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Does anyone have a family member with OCD? What's it like?

22 replies

33dollars · 18/04/2024 07:56

Quick backstory. We are 4 siblings. The eldest, my sis, still lives with my parents and is single, no kids. The rest of us have moved out but live local.

I was the last one to move out so have lived with eldest dsis the longest. Her personality, I would describe as difficult and high maintenance. She usually says things that are insulting but thinks nothing of it if you pull her up on it as she's just saying how it is. eg she will comment if she thinks you've put on weight. So she'd say you look fat in this. Have you put on weight. She'll mention it again if she sees you. I am shy and quiet and keep myself to myself. She repeatedly used to tell me in my early 20s that I'd never find a partner. Who would be with you when there's loads of other people who have more to offer etc.

Anyway when she was in her mid 20s she developed OCD. She wouldn't go to the GP for a good few years as she didn't want this on her notes and hated the stigma. It was extremely difficult living with her. She would pick on me and my mum, constantly nit picking, watching what we'd do. If she wasn't happy with something eg we hadn't washed our hands after we'd thrown something in the kitchen bin then she'd make us do this and watch if done properly. She'd make us clean things if she felt we hadn't done right. She'd make us change our clothes if she felt we'd touch something 'dirty". There's all sorts but these are some examples. She would snap and scream at us if we went out of line and didn't do things to her standards or if we refused to do her rituals.

As you can imagine, we had to live on eggshells and constantly be vigilant and aware of what we could say, what we could do. It was really stressful. My DM used to wait till she left the house before doing certain jobs and she would 'start" on her if she was there.

It wasn't until I left and after a few years later, that I realised how bad things were living there when one day I noticed how relaxed and calm I was in my own home. I never felt like that and neither did my DM.

Over the years, our DM has stopped 'fighting' it and now her life revolves within an inch of dsis She does this to keep the peace and have an easier life. Over the years DMS health has deteriorated and it's hard for her to cope so this is the only way. Her life has become smaller and smaller too as dsis controls where, when she goes out. She doesn't like her visiting certain people, she didn't want her joining a hobby evening class etc. She controls DM and DM can't see it.

Her other behaviour has got worse over time but not sure it's linked to OCD. Her rudeness, abruptness and confrontations have increased. She thinks she has it worse than everyone else and if we have a problem she just throws it in our face that we have kids and a partner so 'at least it's not as mad as me'. DM says she's become like this person because of her mental health but I'm not so sure.

Dsis has had received several bouts of CBT therapy from the NHS but not sure how effective it has been as after awhile it can flare up again esp when triggered by a stressful event etc. Her way of keeping it in control, is by controlling her home and DM. She doesn't clean, cook, or do the shopping. She doesn't even clear her plate off the kitchen table. DM says because she will wash her hands too much so it's best that she clears up after her.

Yesterday I went to visit DM who had a really bad flu. She'd asked if I could bring some home made soup and I found her in the kitchen cooking. I asked her what she was doing as I had the soup with me. She told me that she was cooking for dsis as there was no food in the house and she wouldn't want the soup I'd made.

It made me really sad and I just felt so sad when I got home and angry too at dsis. I know she has a mental health problem but surely this doesn't mean you get to control others and where's her empathy? She was so ill yesterday, and poor DM in the kitchen cooking for her getting it ready for when she comes home from work.

I don't really know what the point of this post is but is there anyone else with family members with OCD. Is this what it's like?

OP posts:
Roughlythisbig · 18/04/2024 08:29

Sounds difficult. Also sounds like she has undiagnosed autism going by her complete lack of social boundaries, and blunt observations of life.

BeretRaspberry · 18/04/2024 08:44

As someone with OCD and with a child with OCD, one of the worst things you can do is ‘enable’ the rituals and go along with the behaviours as this just fuels the cycle and strengthens the OCD beliefs. Obviously when you’re in the middle of it it’s not that simple of course and I totally understand you wanting to do what feels helpful.

What you say about the blunt comments and insults - that sort of thing doesn’t scream OCD to me though. When mine was bad I could probably get quite snappy but more reactively, rather than saying unsolicited horrible things about someone. That sounds like something else to me.

RobinGoch · 18/04/2024 08:54

My DD is autistic and has had bouts of OCD where life in our house has been very difficult and similar to what you describe. She also has struggled with anxiety and depression. She takes Sertraline which has radically controlled the OCD, it's been life changing for all of us. She's also had loads of therapy and is able to challenge her OCD thoughts.
I know it's hard but the way forward for your sister is medical support. There is no shame..... it's just an illness..... it would be worth investigating how autism presents in women also....

wagnbobble · 18/04/2024 08:57

Written this out and really hesitated because I would hate to have his level of OCD and what I’m writing sounds uncaring but sadly yes I really understand. My brother has terrorised ( sorry I know this is a very emotive word ) me and my family since childhood and I have horrible anxiety and self worth issues Situation sounds like yours, when I moved out he took over my parents house with his requirements . After my DF died he literally controlled mum’s life and we weren’t allowed in the house. Eventually when he had to go into hospital, Mum cracked and said she couldn’t cope and social services became involved , house sold and we bought him and mum flats with the proceeds . He would have continued to control her but she developed dementia. Sad tale and mum so angry with me throughout this period for not supporting him ! His ocd is much better as he is on a cocktail of medication , pregablin apparently really helped his intrusive thoughts . I now believe he has ASD which explains a lot of his behaviours

thehappytable · 18/04/2024 10:39

OCD/Autism, whatever... your sister is a cunt and is abusing your mother

Call social services, your mum is the vulnerable one here

Do not indulge this madness any longer

BMW6 · 18/04/2024 10:58

So your sister goes out to work? How does she manage that with such severe OCD?

I suspect she has more control of it than she will admit to as she gets to do so little in the house and is totally controlling your Mum.

33dollars · 18/04/2024 21:30

Roughlythisbig · 18/04/2024 08:29

Sounds difficult. Also sounds like she has undiagnosed autism going by her complete lack of social boundaries, and blunt observations of life.

I don't think she has autism as she isn't rude with others like friends or colleagues

OP posts:
33dollars · 18/04/2024 21:42

wagnbobble · 18/04/2024 08:57

Written this out and really hesitated because I would hate to have his level of OCD and what I’m writing sounds uncaring but sadly yes I really understand. My brother has terrorised ( sorry I know this is a very emotive word ) me and my family since childhood and I have horrible anxiety and self worth issues Situation sounds like yours, when I moved out he took over my parents house with his requirements . After my DF died he literally controlled mum’s life and we weren’t allowed in the house. Eventually when he had to go into hospital, Mum cracked and said she couldn’t cope and social services became involved , house sold and we bought him and mum flats with the proceeds . He would have continued to control her but she developed dementia. Sad tale and mum so angry with me throughout this period for not supporting him ! His ocd is much better as he is on a cocktail of medication , pregablin apparently really helped his intrusive thoughts . I now believe he has ASD which explains a lot of his behaviours

I'm so sorry that you've been through the same. It sounds so similar to my story. And I know you've used the word terrorise but i describe dsis as abusive. It' affects the whole household. It's horrendous.

. When I look back i can't believe how much she controlled me too. I felt stifled but didn't know any different till I moved out. It took me a long time to just relax even in my own home. I can't imagine what it's done to DM.

Our DF passed away a few years back and since then dsis, just like your brother has now taken over the house. Our DF was more of a stronger personality and he didn't take her crap as much and she 'behaved" in front of him and she'd wait till he'd left the house before lashing out at DM.

How is he coping living on his own? I have always thought that it would do her good to live alone, get some independence and no need to control anyone.

OP posts:
33dollars · 18/04/2024 21:44

BMW6 · 18/04/2024 10:58

So your sister goes out to work? How does she manage that with such severe OCD?

I suspect she has more control of it than she will admit to as she gets to do so little in the house and is totally controlling your Mum.

She is fine with others. She isn't rude or wouldn't say anything if anyone did anything triggering. People think she is a really nice person. Noone would suspect she could be anything like this.

OP posts:
ChampagneNightmares · 18/04/2024 21:48

My mum is like your DSIS and my dad is like your DM. I am just glad to be out of the house. Keep my time spent there to a minimum. My own DSIS is beginning to display similar tendencies. But she lives alone.

My kids are ND. Strongly suspect my whole family is TBH.

PinkHouseYellowHouse · 18/04/2024 21:57

Why have you put up with this for so long? That is an actual question, not a dig. It would be good to understand the dynamics behind why when she first started with this you all went along with it she wasn't just told no.

ilovebagpuss · 18/04/2024 22:05

Can you ask your DM if she wants out of the situation as nothing will change if she won't ask for change.
If you and your family could then intervene and advise DS she needs to move out that DM needs a restful home.
She works so she can pay rent somewhere. I'm afraid it would be messy but it's that or your DM stays a servant in her own home.

MintyFurball · 18/04/2024 22:06

I had bouts of OCD as a teenager and just beyond but it was nothing like this. It was entirely focused on my own behaviour and was all about intrusive thoughts and having to do. YXZ to stop the horrible things happening. I don’t know how typical this is though. Eventually I managed to become calmer recognising it as me being very anxious and actually the intrusive thoughts didn’t mean I was terrible to think such things but actually my anxious brain trying to get my attention and because I was a nice person these were the things I’d find hardest to ignore.

ilovebagpuss · 18/04/2024 22:07

Also my DD has well controlled OCD and apart from being upset or stressed herself she has not imposed anything on others or been nasty or unkind that is something else entirely.

Tigersonvaseline · 18/04/2024 22:09

Well my dh was raised by one and it's made his life a misery it's infiltrated every single aspect of his life.
It's dominated her relationships and it's been absolutely awful to live with for him and for us all.
Like any other extreme behaviors caused by alcohol, drugs... Mental illness... It's sad for all involved.

Itsrainingoverhere · 18/04/2024 22:15

Ocd is like a bully that makes you so anxious to do things a certain way and ensure others do things a certain way…. It’s like living with an abuser in your head… one that also threatens that if you/
others don’t do x y z then harm will
come.
your DS illness is telling her to do these things, not to harm your DM … but likely to keep her safe .
It’s very sad situation and needs professional help.
it’s exhausting and I don’t doubt would lead to your DS feeling so shitty about herself and snappy/ mean to others…
could you accept being bullied 24/7 just to keep people safe ?

wagnbobble · 18/04/2024 22:21

Oh god it’s so familiar as my DF was better at standing up to him , but after his decline and death, my brother ( can’t write DB!)just ramped it up . He is still difficult (had a stroke in his 40s and has become quite disabled which has been hard for him ) BUT living away from mum was much better for him . And your DSis capable of this but she won’t want it and your DM too enabling , brow beaten to push for this .We ( my other DB) feel his reign of terror over my mother really hastened her decline into dementia

Girliefriendlikespuppies · 18/04/2024 22:37

OCD thrives when people around it enable it which is exactly what your mum has done.

Your sister doesn't sound like a very good person but ocd can strip away people's ability to think rationally.

The more the ocd is pandered to the worse it gets as the demands and rituals get ever more complex and deranged ime. Your mum will have to learn to stand up to your sister 🤷‍♀️

33dollars · 18/04/2024 23:44

PinkHouseYellowHouse · 18/04/2024 21:57

Why have you put up with this for so long? That is an actual question, not a dig. It would be good to understand the dynamics behind why when she first started with this you all went along with it she wasn't just told no.

Oh god, we did say no. Looking back my mum would stand up to her and sis would scream and yell. Like actually scream at her (or me!) she would be so full of rage and anger. I'm a softy and "weak" and so is my mum so I guess we did whatever she needed to calm her down.

Whenever we tried telling her why are you taking it out on us, we don't want to do the rituals she would always say well what about me. Noone knows what it's like having this illness. She just shuts down any conversation about the impact it has on others. It's always I live with this not you. It's worse for me. She just doesn't see it at all.

OP posts:
33dollars · 18/04/2024 23:49

Itsrainingoverhere · 18/04/2024 22:15

Ocd is like a bully that makes you so anxious to do things a certain way and ensure others do things a certain way…. It’s like living with an abuser in your head… one that also threatens that if you/
others don’t do x y z then harm will
come.
your DS illness is telling her to do these things, not to harm your DM … but likely to keep her safe .
It’s very sad situation and needs professional help.
it’s exhausting and I don’t doubt would lead to your DS feeling so shitty about herself and snappy/ mean to others…
could you accept being bullied 24/7 just to keep people safe ?

I am not so sure she is bothered about other people, trying to keep them out of harms way. I have never heard her say anything about others when it's a about OCD. It's always for herself, to keep herself feeling okay. I am surprised that it is like this for others.

OP posts:
Itsrainingoverhere · 19/04/2024 08:57

33dollars · 18/04/2024 23:49

I am not so sure she is bothered about other people, trying to keep them out of harms way. I have never heard her say anything about others when it's a about OCD. It's always for herself, to keep herself feeling okay. I am surprised that it is like this for others.

It’s one of the main features…. Doing things to prevent your idea of the worst thing happening.
a lot of people ocd hold a lot of ‘ shame’ as often they will hold thought such as ‘ am I a peadophile ?’ ‘ what if I stab that person’ ect it is a very misunderstood condition

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