Teenager & Chronic Fatigue Syndrome

[Luckingfovely]

Dd 16 has just being diagnosed with this after nine months of being ill and exhausted constantly.

Does anyone have any experience of this / any advice on how to help recover? Many thanks.

My ds was the youngest in the north east for a diagnosis.. He was 3...
Consultant told us to raise him as the rest of our dc as he had absolutely no idea of what else to do! So we did. At 20 he knows his limitations... School were hard to convince he wasn't just lazy... Ask GP it be added to his notes. Ds's were on hospital record only and we had to get them sent over for school 'proof'..

I do. Unfortunately it is about time. Pacing. Eating healthily. Trying to keep positive when you're missing out.

As people have said above. A friend had it and used to say to us 'sorry I'm just not up to it today' - she used to need to just sleep instead. It was all fine, we worked with it and just carried on the next day.

I have a condition that presents like ME and sometimes just have to go and sleep and that's it - most people are great about it. The odd few that aren't would definitely have been more helpful if I'd been able to say 'here is my diagnosis' so that bit of paper will hopefully help your Dd of that situation arises. I am old and the unhelpful people were some time ago - I think people are better at navigating other peoples illness these days

But not everyone judging on experiences above. Definitely add to GP notes

Hi, my dd was diagnosed at 13, she is 19 now and still has it, she uses pacing to work out what she can do and what she can’t do, if she doesn’t have the energy she has to say no to things, it has been difficult but she is much more in tune with her body now so knows when to stop, she’s starting university in September so we’ll see how that goes. I would say it is very important not to push to do things, dd has a few times and she has crashed which then means she ends up in bed unable to do anything.