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Anyone's child autistic that can read please

37 replies

34weekmess · 19/03/2024 22:42

Ds is 9, diagnosed asd age 4, he's brilliant, intelligent, has an old soul, a very dry sense of humour and is kind and caring. But my god he does not stop talking about his interests (which I know normal with asd) but he seems to be getting worse and worse. He paces around the room while telling us another one of his game ideas (these games he never ends up making) he will have several different game ideas in the space of a couple of hours. He does not notice that we're not listening anymore, trying to get on doing stuff etc, I'm just worried because he seems so erratic while he's talking, the pacing turns into basically leaping around whilst going on and on without pausing for breath, he gets stressed out if you ask him to stop talking about it now and holds his head and say he has to get it out.
Any ideas how we can help him ?
Honestly it's like he needs medicating and I know that sounds harsh but he just cannot stop.

OP posts:
34werkmess · 20/03/2024 01:36

Oh the amount of times I have explained (in the nicest way I can) that we have to listen to other people i can't even count ! He doesn't have any friends because he is so fixed on his games, what he wants to play and talk about etc. it breaks my heart. All he wants is some friends.

He also knows everything there is to know about the titanic, the queen Mary, and all the other ships part of the white star company !! And space, and weather systems 😆 I love hearing about these things but the game idea ones really do hurt my head.

I guess I wanted to know that this is normal to the extent he does it. It's how he gets so worked up when he's pacing around, sometimes it's like he's on something, he's literally high as a kite

SparkyBlue · 20/03/2024 07:21

No advice OP we are currently go through a War of the Worlds phase with 8 year old DS. I have managed to just tune out but I drew the line at the audiobook in the car. God only knows what the next obsession will be

WhoaJayShettybambalam · 20/03/2024 07:26

My autistic child is now an adult living away from home and although this is exhausting it’s one of the bits that I miss most when he’s not around. Sometimes I call just to hear about the latest developments of his character.

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Beamur · 20/03/2024 07:31

I used to set a timer limit. DD had some interests that she would talk about for hours. Some were more interesting than others! I found the Minecraft fixation particularly hard going.
So I said quite clearly that I wanted to listen well but I couldn't do that for as long as she wanted as I had other things to do and Minecraft wasn't quite as fascinating for me but I was really interested in what she was doing. I would then listen and chat for half an hour and then it was time up. I'd still chat about other things (but no more Minecraft).
As she's got older I find we can talk about more interesting things and have things we like in common (books, podcasts, etc) so do yak on for ages!
We've talked about my limiting tactics from when she was younger and she says she found it very frustrating when I called time, but I think it did help her to learn a bit of restraint and that she couldn't just monologue at people and expect them to like it.

MogHog · 20/03/2024 07:37

This could of been my DS but he's 17 now and calmed down so much with it. Don't get me wrong he still gets fixated on stuff and bores everyone to tears with it all but he doesn't seem as intense now as he was when he was younger..eirher that or it's because he is at college and got himself a part time job so I don't see him as much

rio2 · 20/03/2024 07:37

My child is the same it helps if i set boundaries such as i only have 5 mins to listrn to you and put a timer on

BakedTattie · 20/03/2024 07:44

My son has started recording videos on his iPad of him talking about whatever he wants to. this works well for us.

I get you though, the incessant talking is so draining. My son repeats certain Words, phrases or sounds over and over for hours. We cope with it for a while but then i challenge anyone to be able to cope with it as long as he wants as he keeps going. It’s so so draining.

my son can’t write but the videos work well for us just now.

itsgettingweird · 20/03/2024 16:21

My ds was the same at that age.

He grew out of it.

Car journeys are still a constant thrill of hearing all his knowledge and he's an athlete so I can have 4 hours of it at a time Grin (we can travel a lot for his sport!)

The one thing that worked for ds is he loves music. Any music. So playing music and singing to it seems to fill that need.
And of course - the ability to memorise means he knows each song by heart and so can sing along for hours!

(Do get stuck on repeated playlists though 🤣🤷‍♀️)

Lovemusic33 · 20/03/2024 16:28

My dd was just like this and yes it did get annoying at times but I would never discourage her from her amazing ideas even though I knew they would never be taken any further. With my daughter it was story ideas. She’s now 20 and in her 2nd year at uni studying English lit and creative writing, she still hasn’t written a book despite her 500 ideas from the age of 5-20 year of age but maybe one day she will and it will be amazing.

Frozenasarock · 20/03/2024 16:40

We have this (DS is nine with ASD). For him it’s related to his overall emotional state - if he’s calm and happy and on an even keel he’s fairly restrained in his monologues. But if he’s stressed or anxious or has something on his mind he starts pacing and spinning and talking at me for hours - it’s a self soothing thing, a comfort thing and a way of getting things straight in his head. It can be used to my advantage- if we’re somewhere he finds stressful like a doctor’s waiting room or an airport gate and I can see him getting wound up I just get him started on one of his pet topics and it often staves off the meltdown.

How is your son doing generally? Does he have other stims, other activities, are there stresses you can remove from his life? Can you plug him in with any other people with his interest - my son has a couple of friends who have the same special subjects (no idea if they’re autistic or not) and they can talk between themselves for hours about things I’d find painfully boring. Would he be excited to “make videos for other people who like X” - my son has hundreds of videos and doesn’t seem remotely bothered no one watches them!

Kathy34 · 20/03/2024 16:47

Not atustic but I was very much this kid ( adhd) I had a great active imagination from kindergarten on. My problem? Single mom who was in college.
My mom bought a tape recorder and tapes, taught me how to use it and let me have at it. Worked great. With a computer you could even teach him to categorize his ideas and sort them so he can come back to them if he likes. I love how your trying to help him live his best life!

Blueuggboots · 20/03/2024 18:26

My son is autistic and does the same. We've told him to stop regularly! We've told him it's not socially acceptable to monologue for hours. We have told him that we will listen for 5 minutes and he needs to minimise his detail to us. When the 5 minutes is up, he has to stop.

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