ASD assessment feedback for Ds1 today - terrified

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I am panicking that they are going to say he doesn’t meet the threshold.

That rarely/never happens right, if the school are supporting it? Please help me calm down..

Such difficult times, fingers crossed 🤞

we’ve spent years going round the houses about whether to get him assessed or not. So many hours of “what if” conversations.

Well , it does happen, but even if it does you should get a nice long report and should receive plenty of recommendations for next steps.

Which is pretty much as useful as the diagnosis in the first place. Everything else you apply for should be needs based if you need financial support etc.

I have heard it said that if a child is showing enough traits to warrant being tested for ASD, it is very rare that they will not be given that diagnosis. I don't know how accurate this is, but makes sense.

Good luck 💐

Very rare, i would say. And, the school has obviously noticed features in his behaviour that have triggered a referral so, if he does not meet the threshold for ASD, you will still get feedback on how to best support him.

But i would say your worries are unnecessary. Good luck!

I tried for 7 years to get a diagnosis for my DS as I thought he would benefit from the support if he was diagnosed. The school and professionals kept saying he was not autistic - at the end of my tether I insisted that the specialist assessment team visited him at school and at home rather than in a stuffy office where he would mask - which they did eventually and they saw straight away that he did indeed have autism to a high degree. Basically what I'm saying is if you think he does have ASD don't be fobbed off.
As a side note worth mentioning - I got the diagnosis but there has been very little support for my DS in education and through the mental health system and he absolutely hates his diagnosis and wishes I had never got him assessed - he is now 13

Oh and good luck - I'm sure all will be ok

DS1 is 17 we already have all the support he needs his place currently (his school is amazing absolutely cannot fault them with this).

Him possibly reacting poorly to the label is one of the reasons we haven’t assessed him before now.

My DS was diagnosed at 5 and I didn't have the backing of the school as he'd just started reception. CAMHs then referred him for adhd assessment and he was diagnosed at 6. My friends child was first referred at 4 and never meet the requirements, parents insisted and he was seen again at 7 and 12 both times he's not meet requirements. He does have a echp as academically he struggles and he's very immature, parents still insist he's autistic. Either way he's a lovely lad and is doing well.

Good luck I hope you all get the support you deserve.

I was slightly panicking because the copes well in school (he goes to an academically selective school and is an academic child). So whilst the school supported the diagnosis they didn’t refer him. Because a lad that will talk endlessly and interestedly about maths is obviously just what you want in your further maths set.

anyway results are in - has has ASD.

Hope it went well. How do you feel now it is done with?

Glad it’s over. Doesn’t make any difference to us. Partly because he is clearly going to cope in life - something we weren’t sure off when he was younger.

Actually what I’m going todo is book a celebratory meal out!

Sounds good to me!