IPF, My mum might die and I'm so scared.

[SaunteringDownwards]

My mum has been ill for a while now. Terrible cough, weight loss, shortness of breath etc. She's had a bunch of tests. It looks like she's been diagnosed with IPF by the letter she had today. We're both in complete shock as it's such a serious illness and no one has even called her and she's only 62. It says online she can expect to only live for three years but new medications may help.

We've arranged for her to go see the Dr tonight to talk through the letter etc but I just don't know what to say or what to do. I'm going to go with her. Does anyone know what questions I should ask? I am hoping a transplant may be possible due to her age.

Advice or a hand hold would be appreciated. I'm only 37 with no dad. I'm too young to not have a mum. She's so scared and I just don't know what to do.

I'm really sorry to hear this OP, you must be very shocked.💐

I had to look it up and there seems to be no rhyme or reason which is so frustrating.

There are a couple of organisations who may be helpful. I suggest calling and asking what questions to ask for tonight's appointment:

Action for Pulmonary Fibrosis and the Pulmonary Fibrosis Trust

It depends what your mum is like but I am quite matter of fact and would take control because often when someone gets a diagnosis like this they feel out of control and powerless. It helps to have hope and reassurance.

Things I would do would be to research diet, supplements, medication and other forms of treatment including holistic. It might help to research support groups or forums where she can ask questions and get support. If there are no support groups locally then there might be some online.

I would also spoil her for a bit while she gets used to the news. Maybe take her for tea and cake or something she enjoys doing. Perhaps arrange a meeting with friends or even a trip away so she has something to focus on and take her mind off things.

For support for yourself, perhaps have a think about counselling and of course there's always the Samaritans.

Thanks for looking it up @username358 . I am in shock and so is she. I can't believe she would be diagnosed with a terminal illness via letter in this way. She is 62 and just went in to the hospital to check on her ongoing cough. How can this be happening to her? She does smoke but not excessively and it says IPF can happen even if you don't. We have no history of lung or heart issues. I just don't understand.