMRI results I notice!) I don't want the relationship to deteriorate as we need the further MRI in Feb but I DO want the 2 new drugs for Ds meantime rather than 'watchful waiting'?

OP posts:
EvelynBeatrice · 18/12/2024 23:33

Doctors reacting with umbrage to any request for a second opinion may be why the NHS kills an estimated 10000 people a year.

titchy · 18/12/2024 23:49

SwordBilledHummingbird · 18/12/2024 16:32

You'll be lucky if your GP will prescribe Ivabradine. There's a long story, which I'll leave out as it's not relevant, but mine point blank refused to even entertain it. I eventually found a different combination of meds that worked better for me (also for POTS) so fortunately only had to fork out for it privately for six months or so.

Just to say the opposite here - dd's GP happy to prescribe ivabradine following initial script from consultant. (She hated it and went back to beta blocker but even so...)

Santahoney · 18/12/2024 23:56

I’m also rural Scotland and ended up getting a private opinion (for a different health issue) in this situation I’d get the prescription from the private dr and then just get a letter sent to inform that that’s the decision made and then bring up at next appt about the possibility of continuing under nhs?

SwordBilledHummingbird · 19/12/2024 09:40

titchy · 18/12/2024 23:49

Just to say the opposite here - dd's GP happy to prescribe ivabradine following initial script from consultant. (She hated it and went back to beta blocker but even so...)

I'm pleased to hear that not all GPs are as bad as mine! Mine are genuinely terrible. I would switch surgery but every single one in my city is owned by one of two big groups and the other one has even worse reviews. The only good one is a private practice but I'm on too much medication, it'd cost me an arm and a leg to pay for it all privately.

medianewbie · 23/12/2024 09:51

Regardless of etiquette, I can't get my GP to return my call or get the 'urgent' blood tests (Troponin & inflammatory markers) ordered by NHS Consultant (to see if Ds is going back into heart failure post his worsened cMRI results) before mid Jan. Ds can barely get out of bed. He is obviously ill. Hoping we don't end up back in A&E over next 14 days. The NHS is completely broken.

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