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Original poster

Over medicated on levothyroxine

32 replies

Mezza80s · 06/10/2024 19:54

I've had hypothyroidism & hashimoto's for the last 18 years,its always been under control & I've felt fine up until about 3 months ago. I started feeling really anxious, shakey & like my body was vibrating, palpitations, couldn't concentrate, irrational thoughts, over thinking, muscle aches, massive weight loss, insomnia, loss of appetite, feeling of a lump in my throat I could go on.... So I went to the Dr's & they checked my thyroid & my T4 was high so they dropped my dose from 125mg to 100mg I went back 5 weeks later for a re test & it had gone even higher despite lowering my dose. The Dr told me to stick at 100mg & re test again in 4 weeks which is this Tues. My question is everything I'm feeling being caused by being over medicated? I literally feel like I'm going crazy!! My body won't stop shaking & vibrating, I'm not sleeping because I feel electrically charged 24/7 I feel low/depressed & my mind just races with so much information/thoughts I feel like I'm bouncing off the walls. The Dr's won't listen to me & just tell me it's anxiety. I've always had anxiety but this is something else! I've NEVER experienced this in my life & I've had anxiety since I was 8. Just want to know I'm not going insane because I'm literally at tipping point & feel like the Dr's think I'm making it up. Thanks in advance for any replies 🥰

OP posts:
Original poster
Mezza80s · 08/10/2024 20:29

GotoutoftheUKphew · 08/10/2024 19:30

Hello. I have had something similar a couple
of times before and I think it is to do with the Hashimotos.

The way my dr explained it to me is that the thyroid is unstable so now and again it speeds up massively and another part of it dies off.

This is why Hashimotos sufferers are given levothyroxine, it keeps the thyroid stable.

In my case, it was temporary- one time lasted about a month max and the other time maybe two months.

It's just so horrible! I don't feel in control of my body or my mind. Just had my bloods I had done today done & my T4 is now in "normal" range of 21 & my TSH has now gone really low being just 0.17 so god knows what's going on. Hoping they call me tomorrow to discuss it. I've seen the results on my NHS app this evening. Thanks for your message, nice to know I'm not going mad!

OP posts:
Original poster
Mezza80s · 08/10/2024 20:37

ForestAtTheSea · 08/10/2024 20:28

Good to hear your blood pressure is ok!

IIRC, there is some relationship between Vitamin D and thyroid hormones, in that Vit D helps the thyroid work better. Possibly it has improved the availability of your medication in your body. But soon you'll have your test results and can discuss it with your doctor, depending on what the result is.

chriskresser.com/the-role-of-vitamin-d-deficiency-in-thyroid-disorders/

Just seen my results on my NHS app. My T4 which has been the one that's been high is now showing "normal" range at 21 but my TSH has dropped dramatically to 0.17 which still indicates being over active. Hoping they'll call me tomorrow to discuss.

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Original poster
Mezza80s · 14/10/2024 20:53

Lavenderfields21 · 06/10/2024 20:36

Why on earth would they have advised stay on the dose when levels were going up? Seems obvious that it's over medication.

Well my results came back & surprise surprise I'm even worse than before so finally they've lowered it to 75mg fingers crossed this helps more. Got bloods again in 6 weeks so we'll see if thats normal or it needs lowering further.

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DecafDodger · 14/10/2024 21:32

Yes I had all those symptoms when over-medicated. Especially the vibrating was very annoying. It took a while to get back to normal even with lower dose, so don't be disappointed if it doesn't happen overnight.

Original poster
Mezza80s · 15/10/2024 06:53

DecafDodger · 14/10/2024 21:32

Yes I had all those symptoms when over-medicated. Especially the vibrating was very annoying. It took a while to get back to normal even with lower dose, so don't be disappointed if it doesn't happen overnight.

Thank you so much. It's nice to hear I'm not going crazy because the Dr's are certainly making me feel that way. They've told me none of what I'm feeling is down to my thyroid but I know different. Did you get pain/pressure in your throat? I feel like someone has their hand around my throat & it feels odd when i swallow.

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DecafDodger · 15/10/2024 12:26

Yes, even got a thyroid scan to see if anything is going on there, but was fine. Went back to normal once the dose was properly adjusted. And had proper panic attacks, which also disappeared.

Original poster
Mezza80s · 15/10/2024 15:34

DecafDodger · 15/10/2024 12:26

Yes, even got a thyroid scan to see if anything is going on there, but was fine. Went back to normal once the dose was properly adjusted. And had proper panic attacks, which also disappeared.

Thank you so much.

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