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Can anyone help me figure out what electric wheelchair/mobility scooter to get?

32 replies

CassandraWebb · 29/07/2024 12:19

I think I am finally making peace with the fact that if I want my life to be less limited I need to accept using a wheelchair or scooter some of the time.

I can walk a bit, I can swim a bit, I can potter about but anything like a shopping trip or trip to a museum with lots of standing and walking makes me ill very fast (I have myasthenia, if I do too much I don't just lose control of my legs I also start losing my ability to see, speak or swallow)

But I am unsure what to get!

I cant use a self propelled wheelchair as my arms are weaker than my legs.

I am unsure about a scooter as I think I couldn't hold my arms in that position due to their weakness.

Electric wheelchairs mainly seem quite expensive but I have seen some cheapish ones (£500-600 ) and wonder if they would do the trick? Or will they break really quickly ?

I know some places have scooters to hire but they often have to be booked in advance, plus this condition is lifelong so if I do get one it is likely there will always be days when I can use it.

Any thoughts from people with experience are welcome!

I don't think it would ever be safe for me to lift the wheelchair out of the car so I would be relying on DH to do that. I don't want to rely on him pushing me though as he does so much for me already and also I am quite independent in mindset! I would love a wheelchair light enough that my children could lift it out of the car if we go out when DH is working though

OP posts:
TigerRag · 29/07/2024 12:27

Do you have a mobility shop near you? They'll have scooters you can try

CassandraWebb · 29/07/2024 12:33

I think it's quite a long drive to the nearest one so I really want some thoughts from people who use them as well if that makes sense?

OP posts:
CassandraWebb · 29/07/2024 12:39

I think I mainly want a sense of whether a cheap electric wheelchair is going to be a disaster or will be fine for occasional use. I think it's likely a wheelchair will be better for me that a scooter

OP posts:

Interested in this thread?

Then you might like threads about this subject:

nobodygoes · 29/07/2024 12:42

My mum uses both a scooter (large) and has a wheelchair that I use to take her out. The first thing I would say is if it's going in the car check the weight because they can be quite heavy. She used to have a scooter that divided into 2 bits and the seat came off and it was a faff so she got the electric wheelchair which is much easier to get in the car but isn't the best if she's not on the flat as it veers to one side. Really the best thing to do would be to go to a shop and test them however there are some places that will bring a selection of scooters/chairs to your house so might be worth looking for one of them. You can often get good deals on second hand ones so might be worth looking at that.

lovepets · 29/07/2024 12:42

Hi I have a Lith Tech Mobility wheelchair. I can't hold my arms up to operate a scooter, so I went for one of these. They're quite a lot more expensive than you mention, but I paid monthly instalments. The batteries are quite light and can be removed from the chair to be charged.
I have a motability car with a hoist, but the wheelchair can easily be lifted out by a strong person; it's not too heavy.
Have you considered applying for PIP? Just a thought.

bluebellsandspring · 29/07/2024 12:44

A problem with a scooter can be that they don't fit in all lifts.

If you do go for an electric wheelchair I'd look for one that is from a well known brand that can be repaired in the UK if there is a problem with it. I know that it can be difficult to repair some of the less well known brands.

CassandraWebb · 29/07/2024 12:45

bluebellsandspring · 29/07/2024 12:44

A problem with a scooter can be that they don't fit in all lifts.

If you do go for an electric wheelchair I'd look for one that is from a well known brand that can be repaired in the UK if there is a problem with it. I know that it can be difficult to repair some of the less well known brands.

Thank you that's a helpful point!

OP posts:
Muchtoomuchtodo · 29/07/2024 12:46

Would you qualify for a NHS funded powered chair?

CassandraWebb · 29/07/2024 12:48

Muchtoomuchtodo · 29/07/2024 12:46

Would you qualify for a NHS funded powered chair?

I very much doubt it. I can easily walk the dog a mile or so, go for a gentle swim etc most days.

It's anything longer than that's or in hot weather (makes my symptoms worse faster) etc that I am missing out on

I'm in that "green zone" where life is very limited but not limited enough (not that I am not grateful to have the mobility I do)

OP posts:
Octavia64 · 29/07/2024 12:49

I'm disabled.

I have a manual wheelchair and two electric wheelchairs.

One of my electrics is like this :

https://store.easylivingmobility.co.uk/shop/powered-wheelchairs/lightweight-folding-powerchairs/icarbon-style-epic?gadsource=1&gbraid=0AAAAADa7IfgBmXpZi7UrMCxhIZPx3H76X&gclid=Cj0KCQjw-5y1BhC-ARIsAAMMoKnT0NzzYUCtNCdkyuc7-Q04XzRjj4yvXiesomjWc3sPuyn6F0hX-ZYaAj8pEALwwcB

These fold. They are also lightweight - mine is 17kg. The battery comes out so you can fly with them (battery in cabin, wheelchair in hold)
This is the one I've had longest.

It's easy for an able bodied person to lift it in and out of a car and it fits in most boots even my mum's i10. Folds down to child buggy size.

Downsides: range. It won't do more than about 1.5 hours continuous maybe 5 miles. Needs overnight to fully charge the battery. Spare batteries are most of the cost of the chair -500 quid.

I now have a more traditional electric wheelchair as well which I got second hand from a mobility superstore place.
It won't go in my current car - way way too heavy - but has a range of 18 miles so will do a whole day out/travelling.

Lionoso · 29/07/2024 12:49

I'm looking at this myself, more for the future, but it's so expensive isn't it 🙁

I have used a mobility scooter a few times that I have hired at places we have visited. Scooters are good in that they have good range, can handle some rougher bits well, but they don't fit on most buses which is a problem for me. I have to uses buses quite often and a scooter would limit me.

The electric wheelchair mentioned above by another user, the Lithium one, seems to tick all my boxes. I'm currently saving up for one as they are sadly very expensive.

MrsPelligrinoPetrichor · 29/07/2024 12:51

CassandraWebb · 29/07/2024 12:39

I think I mainly want a sense of whether a cheap electric wheelchair is going to be a disaster or will be fine for occasional use. I think it's likely a wheelchair will be better for me that a scooter

My mum couldn't get to her nearest shop so they brought options round for her to try out. Worth asking about.

CassandraWebb · 29/07/2024 13:00

MrsPelligrinoPetrichor · 29/07/2024 12:51

My mum couldn't get to her nearest shop so they brought options round for her to try out. Worth asking about.

I'll be able to get to a shop, but hopefully that info will be helpful to others.

It's the insight from actual other users that I'm looking for here, to help me feel more informed before I head to a shop/look on eBay etc

I can afford to pay a bit more if it will make a big difference to the performance, it's just balancing cost against the fact that I will only need this for big days out /shopping trips etc. Most of the time my car effectively gives me mobility

OP posts:
Escapetothecountryplease · 05/08/2024 08:10

I'm in the same boat as you. Interesting thread.

I'm actually considering an electric e scooter just for dog walks or taking the kids on bike rides. Much cheaper, even more so on eBay. But I'm not sure I have the balance. And doesn't solve the long day out problem at all. I'm not there yet because I can't currently drive any distance so no big days out for me!

Last summer I used the shop mobility service in local big town and they were so helpful showing me all the different models and letting me try them out. It was quite an experience going around town - other people's ignorance was something else!! But that's another story.

Shop mobility can deliver sometimes to locations near their base.

Re lifting into the car, my friend with the same condition as me has a lift in her car boot. I think this was provided by Motability, they might be worth contacting to see what you're eligible for.

Wheelchairs, you may be eligible for an NHS manual chair, and then you buy a power pack to add on it. Again worth talking to them for advice.

In my county we have Independent Living Centres in a few big towns. These are staffed by NHS Occupational Therapists and exist so that people can try out disability equipment that they aren't eligible to have funded. But you can still get professional advice. I reccommend highly.

Best of luck. The emotional side of all this is huge..

bluebellsandspring · 05/08/2024 21:55

I've seen some people use electric scooters with a seat. I'm not sure if they are bought like that, or if they are modified, but they seem to work quite well. I suspect some of them are used as a cheaper alternative to buying an electric wheelchair or mobility scooter.

Icedlatteplease · 05/08/2024 23:46

The NHS will only prescribe electric if you have to use it within the home. But worth being assessed as you can ask for vouchers to help fund your own, or to fund a manual as an extra option. check out charity fundin
Something you lie to ti puts a barriers between you and what'ily in front of you. So scooters are great frg walks outside for example because o tery length ruggedness etc or tripse shops (where you use the scooter to cover distance). However if you want to interact with things in front of you (eg a restaurant, museum, other people etc) a wheelchair is better. You may find you actually want a manual wheelchair (if you have someone to push) and an electric scooter. Or even a scooter attachment that attachs to a manual chair, (although these are expensive)

Conversely you may find actually you can get really good and checking ahead/booking mobility scooters where places have them and you do want an electric wheelchair. Which brings me nicely to....

Look into the mobility options at places you want to go, many dys out have mobility scooters/trappers you can either hire generally for free, try them out in the field and see what you actually want. Unless you want it for shopping trips and walks from home, if you are good at booking ahead or arriving at opening times, you may find English heritage/national trust etc scooters cover many of your needs without the hassle of getting them in/out the car etc.

If you are looking for walks from home, we found putting a mobility scooter sized storage box somewhere where you can just roll in and out and running electrics out to it invaluable. Take the battery in when it gets very cold though else you find yourself buying a new battery every winter 🤦‍♀️.

Think about trunk support/molded cushion and/or a head rest. If your using the chair as a pacing aid (ie to take some of the physical strain so you can do/enjoy more of the things you like) moulded seat cushion as a minimum on a wheelchair will help your core. Scooters tend to be less good at this than wheelchairs (some are a secret core work out the seats are so un supportive) and in either case the ones that are well supportive can be quite heavy.

When you are thinking about cars, Think about cars with a flat load on the boot. It is so much easier if you dont have to lift over a lip. Consider putting a fake floor in to give you a flat entry if you have the height. This made my life so much easier when i was lifting DS' chair . If it's just you, I second looking at a car hoist rather than lifting anything yourself.

Re mobility scooters. Make sure whatever you have have decent arm rests and a good adjustable console (ie one you can pull close towards you when you are sat). You will find this easier on your arms.

Most do these days have a "dead man" switch which requires you to do something actively to make it move (eg squeeze or push a lever) but this really is essentially for issues with muscle weakness. However make sure that movement of the go lever is in the right direction for you, eg ds found mobility scooters you can pull the lever towards you/ squeeze it to the handle bars, way less tiring than if you had to push a button.

Get mobility scooter insurance for the public liability insurance, fish disability insurance used to be good. Hopefully you'll never need it.

Im hoping you have pip and blue badge. If there is pacing issue/a "cost" to physical exercise etc this still qualifies you even if you can do stuff.

Finally A [[https://amzn.eu/d/dxOxXSc
military surplus style poncho]] works as well as any mobility scooter rain cover and is more versatile

CassandraWebb · 06/08/2024 09:05

Thank you all for your advice.
We went to the shops and did loads of research and it's clear there's always a compromise but I don't get on with mobility scooters brilliantly (because my arms are weak) so I have purchased an electric wheelchair. I went for a really lightweight (carbon fibre) one that's light enough for my son to lift and packs down fairly small. It cost a fair bit but for me it has the right balance of features. I feel lucky I had savings though. I can understand why finding for devices has to prioritise people who can't really move at all but it does mean there is a weird grey zone where you have a degree of mobility but are cut off from lots of activities

OP posts:
EauNo · 06/08/2024 09:54

Sounds great, I hope it gives you some freedom! I have slightly less walking than you and find my electric wheelchair such a life giver.
Now to accessories!
I recommend buying a longer waterproof packamac that covers your legs. Bags are a personal choice and worth spending time shopping around. I use a cross body handbag and put a shopping bag on the back (to carry everyone elses stuff!)
For winter, buy some Baleaf leggings/trousers from amazon. Designed for winter running (lol!) mine are waterproof and thermal, OMG amazing at keeping me warm! Bike lights attached with velcro or a reflective coat are also useful as wheelchairs are often not very visible in dim light.
Enjoy!

CassandraWebb · 06/08/2024 11:16

Thank you so much these are really helpful tips @EauNo

One of the nice things about using the mobility scooter was that I could feel like I was a mum carrying the bags rather than my husband and children having to carry them to ease the load on me. I liked having a little cross body bag for my phone and meds but yes finding the right thing to go on the back is the next challenge.

My days are going to be filled with doing all the things I have been avoiding because they would make me too ill! My daughter's first wish is to go shopping and properly mooch around admiring things with me which is something that I just couldn't do. My husband wants me to go bathroom tile shopping with him Grin. Personally I was thinking art galleries and things but it seems my family have other dreams ...

OP posts:
Lionoso · 06/08/2024 11:28

Which wheelchair did you buy @CassandraWebb?

CassandraWebb · 06/08/2024 11:44

Lionoso · 06/08/2024 11:28

Which wheelchair did you buy @CassandraWebb?

I went for this one https://glebehealthcare.co.uk/products/drive-airfold-carbon-fibre-16kg-folding-powerchair?gad_source=1&gclid=CjwKCAjwqre1BhAqEiwA7g9QhrKV412CSJo_JCd1NA65mpqqmQcpFcn30h3AfKPUsV954Wjqdsi-dRoCDMsQAvD_BwE

Once we tested different types we realised that (because I have a small car - and love it) and because I want to be able to get out and about with just thr children, I wanted to prioritise something really lightweight even if it meant compromising on lots of other things. My son or daughter would be able to lift this and I think even I could as long as my symptoms weren't really bad that day.

I may move to a bigger car and a heavier etc type in a few years but at the moment my small car works so well for me that I didn't want to have to change it.

If you are prepared to go up to about 25 kg in weight though there are a lot more options, but I would have needed a lift for the boot or needed my husband there to lift it

Drive Airfold Carbon Fibre 16kg Folding Powerchair

The UK's Premier retailer of healthcare & well-being products. Reliable, modern mobility scooters, riser recliner furniture, walking aids, care home equipment, healthcare supplies and more delivered to your door. Engineer delivery, service and repair s...

https://glebehealthcare.co.uk/products/drive-airfold-carbon-fibre-16kg-folding-powerchair?gad_source=1&gclid=CjwKCAjwqre1BhAqEiwA7g9QhrKV412CSJo_JCd1NA65mpqqmQcpFcn30h3AfKPUsV954Wjqdsi-dRoCDMsQAvD_BwE

OP posts:
Icedlatteplease · 06/08/2024 13:47

That looks ideal!! So pleased for you!!

CassandraWebb · 06/08/2024 13:56

Icedlatteplease · 06/08/2024 13:47

That looks ideal!! So pleased for you!!

Thank you for your advice about PIP/blue badge too. Really helpful.

I feel like with this chair options are opening up that had been closed to me for so long. It's only part of the picture and won't be suitable for everywhere, but for now it feels like it ticks the important boxes.

OP posts:
Lionoso · 06/08/2024 15:14

CassandraWebb · 06/08/2024 11:44

I went for this one https://glebehealthcare.co.uk/products/drive-airfold-carbon-fibre-16kg-folding-powerchair?gad_source=1&gclid=CjwKCAjwqre1BhAqEiwA7g9QhrKV412CSJo_JCd1NA65mpqqmQcpFcn30h3AfKPUsV954Wjqdsi-dRoCDMsQAvD_BwE

Once we tested different types we realised that (because I have a small car - and love it) and because I want to be able to get out and about with just thr children, I wanted to prioritise something really lightweight even if it meant compromising on lots of other things. My son or daughter would be able to lift this and I think even I could as long as my symptoms weren't really bad that day.

I may move to a bigger car and a heavier etc type in a few years but at the moment my small car works so well for me that I didn't want to have to change it.

If you are prepared to go up to about 25 kg in weight though there are a lot more options, but I would have needed a lift for the boot or needed my husband there to lift it

That looks good. Thanks for sharing.

Scentsless · 06/08/2024 15:37

If you go on a shopping day to a big city for example, or a day out to a theme park for example, you cold hire a mobility scooter from either the theme park, or shopmobility, to give you a feel of what they are like and to see if you can keep your hands on the handlebars.

Another reader mentioned up thread about some scooters not fitting in lifts, but if you have some mobility, you could lock the scooter up outside shops with lifts and walk into the shop, using a walking stick or whatever aid you use.

There are different classes of mobility scooters. Some can go on the road and go up to 8mph, but they cannot go into the boot of a car. Others can go into the boot of a car, but can't go on the road and have a limit of 4mph.

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