people with MS, please may I ask your advice

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🙏 thank you......I was diagnosed with CFS in 2017, so I have had symptoms for 9 years ishy which have been getting steadily worse.

last week I had facet joint rhyzolysis which included 6 injections of local anaesthetic and steroids into my back before the procedure. since then all of my CFS have just about vanished.....fatigue, brain fog, headache, neck/shoulder/upper back pain, hip, leg, knee, ankle pain, hot/tight/numb feet, pins and needles in arms and hands, difficulty walking

so I did some Google research, which is obviously as good as a medical degree and I am now wondering if in fact I might have some auto immune condition or something that responds to steroids.....MS features heavily.

does this seem likely?

I only know one person who has MS and they were diagnosed by a brain scan. First symptom was a sight problem and it was the optometrist who said they should see a doctor asap. It all moved very quickly from there and current treatment is proving very effective, still driving, working f/t in a demanding job, has been promoted in the six years since diagnosis.

I’ve had CFS for years and the brain fog has really worsened recently. Sleep is poor, hence why I’m awake at almost 1.30. And very similar pain areas to yours so I’ll Google your treatment.

the treatment is for back pain, not related to CFS. I had a spinal fusion in 2019 and the facet joint below, have since deteriorated. the rhyzolysis is to kill the nerves using radio waves. but to do that they inject LA and steroids first. I just can't believe how good I feel

You’d definitely need an MRI to highlight any lesions. There’s a load of other tests need doing too. It’s worth getting the ball rolling as the earlier you get intervention the less lesions and damage is done. My neurologist always tells me he can only do something about the lesions that haven’t happened yet.

and yeah, the only person I know with MS....the first symptom was sight loss also. I don't have sight loss

I’ve had a look at a couple of online articles and now see it’s to reduce spinal pain.
Enjoy how well you’re feeling and long may it last.

do my symptoms ring true of MS in your experience? and the response to steroids?

I forgot, I also have problems with urgent incontinence and wet myself more often than I wish I did. the doctor told me it's because I'm getting older

They definitely sound like some of my symptoms. Beyond that MS is very variable.

of these of yours

fatigue, brain fog, headache, neck/shoulder/upper back pain, hip, leg, knee, ankle pain, hot/tight/numb feet, pins and needles in arms and hands, difficulty walking

i have brain fog, fatigue, pins and needles, pain in feet. Additionally I have difficulty swallowing, some bladder dysfunction, trigeminal pain and MS hug.

I am extremely high functioning with 0 as my disability score. I have a friend who’s disease onset was similar to mine but followed a very different and severe progression with different symptoms.

I have never had steroids as part of my treatment so can’t comment on that

This is nonsense, no matter any other diagnosis, they can prescribe for urinary urgency and it’s very effective and easy (1 pill a day). Expensive though -I’m in Aus and it’s not covered by our PBS prescription scheme.

with regards to this particular symptom ask to be seen by a specialist and see if you are able to receive treatment

bumping for morning crowd!