My gp doesn’t need my full ASD diagnosis report??

[Mychoicesaremine]

I recently had a diagnosis of ASD. It is affecting me hugely and I’m having a lot of issues (hence needing a formal diagnosis).

The full diagnosis report is pages and pages and I really opened up so a lot of the information in it is highly sensitive and not things I really tell anyone. I asked for a summarised version to give to my gp - this was a covering letter, and brief details and how I met the criteria for diagnosis etc but not the detail of the full report. My gp has come back to me and asked was it the full report - I said no but what they’ve got is sufficient and shows that I meet the diagnostic criteria . They are saying they won’t accept the diagnosis and add to my medical record unless I supply the full report. I don’t want to as it’s so so personal and not things that I want them to know . Can they insist or is what they’ve got enough ?

I’m not privy to the rules so take this with a grain of salt but: my GP was happy to refer me to a psychiatrist based on my saying that the diagnosis she had referred me for had come back with ADHD.

(Obviously I had to show the diagnosis to the psychiatrist!)

She later received the summary from the psychologist who diagnosed me, but has never seen the full report.

It’s just I really really completely opened up and some of it is so so sensitive and I just don’t want them knowing . The summary is comprehensive and gives details that show i met the diagnostic criteria under NICE guidelines and I think that’s all they need ? I’m going to just ignore them as I’m sure they have to still upload any documentation to my records ?

How about sending a redacted copy to the GP? Blank out the details that you don't wish to show, send it, diagnosis is added to your records.

That will basically be what I’ve given them already though ?

I honestly wish now that I hadn’t talked so much at the assessment

That’s what I mean, the summary should be enough. My doctor doesn’t need my personal childhood details on her files, she takes the word of a fellow professional.

It feels like they are just being difficult and now I wish I hadn’t talked so much but I wanted to give all the relevant information at my assessment so it was accurate. My gp can be critical of me and I don’t think this will help if they have the full report

Was it a private assessment? GP's often won't accept private diagnosis and will ask for NHS diagnosis. They may want more information to pass on for NHS assessment.

I don't have advice but thanks for mentioning this as I'm in the process of getting assessed.

Thanks to your post I will make sure I don't mention any details I wouldn't want to be passed to my GP.

Hope you manage to get your GP to agree to a shorter report from the specialists (mine are a private company - I had to agree to use them as a non-NHS organisation).

Did the GP refer you to the person who diagnosed you? If not your GP has every right to ask for the full report especially if you want the GP to prescribe drugs on his or her say so. GPs are becoming very wary of all these private assessments and ASD diagnoses.

If your GP referred you then you need to make a complaint in my view. It would be extremely odd for a GP to not take the word of a fellow colleague and one who he or she referred you to in the first place.

Considering the detail in my DCs diagnosis.. Basically every difficulty we ever had with sleep, breastfeeding, relationships, social difficulties etc, I get why you don't want to share in full. I would also send a redacted version and explain that those are sensitive details given under the confidential assessment conditions.

A GP should not be prescribing drugs for ADHD to a first-time adult patient anyway, even if it's 'legal' for them to do so. It needs a psychiatrist specialising in ADHD. It's not just a question of "here, take a Ritalin and you'll be fine."

If your GP is critical of you anyway, I would:

a. Move GPs

b. Provide new GP with summary and not even mention it’s a summary, call it ‘the report’. If asked, look blank and say that’s what you were sent.

my sons entire report came to me, the gp got the copy of the Diagnoses letter. Why don’t you want the gp to have the full report? If someone needed my sons for medical/therapeutic reasons I’d give it.

When my husband got his report it was also sent to his GP. My sons was meant to be sent, but they didn't get it so he had to provide the full report to them. I thought it was just standard procedure.

I can't imagine a GP has the time or interest to read the whole report unless there is a valid reason for them to do so.

If your GP is critical then I would change your GP if you can. I think that is the biggest problem here.