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How can I get a Dr nite for a gluten free diet for my 4 year old school meals?

17 replies

ShoopShoopShoopShoop · 09/09/2024 19:55

My daughter is 4 and 9 months, just started school and is on a gluten free diet. This is because when she was two, it became clear that her stools were loose, the doctor suggested removing dairy and wheat. We withdrew dairy, no effect. Withdraw gluten, problem solved. Have tested her with gluten periodically and if she has it, it's back to loose stools, and she spoils herself. Luckily for her it's only a wheat intolerance, she can have barley etc and we don't have to worry about cross contamination.
Anyway, I haven't been back to doctors for that, as the problem was sorted.
To get an official diagnosis, I'd have to give her wheat again,and it will result in two weeks of tummy aches and (loose!) poo in her undies. Not fun for anyone.

She has now started primary school and to get gluten free meals they require "medical evidence"... Do you think I can ask her doctor to fill in the form and just say "yep, needs to be gluten free" or would the doctor not do that?

Presumably they still have the records of us going z and them advising removal of gluten. Would that be enough?

Sorry, don't want to waste doctors time if you don't think it's worth a shot?

There's a 3 week rotation of menu and I'm just concerned that for the naturally gluten free choices, she will be having jacket potatoes 10 meals out of 15. With curry, sausage and roast dinner (no stuffing) as the 5 remaining meals. I'm one week she is having 4 jacket potatoes.

And I can hear you all now, saying "so what, she can have jacket potato?". She doesn't like potatoes very much and she's not super keen on baked beans 😬 now ... broccoli, loves it, carrots, loves them, kale, gobbles it up, aubergine... Delicious. Swede ? Yep. Basically any other vegetables are good to go. But Potatoes and baked beans though? She never enjoyed them even as a baby when they'll eat anything!
She'll eat it if she's starving and it has the melted cheese on it, but she will literally be eating 1/3 of a jacket potato up to 4 times a week.

(Yes, I can give her packed lunch, but I'd rather take a shot at getting her having free school meals)

Sorry for the essay ha ha

OP posts:
LittleMsSunny · 09/09/2024 20:05

Ask the Dr see what they say, if its a intolerance and not coleiac are you sure there is a test for it anyway?

ShoopShoopShoopShoop · 09/09/2024 20:08

LittleMsSunny · 09/09/2024 20:05

Ask the Dr see what they say, if its a intolerance and not coleiac are you sure there is a test for it anyway?

I think there is..they do a blood test.

OP posts:
UncharteredWaters · 09/09/2024 20:08

The school shouldn’t even be asking the gp.
it is a school issue and not a gp one!!!!!
boils my piss that everything needs a damn note from the doctor!!!

she is gluten intolerant and not allergiec/coeliac I take from your post?
id write them a letter stating that she has had a gluten free diet since 2 yrs - your requirement needs this to continue and her medical issue is no different to a religious request not to have pork which they wouldn’t be looking a letter from the local religious order for……

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UncharteredWaters · 09/09/2024 20:09

ShoopShoopShoopShoop · 09/09/2024 20:08

I think there is..they do a blood test.

Yes there is but she needs gluten for 6weeks and is it worth putting her through it for that?

UncharteredWaters · 09/09/2024 20:10

I’d support you in writing back to the school saying speak to ‘shoops re her dds needs and if you want a letter then school can pay for it.

it’s not nhs work!

BarbaraHoward · 09/09/2024 20:10

Ring your GP surgery, they'll be used to such things and I would have thought you have a good chance at getting a letter. Ring outside the rush for appointments time and explain to the receptionist.

Thisreallyhurts · 09/09/2024 20:19

Can't be of much help, but this would totally piss me off! My youngest has exactly the same issue as your girl, my eldest has epic meltdowns and fits of rage if he has gluten. Neither nursery or school have ever wanted more evidence than our say-so. They are being fucking ridiculous!!! I wouldn't be surprised if they're doing this because it's "trendy" to eat gluten-free, so they think you're just being fussy. Tell them exactly what happens if your girl eats gluten and ask them if they still need a doctor's note or will just take your word for it!

ShoopShoopShoopShoop · 09/09/2024 20:23

UncharteredWaters · 09/09/2024 20:09

Yes there is but she needs gluten for 6weeks and is it worth putting her through it for that?

Definitely not!

OP posts:
DavidBeckhamsrightfoot · 09/09/2024 20:28

I went through this hell with my 3 kids and a bitch on a power trip.

Apparently a fairy free diet is a safe guarding concern as in depriving them of nutrients without medical

But a vegan diet was a perfect option.

I had to get a letter from the Dr's
It took months because the morons couldn't organise a piss up in a brewery.

Also a blood test would only show if she were celiac. It could show negative and she still have an intolerance.

jamimmi · 09/09/2024 20:33

This makes me so cross. Dd somewhat older than yours is either gluten intolerant. Or coeliac but as she had eliminated gluten from her diet, before they could retest her we aren't quite sure, but she's completely off her medication for uncontrolled acid reflux, hasn't thrown apart from when we accidentally glutened her and no.longer faints both gp and she have agreed she needs to be gluten free. She would be unable to tolerate the 6 weeks of gluten twice daily to allow for resting now even if she agreed. She get gf provided at college noletter needed . They have said they will do a .letter for uni re.needing a self catering halls.

ShoopShoopShoopShoop · 09/09/2024 20:35

Well, I've emailed the doctor receptionist with a breezy "if you could fill this form in, that would be fab". Kind of email.
Will see what happens! 😀

OP posts:
ShoopShoopShoopShoop · 09/09/2024 20:36

To be clear, its the catering company insisting on the form, not the school.

OP posts:
Justploddingonandon · 09/09/2024 20:36

I had this with DS. His allergy was diagnosed though. GP can provide a letter, we had a pay a small amount for it as it's not NHS work.
Mostly I was annoyed they introduced this when DS was in year 4, having been happy without before. However it was explained that it was because out of 650 kids, 480 apparently had some kind of dietary requirement and it was making catering near impossible. Judging by the number of people who never provided the proof, there was an awful lot of people claiming they were allergic to something when their child just wouldn't eat it.
Now DS is at high school and they don't require proof but expect him to manage it himself ( his allergy is something that is relatively easy in avoid).

stichguru · 09/09/2024 20:37

The shouldn't need a letter. To be honest though, if they are being this picky I wouldn't trust them and would just do packed lunch. Shows a can't be arsed attitude, which doesn't give me confidence they'd be properly careful!

123456abcdef · 09/09/2024 20:45

Had this with dairy for my 2. First child the dr managed to print off a letter from peds dietician to the gp stating cmpa. Second child never got referred for testing so no such letter existed. Gp managed to produce a letter stating suspected cmpa but the catering company got in a hump over it.

I have to say I got nicely snotty at the school to pass on to catering company along the lines of if I was vegan I could choose for my child to be vegan, if I was Jewish I could choose for my child not to have pork. Why wasn't it good enough that I as her parent wanted a dairy free meat diet for my child and they already had a letter stating that she was highly likely cmpa.

if that didn't work I would of had to pay for a private letter from the gp.

ShoopShoopShoopShoop · 09/09/2024 20:48

Justploddingonandon · 09/09/2024 20:36

I had this with DS. His allergy was diagnosed though. GP can provide a letter, we had a pay a small amount for it as it's not NHS work.
Mostly I was annoyed they introduced this when DS was in year 4, having been happy without before. However it was explained that it was because out of 650 kids, 480 apparently had some kind of dietary requirement and it was making catering near impossible. Judging by the number of people who never provided the proof, there was an awful lot of people claiming they were allergic to something when their child just wouldn't eat it.
Now DS is at high school and they don't require proof but expect him to manage it himself ( his allergy is something that is relatively easy in avoid).

I get it is a royal pain for the catering company. "Oh my darling is allergic to vegetables" and all that or "no peas please" that kind of thing.

OP posts:
BarbaraHoward · 09/09/2024 20:57

I think requiring evidence is fair enough tbh. Otherwise people will claim intolerance for preferences. They also need to know about cross contamination risks etc.

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