Sorry this is long.
Posting here for traffic. I've nc because I don't want it linked to my day to day posting.
I found out last summer I have the BRCA1 mutation. My maternal Grandma (now dead) & Mum have both had Ovarian cancer & my maternal Aunt is currently undergoing treatment.
I was already under a gynaecologist (& have been since my late teens, now 35) for hmb & excessive pain.
I had an appointment with my Consultant in early September. She agreed that the best way forward, was to add me to the list for hysterectomy & oophorectomy. She asked me at the time if there were any times I wouldn't have anyone to help me recover & I explained that my DH works away from late May until the end of August, it's written in to his contract that he's only allowed a max of 10 days leave in the period, outside of this window they're incredibly flexible, but it's there busiest time. She said this wouldn't be an issue as it was likely the operation would likely take place between late January- early March. While I was waiting she prescribed Zoladex & add back Tibolone to see how I react to menopause (which is going well)
In early January I decided to call the booking centre to see if they had an approximate date for the operation & it came to light I was never added to the list (along with others) due to a technical glitch.
I have now been re-added to the list but it's likely the date will fall in the window when my husband is away.
Does anyone know if I explain this will I be allowed to delay the operation? Or will it forfeit my place on the list? While I appreciate these things happen but it's not my fault either. I'm happy to wait until September or after & it means some people will get to move up the list. I have no other family who could be with me while I recover. My Mum lives around 2 hours away & is a carer for her DH, my Dad & Mil are both dead. My children are still children.
I have, just, written a letter to her asking this but I just wondered if anyone had any insight.
TLDR: I wasn't added to a waiting list when I should have been, the likely date window it will now take place is unworkable for me. I'm happy to wait longer & am not trying to get the surgery brought forward.