Health Co ordinator / Life PA?

[Emeraldwaters]

I feel really silly feeling like I need this, but have developed a number of conditions since covid and am struggling with keeping in top of health appointments.

Are there people that I can give all the text, email, portal access codes, deal with the admin and endless hold music, advocate, chase for responses/actions to results etc? I am struggling massively. Do they exist? How do I get someone and how much do they cost?

I can no longer work, nor have any savings left, but we could probably cut back on something somewhere to manage this. Also on two week pathway and desperately trying not to crash further. I feel so spent and so desperately want a little of my life back.

Yes they do. There are virtual assistants who do this type of support. A good place to find them is the VA Helpdesk group on Facebook. I've no affiliation but have hired from there before.

They are about 25-35 an hour but get loads done and time usually to the minute.

It sounds like you need an access worker, which is someone who offers support to people who are disabled. (Im sure you’re familiar with the social model of disability - noone is inherently disabled, but we can be disabled by society. And that is what is happening to you in relation to your current health needs)

i have friends who get this support but I’m not sure how they make it start - perhaps contact an organisation like scope?

Thank you. Is there this type of thing specifically for Co-ordinating and advocating for care/health? Will they be able to follow up on medical results etc e.g. bloods come back all over the place - can they chase for what this actually means? I've had hearing loss since covid - can they chase to see what can be done? I've had various scans showing random inflammation, sleep apnoea, enlarged liver etc. Can this be chased up? I go to these appointments, they find things and then it's silence. I have a wound that needs repacking every two days - can they chase practice manager or see if I can get a district nurse so that I don't have to wait three hours in walk-in?

Energy is so limited. I get floored if I do much and then my symptoms exacerbate even more and I have to push through to get to the next appointment, so it's a shitty shitty vicious circle.