Referred to neurology

[Ralphsroom24]

sorry if this post is long! I’m not great at being succinct.
I have been referred to neurology for reasons I don’t quite understand, and it’s quite hard to describe the circumstances as they are quite strange. But will try.
I have been experiencing an unusual symptom on waking… which I can only explain as the feeling of the world shaking as I close my eyes. This only happens in the morning and only happens at the moment I close my eyes. It’s hard to explain as my eyes are shut, so it’s not my vision shaking but a feeling of shaking at the moment my eyes close for only a couple of seconds.
also as I am falling asleep my hand is shaking… I only know this after my son told me because my phone was falling out of my hand every evening.
other than this I feel fine, apart from a month ago having visual symptoms (visual loss in one eye and flashing) which were suspected to be a stroke. was referred to the stroke unit by opthamology. An mri showed no stroke. The mri report did however mention that there were multiple signal changes in both sides of my frontal cortex, in excess of what would be expected for age.
Other than this I feel absolutely fine apart from some weird goosebump feelings which are probably nothing.

I am worrying a bit because my father died due to a brain tumour (gliblastoma) but this would have shown up on the mri I imagine?

Why have I been referred to neurology though? I’ve also had bloods for inflammatory markers (crp or something like that). The results will be available in a week. But again I can’t imagine the bloods showing anything that wouldn’t show on an mri.

Strange symptoms can be caused by a variety of brain things which is why the neurologists need to check everything. I do hope you get more useful in from your medical team before too long.

Sorry to hear about your dad. It's a very cruel disease :-(

I'm guessing from your concern that you didn't see your dad's scans.

I know all tumors are different, but my daughter had/has a low grade brain tumour (hers is a grade 1 version of your dads, thankfully with a very positive prognosis). So obviously I'm not a radiographer or anything, but I've seen a lot of scans of brain tumours - hers and others in the BT community, I am fairly confident in saying that a radiographer wouldn't miss a brain tumour that's big enough to cause symptoms. Most are very obvious. It looked like someone had laid an egg in my daughter's head and we were informed within half an hour of the scan. A 4yo could have seen there was something wrong, it was that obvious. I'm fairly sure you'd have been told already if it was a tumor. That you've had an MRI and nothing suspicious of a tumor was mentioned is very reassuring.

i get the fear though, believe me. But I think it's one thing you can feel reassured about.

I hope whatever it is, it's not serious and they can resolve it.

Would anything serious show up on an mri though? I would presume so but obviously I don’t know.

No I never saw my dads scans. I was just told that it was the size of a garden pea and was glioblastoma multiforme and didn’t need a biopsy.
I have no symptoms that my dad had.
my dad just woke up one day in a psychotic state not knowing who he was. It happened so fast. He couldn’t remember how to speak or anything, literally happened overnight, and he was dead within 2 months.

Causing some (probably unnecesary) anxiety right now though!

somichgoo sorry to hear about your daughters tumour. I do hope she makes a full recovery! 😊
you’re right, it is a cruel disease

Multiple sclerosis?

Understandably, Neurology sounds like a scary referral, given what happened with your father.

But, it's just a way of trying to focus on what may be causing some diverse symptoms.

I had a neurology referral: mildly scary, but, after literally 10 mins exam, the neurologist said, 'I'm sure there's nothing wrong with your brain, I'll refer you on ( in my case to audiology, who instantly understood what was wrong with my sense of balance symptoms).

Your neurology referral may be as unscary, and helpful, as mine was.

Neurology doesn't always mean a brain tumour.

Let's hope it's helpful for you.

i don’t know what this is. But I will look it up.

I hope it is nothing scary. It probably won’t be!

We can't say as we don't have the info but multiple signals on the MRII sounds like possible MS changes although non specific . And visual disturbance can be connected .
What did the referring Dr tell you?

the referring DR didn’t tell me anything other than it wasn’t a stroke and said that my GP should refer me to neurology. It was the stroke unit that did the mri. The mri showed that I didn’t have a stroke.

I am sorry to hear about your dad.

A close family member has glioblastoma - it was very clear from the mri scan that there was a tumour, and everything happened very quickly. Easier said than done but try not to worry. I am glad you’re being seen and looked at thoroughly x

I think your personal details are on these, you might want to get MN to delete them. Fingers crossed for you that you get good news and all gets resolved.

Op jyst to let you know your name & some address details are visible in your photos.

Because your symptoms correlate with a neurological problem of some kind. X

But what neurological problem though?
I’m an impatient person and this is going to
drive me insane!

Just so you know, a TIA is transient aschemic attack or a 'mini stroke' which won't always show on an MRI as there generally isn't any long lasting tissue damage. That's why youve been started on aspirin and clopidogrel

Neurology is wide ranging. They can be very good at diagnosing weird symptoms. Tell them as much as possible. Write things down so you can refer to notes if necessary. They can organise tests that your GP can't.

It's really good advice above to write down any symptoms and dates, then you won't forget during your appointment.

I understand how daunting it is OP. I've had a neurologist point at my MRI pictures and start by saying "this is an abnormal brain scan", which is not what you want to hear!

I'm a former healthcare professional. I really urge you not to speculate too much or look up your symptoms or listen to some of the things on here. These symptoms can be caused by so many things. Any healthcare professional wouldn't make guesses without running all tests, which they are doing. It's great you're getting it looked into.

Sorry was the referring Dr a hospital Dr ?

I mean I guess it's for unexplained symptoms so that they can check you over and look at the scans.

I've had gamma knife surgery today for 7 brain tumours (little fuckers I call them). The biggest was 0.4mm, the smallest less than 1mm, seen on the MRI
The MRI wouldn't miss anything, really