Those of you with Long Covid, what's life like?

[CFSKate]

How have you been treated by family, friends, workplace, medical professionals?

I've had ME/CFS for decades and I'm curious to know what things have been like for you.

Interesting. I’m in the same boat as you op.
The two people that I know with long covid have lots of sympathy and understanding, because it’s as a result of catching nasty covid. I seem to have no sympathy & get lots of eye rolls and no understanding of my limitations whatsoever.

I’ve had no support from the NHS at all, actually that’s a lie I had one appt then the service seemed to disappear so none of the follow up happened.

Ive changed my lifestyle and my mindset and basically just got on with life. I gave up hobbies, changed job, car, bought various gadgets to help round the house.

I do what I can when I can and have learned to enjoy my life how it is because the only other choice is to get dragged down by it and I don’t want that to happen.

@ThePerfectDog I think that's a good attitude for you to have, but how have others treated you?

@MEFibroHell
This is what I was worried about, and I've just read that it is happening

‘It’s destroyed us’: Parents of children with long Covid accused of making it up (inews.co.uk)