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Autism in girls

30 replies

Thirtytwoinsidethesunset · 12/07/2024 20:56

Hi there

I wanted to start this thread to ask others experiences of their little ones who went onto being diagnosed with Autism.

I have a 3 and half year old little girl who is currently on the waiting list to be seen to be assessed.

she’s quite delayed her SOGS assessment recently put her at 18 months development wise.

from a very young age around 9 months old, she never turned round when you called her name, didn’t interact with you when you played with her on the floor and avoided eye contact.

as time progressed on and she turned 2 she would never interact with other children in playgroup and would often run away and hide in cupboards, still no responding to her name, food issues started from this age, only eating plain foods, such as pasta and breaded food items. Still at this point no babbling and no speech.

as it stands now she only says one words or repetitive 2/3 word phrases sometimes in context otherwise not. She has only started calling me mummy in the last six months, first time she ever said it was six months ago.
She doesn’t understand much either maybe small instructions such as let’s go or come here, otherwise she doesn’t react or respond to anything else. She is not potty trained and is still in nappies. I cannot get her to sit down and stay in one place especially at meal times, she won’t eat a full meal and will always throw her food across the floor.

she runs around in circles or up and down and will often flap her hands, she does this monotone scream thing when she’s happy, and will have extreme melt downs when very upset, she pulls over furniture, breaks items, tries to bite herself, myself and objects.

Will take her clothes off when having an extreme meltdown, she will very rarely now turn round when her name is called. Still avoids eye contact, and won’t forge friendships in mainstream nursery.

every time she comes home will play on her own, lining up toys and will not let me or her siblings play with her toys, if her younger brother touches her toys it triggers a huge meltdown.

she does give cuddles and will sometimes give a kiss, but not often and she can pretend play in her own way. There’s more behaviours im worried about as well but I just wanted to give some context on my main concerns as I’m worried sick about her, I just want to understand her more and hear about other peoples experiences as well.

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Thirtytwoinsidethesunset · 12/07/2024 22:32

@SpidersAreShitheads thank you so much your post has brought tears to me eyes, that’s so informative and very personal and yes the not knowing is daunting but I think I know deep down that she is.

@PurplePink45 I worry a lot about my youngest, my eldest child is disabled and I do worry about the possibility there might be something with my youngest but at the moment he’s flying through his milestones and he’s been okay nothings come up that I’ve seen but you never know.

thank you everybody

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hiredandsqueak · 12/07/2024 22:33

Dd was dx the week of her second birthday after being referred to paeds at 13 months. I would describe her as too passive, she rarely laughed, cried or smiled she was very self contained. If you sat her in a spot she would stay there, wouldn't explore, never demanded anything. She didn't distinguish between me or anybody else so if I went out and left her with a friend she would be perfectly happy and when I came back she never acknowledged that I was special to her. She was often mistaken for a doll as she was mostly silent and didn't move. She learned to speak through echolalia so had a jumble of accents depending on where she had picked up words and phrases. She could sing with perfect pitch before she could speak and had a huge repertoire of songs that she knew all the lyrics to. She still sings when she is happy and has a beautiful voice. She is still passive, has never misbehaved, had a tantrum, raised her voice.

Thirtytwoinsidethesunset · 12/07/2024 22:59

@hiredandsqueak my daughter was very placid as a baby, and was very comfortable with being left as well, I know what you mean about not feeling special to her. In my original post I wrote that she never turned round when I called her name, was very quiet, didn’t interact when playing with her. She would just sit in her bouncy chair and just stair at everything else and not react to the sound of my voice. Our HV at the time asked us to have her hearing tested as we were concerned she was deaf, she had 2 hearing tests and both came back with that she had very good hearing.

Your daughter sounds wonderful and lovely, especially with the singing, and it’s good to hear about her speech as well.

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Ponche · 13/07/2024 09:47

Hi @HateMyNewJobSoMuch just wondering if you’re able to share the name of the educational psychologist you used, as I’m also looking for one for my DD?

@Thirtytwoinsidethesunset a lot of what you’ve shared sounds similar to my DD, she’s nearly 4. Day to day life can be difficult plus the endless worry about the future.

We recently had a sensory assessment done by an occupational therapist and this was really useful in understanding her needs and behaviours more. If that’s an option for you.

Thirtytwoinsidethesunset · 13/07/2024 09:51

@Ponche we are still waiting to see the OT they are under the neurological pathway team, it’s such a long wait.

in regards to sensory my daughter is very liquid focused, loves water and will up tip her drink all over the floor and splash in it constantly and loves to pour water through her fingers and onto her face. And as previously mentioned she loves soft blankets and smoothing them over her face. I’ll be looking at purchasing a black out tent next week so she has a quiet dark space for when things get too much.

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