Where can I turn to for help? Thyroidectomy, bereavement, mental health, physical health?
Hi everyone - I have posted before about my thyroid issues.
I’m looking for some advice on where I can turn to for help - I’m pretty desperate.
This year has been terrible for me and I really need help.
I was diagnosed with overactive thyroid in Feb this year but think l've had symptoms for at least maybe a year before that..... maybe even years before at times? Who knows!
I became really ill with the symptoms, pretty much bedbound. High heart rate when trying to do anything, breathless, dizzy, severe fatigued, stomach problems, nausea, severe depression and anxiety. I genuinely thought I was dying.
The anti thyroid meds didn't work for me - they affected my liver and I felt terrible on them! So had total thyroidectomy in July.
A couple of weeks before the op, I’d been staying with my parents because of how unwell I’d been feeling. Unfortunately my mum because unwell suddenly, struggling to breathe and I had to call an ambulance. She was taken to hospital.
It turned out that she was very ill. I went ahead with the surgery and my mum unfortunately passed away the next day.
Struggling to get over everything - how I have this illness and l've had to remove an organ. Struggling with the fact I have to take Levo for life, unsure if it's working properly - levels are still stabilising I think? Scared of it all and facing life without a thyroid and waiting for another illness to crop up
Struggling to come to terms with losing my mum.
I feel like something bad is happening to me everyday. My mind feels terrible. I’m not sure which is thyroid related and which is mental health. I spend a lot of my days feeling like I’m dying - it’s awful
I have had crisis team involvement but they’ve now discharged me back to my local mental health team.
my ferritin, vit D, b12 are in good range (upper ) but my folate was low (low in range) so I’ve been taking supplements (methyl folate)
Post thyroidectomy, I was really worried that I may not be converting but my thyroid test shows my t3 has recovered somewhat?
30 Sept:
TSH 0.28
T4 - 14.5 (9.1 - 17.6)
T3 - 4 (2.4 - 6)
Help and advice appreciated