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I need a gynae biopsy - "Take some painkillers before you come"

140 replies

CantFindTheBeat · 21/05/2024 11:44

Hi all,

Not sure if I'm wrong to be a bit annoyed about this. I'm way past menopause and recently had some bleeding. GP took it seriously, sent for a scan, internal scan done, sonographer was fab, all great in terms of speed and service.

I've just received a call from a different unit to book in for a biopsy. Great again in terms of speed and process. I'm not that worried as sonographer was very reassuring, but I'm really pleased they are being thorough.

The person on the phone who called me to book said 'please ensure you take some pain killers before you come'. I said why is that? She said because it can be a painful procedure - you will have a local anaesthetic but it will be painful - i know, the things us women have to put up with!"

She was really pleasant and sympathetic, and it is the system, not her, of course. but I'm really apprehensive about the appointment. I have a very low tolerance for pain anyway unfortunately, and think this could be hideous.

I am so pleased that I am being investigated, but am I right to think that men would not be expected to have internal cells taken for a biopsy without proper anaesthetic and it's another thing women are expected to put up with?

Or am I wrong, and this is par for the course for everyone?

(and what painkillers should I take before the appointment?)

OP posts:
Liliee · 26/05/2024 13:13

Well done for following it up so thoroughly, OP.

Stickersandlollipops · 26/05/2024 13:25

Thanks OP.

Disturbia81 · 26/05/2024 15:38

Ace update thanks OP

Interested in this thread?

Then you might like threads about these subjects:

Stickersandlollipops · 19/06/2024 22:09

Update from me, I had my hysteroscopy. I was given gas and air as I’d have to have waited for months if I wanted a GA.

The doctor was very understanding (probably helped when I promptly burst into tears when I walked into the theatre). A nurse held my hand the whole way through and I felt very listened to.

It was painful but not unbearable. I wasn’t sure what sort of pain it would be, but it was cramping pain rather than sharp pains.

Glad it’s done now. Wouldn’t be in a rush to have another one, but if I needed to then I would be less scared than I was.

JenniferBooth · 19/06/2024 22:23

@Stickersandlollipops Im glad it wasnt as bad as you thought but i still think its disgusting you would have been made to wait if you had a GA. Its like a punishment for insisting on your rights not to feel pain during a procedure

paperose · 24/06/2024 06:35

Interesting 'you'll be fine' comment - having spoken to a number of women (10) about this not one said it was fine, all were horrified at the level of pain they were expected to endure.

Movinghouseatlast · 24/06/2024 11:42

I also had mine under GA a couple of weeks ago. When I went for the consultation the consultant told me that she refuses to do them without GA as the procedure is brutal. She said we are expected to cope because childbirth hurts.

I've read that around a third of women find them unbearable. Those who haven't had children, if you have had very painful periods, if you find smears difficult- these are the indications that it will probably hurt a lot.

Disturbia81 · 24/06/2024 12:29

Movinghouseatlast · 24/06/2024 11:42

I also had mine under GA a couple of weeks ago. When I went for the consultation the consultant told me that she refuses to do them without GA as the procedure is brutal. She said we are expected to cope because childbirth hurts.

I've read that around a third of women find them unbearable. Those who haven't had children, if you have had very painful periods, if you find smears difficult- these are the indications that it will probably hurt a lot.

This says it all.. a professional won't do them without GA, good on her.

paperose · 25/06/2024 02:45

further to my initial letter, I had the procedure this morning, and I can honestly say it was pain free. The consultant (male) said it would be fine and he was correct... he used a cream to ensure the area to be injected was numb, the three injections of anaesthetic were not at all painful and the procedure was completed in no time.... compared to the biopsy performed by a 'specialist nurse' which I would describe as traumatically painful and the second visit which involved yet another 'specialist nurse' who performed a hysteroscopy without offering me any pain relief at all. I actually felt pretty traumatised and I have given birth to 5 babies with no pain relief by choice.. I am still of the opinion that women are expected to endure pain, just shut up and take it. Anyway, the over the counter pain killers the NHS claims are sufficient for the procedure are just not and a waste of time - I would like whoever decided that they were, to go through the procedure in order to see just how wrong they are. one way or the other I am fine, polyps removed and once I had returned home, slept for a couple of hours I was pretty much back to normal.

Concretejungle1 · 25/06/2024 02:51

I had a hysterescopy and ended up having a few biopsies taken.
it was painful in parts, but i’m glad it was over and done with.
i went straight home after as i did feel a bit light headed, and was in pain for the rest of the day.

Belis · 25/06/2024 04:49

Thanks for taking it further OP and fighting on behalf of all women.

Toolateforteeth · 25/06/2024 05:02

millymoo1202 · 21/05/2024 21:46

A GA for something that takes probs 30 seconds, no wonder the NHS has no money. Not sure what a uterine biopsy is but womb one was insertion of a small tube through a speculum like a smear and could feel a nip inside and it was over. No worse than a smear or coil in and out. Of course other peoples experiences might be different but come on a GA, surely getting the canula in would be worse

I think you are unfairly talking about a different procedure. I've had two womb biopsies which were doable, as it's only a thin tube and they take a random sample. Longer than 30s in my case, but easily doable.
For an actual hysteroscopy a camera is passed through the cervix and a precise biopsy is taken, sometimes polyps are removed, the opening of the cervix can send some women into shock. My gynae will only do them under GA. I've also had 2 of those.

AngelusBell · 22/07/2024 17:55

CantFindTheBeat · 26/05/2024 12:03

Thank you for everyone’s posts on this thread. Again, I’m so sorry for all who’ve had awful experiences when going in for these procedures and not being given the right options for anaesthesia, listened to or even forced to continue against their will. It’s truly frightening and I’m grateful to everyone who shared their story.

I do have to say that in my case, I can’t fault the response regarding the NHS referrals and speed of appointments and the sense of urgency on investigating my post-menopausal bleeding – that has been phenomenal. My issues are with the minimising of the procedure and not providing information on choices I have.

So to update on this morning’s appointment – it’s massively long, but I wanted to get everything in.

In good news for me, the consultant had the scan results, explained what was found, said that all was normal, post-menopausal bleeding is reasonably common within 6-8 months of going on HRT, and no further investigations needed at this time. A big relief.

I thanked her and said that I was very pleased, and that I had hoped that would be the case after speaking to the sonographer myself.

I then asked if I HAD have needed a hysteroscopy, would I have been able to have a general anaesthetic? She said absolutely, they always talk through all anaesthesia options, offer GA for people who want it, and they even sometimes do smears under GA.

So I then said I wanted to share with her my experience of the process and get her opinion on it.

I described how I was called on Tuesday and asked to come in for an appointment, told to take painkillers ahead of the appointment, that consultant would put a camera into my uterus and take a sample of womb lining., and when I questioned no anaesthetic, the response was, ‘I know, the things we women have to put up with, eh!,

I described how when I phoned the next day for clarity on the procedure, I was told it was a simple process, only takes a few minutes, nothing to worry about, yet when I asked about GA I was told that was absolutely fine and definitely an option.

I told her how the information emailed said no GA was needed, although ‘2 out of 10 ladies might need a local anaesthetic’.

I said that I had canvassed women in my network, who had reported having a hysteroscopy, that some had little or no discomfort, whereas others had reported a scale of painful, to excruciating and unbearable.

She said yes, she would agree with that, and that's when she said that's why they offer GAs, and that's the reason they can also do GAs for smears as they can be so painful for some.

I said that had I listened to that first phone call, as I’m sure most people would, I’d have come in today having taken pain killers, expecting to have an invasive procedure with no anaesthesia, which she agreed would have been wrong.

Long story short – she said she was sorry that telephone staff had not been clear on this from the outset, their procedures needed looking at, she would raise it at a consultants meeting that is happening next week, and suggest a review.

She was great. I was listened to, and I feel some action may be taken.

I’m going to email PALS with this too, to 'get it on record' , along with copies of the paperwork so show that what the consultant thinks is happening, isn't, to formally strengthen the case.

So a good outcome for me, I feel glad I went in armed with knowledge acquired via links on this thread that I could deliver in an informed way.

I was listened to, and maybe my challenge will possibly make things a little bit easier for other women at that clinic in future.

Good luck to everyone going through similar.

Thank goodness you asked on here first - I still have PTSD from an outpatient hysteroscopy 14 years ago and am a member of Hysteroscopy Action.

Watermelonistheanswertoallthings · 23/07/2024 01:35

I had a hyesterscopy and found it unbelievably painful. I had gone to the appointment by bus intending to do some shopping in the local town after. How nieve!

I ended up having to call my Mum to pick me up and had to find somewhere to sit and wait. The only area with seats and phone reception was A&E.

I sat there and 2 nurses came out and tried to take me into triage as I looked so ill. I had to explain I was OK i'd just been biopsied upstairs with no painkillers!

I told my friend who is a Dr how horrific it was, and continued to be for about a week and she completely dismissed it. Then 2 years later she had it done and fainted on the table....she then rang full of apologies.

paperose · 23/07/2024 21:25

I found that the 'specialist nurses' were both dismissive of any painkillers other than a couple of painkillers taken 2 hours before the appointment. However both consultants I spoke to always used local or general aesthetics .... the specialist nurses treated me like a piece of meat and a naughty girl for complaining and the consultants were perfect!!

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