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Mum mostly likely has Parkinson disease - I'm shocked/ head spinning!

4 replies

pontipinemum · 29/05/2024 14:40

I've had a phone call this morning to say it my mother very probably has Parkinsons disease (going to call it PD). I am honestly so so shocked. I was not expecting this at all.

She was admitted to hospital yesterday from the GP surgery with super high BP, and pulse. But she hasn't been well for a while. She has had terrible shakes, her legs are sore, she is wheezy. But they've been saying she had asthma and anxiety. Going on about a year now. She isn't the best for going to the GP but had been the last few months. It was a consultant in the hospital who said PD but a scan will need to be done to confirm.

I'm about a 3 hour drive from the hospital, so I haven't gone down. But I've told her she can come stay with me for a while, while she adjusts to the medication. Apparently it could take a while for it to work. She said she'll see. She does work but surely she will need some time off. Also most of her job can be done remotely

I can't really go down right now I am 30 weeks pregnant and have a clinic tomorrow, I also have a toddler, DH is a farmer so is really busy and can't leave the toddler with him. I'm also sitting some important exams next week. Strangely enough the last time I tried to sit these exams she got sepsis, ended up in ICU for 3 weeks and I had to postpone.

My brain is flitting from, it's bad but manageable and we do not know the actual diagnosis yet so relax, take a breath.

To very selfish thoughts of, I'm only 30s she's 50s will I be her carer for life if it gets bad quickly? She doesn't own a home so unless she is in dire straights would she get a nursing home? Not that anyone would want to send a 56 yr old woman to one!

Anyone been through this? Or just need to tell me, stop letting your head go 10 steps ahead when you don't even know the full scene yet

OP posts:
IncognitoUsername · 29/05/2024 16:32

I have been there. Even though mum was older (mid 60’s) when she was diagnosed and we had suspected something was wrong it was still a shock.
We are now nearly ten years down the line. Mum struggles with back pain and has had a couple of falls but these could just be her age. She is on a new medication which has been fantastic. Her hand still shakes but she will sit on it and you would not know there was anything wrong with her. Last year we had a big family holiday to Florida and she did an average of 15k steps a day, keeping up with the grandchildren in the heat.
Right now you need to breathe and try to clear your head. Have a cuppa and try not to Google too much.

pontipinemum · 29/05/2024 16:46

IncognitoUsername · 29/05/2024 16:32

I have been there. Even though mum was older (mid 60’s) when she was diagnosed and we had suspected something was wrong it was still a shock.
We are now nearly ten years down the line. Mum struggles with back pain and has had a couple of falls but these could just be her age. She is on a new medication which has been fantastic. Her hand still shakes but she will sit on it and you would not know there was anything wrong with her. Last year we had a big family holiday to Florida and she did an average of 15k steps a day, keeping up with the grandchildren in the heat.
Right now you need to breathe and try to clear your head. Have a cuppa and try not to Google too much.

Thank you that was good to read! She phoned she sounded OK so that put me at ease. Obv I didn't go on about me, the conversation was about her. She said they did lots of tests and were very through which is good.

OP posts:
Orangesandlemons77 · 29/05/2024 17:22

Over 55s can get sheltered housing from the council, she might get priority due to her health, my dad is in one and has carers coming in. It's actually easier in a way as it is funded by the council.

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