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Im so upset babys teeth crumbling. No enamel

36 replies

Lizzy2022 · 13/03/2024 19:00

Baby was born full term thankfully no complications. At 3-4 month some of his topfront baby teeth started coming through. Almost instantly I knew there was a problem with one but assumed it was just me being over protective and worrying. I looked under a uv light and noticed 1 tooth was glowing. By 6 month ( 2 months of front 4 teeth coming fully through) I booked an appointment for the dentis. His tooth left next to front 2 had chipped and was discolouring a little. I was told it wasn't an emergency appointment as it often happens..... make sure to brush

On wait for dentist it chipped again at some point chewing teething toys, tge again day or so before appointment and levelled off. Now 9 months old and tooth mostly through my dentist ( fairly young and new ) accused me of not brushing babys teeth, bad diet and sugar drinks, sweets and to do better. Baby was still mainly breastfed and only just trying solids and hadn't had sweets etc. I had also been attempting to brush multiple times a day as best you can with a unhappy screaming flailing 6-9 month old. Dentist prescribed a adult high flouride toothpaste which made my baby cry. it was so strong in flavour and would refuse to put a brush in his mouth.
It took month or 2 using a childs toothpaste, playing with several brushes through day to gaining some trust and a bit wrestling and both us crying at times to get him to let me brush properly. He did refer me to local specialist ( only after demanding) as babies/ children arnt his thing. Clearly as he asked me his school routine and aged my 9 month old as 4. he didnt even really look in his mouth.
I waited over 6 months for local specialist. She was less insulting but had never see this before other than txt books and to know properly reffered to see another specialist. Said it could of been illness likely antibiotics I was given during pregnancy ( had a short course for mild water infection at random tests). By this point his front 6 teeth top and bottom were all through . 2 next to the front 2 looked patchy and is a tiny pin prick dinted discoloured line on one front tooth and pin prick on other front one ( back side of tooth is fine). She advised the prescribed toothpaste to be binned immediately and would be dangerous to his adult teeth along with too strong flavour. Only to use a child's higher %fluoride ( as I had been using since day 1.)
Now he is just few days short of being 2. finally seen the specialist. Again they started off accusing me of causing this by bad oral hygiene, too many sugary snacks. Got his name and Gender wrong several times so hadnt read notes. Wouldn't listen at all that it started instantly and didnt rot this way ( all thats happened is they have discolored more. So then its my fault for brestfeeding on a night and I should of given him water after ( even as new baby). When I said I'd been told genetics or antibiotics...she said yes could be if you had them during pregnancy. I said I did so she dropped it....but I was already upset. His other teeth are beautiful and clean.
She wants to pull out 5 of his teeth. All 4 front ones and one at back currently non are causing any issues and back one had hardly visible dot of missing enamel that she looked 3 times to see or not. Or while he is under pull4 then her words put a "uglyblack cap" over his whole back tooth so he will be able to chew. I agree 2 are a big problem visually now and will need to come out soon. Im just devastated they messed me around so long this is now the "only option" for any of his teeth. Especially wanting to pull 3 as just incase vrs coat them, and try look after them. Give him time to learn to speak, eat etc.

My brother lost some of his teeth from being sick alot as a early baby. The amount of teasing he got was horrific for being "gummy" and talking differently. My older 2 girls get left out and worse for being duel race. This is just extra ammo to make this little ones life so much harder at school. NHS does lot of good but I'm so upset with extra long waits has messing this up more than it need be. Then taking only cheaper options to just yank out every tooth with possibility of an issue. Then add the insensitive questions and accusations like im bad mother and i dont know if im more upset for him or angry. Just had enough for today....and in general. All my partners family and much of this community assume I'm a junkie or bad mother just because I'm white and not of the same religion. Being told by mums at school oh we didn't think white people were clean or cooked and all other BS iv heard. This is going to add fuel to the insults and accusations.
Anyone have any experience or advice with no enamel on baby teeth Don't want to just agree pull 5. 3 are so minor affected and could be filled, coated, varnished capped etc and last few years to give him time to at least understand whats happening to him and why he is in pain and all his teeth have been ripped out .....unless they mess us around another 12month+ waiting lists and it messes up extra again waiting for them.

OP posts:
PickledMumion · 14/03/2024 06:37

It's really not so uncommon. One of my kids has no enamel on two random back teeth. He's 7 now and it's not caused him any problems so far - we've just been extra careful to limit sweets to just once a week, try to offer sugary foods as part of a meal, not as a snack, and we don't rinse after brushing.

One of my other kids has 2 fillings, despite having perfectly "normal" teeth, and the same diet and brushing routine as his brother.

18daychallenge · 14/03/2024 06:39

Hi. I’m a specialist paediatric dentist. I work in a hospital so we see this a lot.

I havent RTFT but could you share some pictures? You can DM privately if you don’t feel comfortable sharing in thread.

How old is your child now? Can you summarise their diet and oral hygiene (and if anything has changed or got worse). X

Interested in this thread?

Then you might like threads about these subjects:

tessellated2 · 14/03/2024 06:40

My 4th daughter had a problem with the enamel on her baby teeth.

She was breastfed and the dentist made me cry by screaming at me what a terrible mother I was.

We took her to a pediatric dentist (who was a lot kinder) and spent thousands of dollars (Australian) having 2 teeth pulled and a lot of important ones capped through a private hospital when she was 2, under GA.

Broke my heart, I felt I had failed her.

She was the only one of my children to have this issue, and her adult teeth came through with proper enamel.

❤️

shakeitoffsis · 14/03/2024 06:42

Without seeing photos it's hard to say but this sounds like ameleogenisis imperfecta. Google it. I'm a restorative dental nurse in a hospital setting.

Cumbercat · 14/03/2024 07:10

Two of my children had this, one worse than the other. He had metal caps put on 4 back teeth under GA aged about 3 and they treated lots of other teeth at the same time to protect them. Many of his teeth are quite yellow. He just says on repeat “ I was born with no enamel on my teeth” if anyone says anything and doesn’t seem too bothered. But all adult teeth are coming through fine and it’s a case of nursing them through the years until that point. Our dentist has been reluctant to remove teeth because then you can lose the gap for the adult tooth to come through so has only done this as a last resort -for the less affected child close to losing the tooth anyway. He now has beautiful adult teeth. I would be very wary of accepting the advice to remove slightly discoloured teeth - crumbling teeth causing pain obviously different. There is a lot they can do to help you keep them as long as possible.
It is not your fault. I was told they just don’t really know why it happens. Is there any way you could afford to see someone privately? (I realise this may be impossible but do it if there’s any way). You cannot change the situation but hold your head high that you know you are doing the best for your child.

Cumbercat · 14/03/2024 07:17

wrote my post before shakeitoffsis above who will obviously know more than me!

Anameisaname · 14/03/2024 07:23

Oh @Lizzy2022 I'm so sorry to hear that. Hope you see the post above by 18daychallenge.

What I would say is the advice re bf makes no sense at all. Formula is just as sugary as breast milk. So that is just bs.

You are doing a great job advocating for your baby and don't be bullied into doing anything you don't agree with ! There will be someone out there who understands this problem

youveturnedupwelldone · 14/03/2024 07:30

My DD had this with her baby teeth, she had metal caps on her back teeth (not under GA). They'd considers taking teeth out but we tried this first and it was fine. Also the dentist painted some special stuff on her teeth regularly to help protect/strengthen them.

Her adult teeth are absolutely fine.

I'd avoid taking teeth out unless it's the last option available and necessary to control pain etc, it's recipe for a myriad of future issues, see another dentist for a second opinion as there are other options.

Jk987 · 14/03/2024 07:31

I wanted to read the post but it was too long just to explain a tooth issue!

Mumaway · 14/03/2024 07:39

Our youngest has enamel hypoplasia, which our very supportive dentist explained was likely due to her being very ill as a young baby during enamel formation. He predicted based on dates of illness that her adult teeth would not be affected as they get their enamel laid down at a later time, and he was right!
I used to be embarrassed by her brown teeth, although we were fortunate they didn't have any issues with decay/crumbling.
I don't know where you live, but our dentists are Hampshire Dentists in Southampton. We used to see Marius, although I think he may have retired. He was gruff but brilliant.

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