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So worried about dd behaviour, possible ADHD/ASD?

12 replies

Dewdrops1 · 30/01/2024 23:28

Hi everyone,

I am so concerned about my daughters behaviour, I’m at my wits end and would be so grateful for any advice…

So….my dd has just turned 6 years old. We’ve always had problems with her behaviour but the behaviours have changed as she’s grown. It’s so hard to know where to start because there is SO much. School keep telling me they are not seeing the behaviours in class and only see them whilst coming into school with me during handover (which makes me feel great!). Sorry for the long post but there is just so much. So here are some of the recent behaviours:

  • refuses go to school, hides around house. Runs away, hides in car, I have to carry her into school crying. Sometimes with no shoes on and she will hold onto me and run away from teachers. Worries about school night before.
  • Cant follow instructions at home, won’t brush teeth, get dressed, wash hands etc.
  • I can’t give her too many instructions at once because she gets overwhelmed and starts to make groaning noises and stamp feet, tells me to ‘stop!’. I have to say, we’ll brush your teeth after I get dressed etc..
  • I have always had to use distraction tactics to get dressed, brush teeth, wash etc. ‘ count how many squirts of soap I have put on your hand’ etc. but these aren’t working as well now bit older.
  • went through an awful few months of meltdowns over hair because she could feel ‘bumps’ in it when tied back. She would go straight into full blown meltdown, lying on floor kicking arm and legs, screaming. Then continually licking hand to flatten hair. We’ve come through this a bit now, I don’t mention or draw attention to her hair, she has same style every day, morning and night and I do it just before we leave and distract out of the door!
  • she will only wear same leggings- to school and weekends. Same outfits. We used to have major meltdowns going anywhere because leggings were ‘too tight, baggy,too short, long etc!’ Now I have bought same brand leggings x7 and she wears same everywhere, I don’t push it or question it even if going to a party. The meltdowns are less as a result but clothes Still seem to be an issue when she is overwhelmed.
  • Hates going to parties, won’t leave my side, when overwhelmed starts to say it’s noisy and holds ears but not all the time. Doesn’t mix with any friends in parties and looks ‘awkward’.
  • lately has been speaking like a baby and acting like one! Getting annoyed if I can’t understand what she’s saying! Sucks thumb when stressed(never sucked thumb as a baby).
  • presents as anxious outside of house but is super busy at home, bouncing jumping, climbing all the time. Has always been busy since a baby. Won’t sit to watch films. Demands everyone’s attention all the time.
  • pulls toys out everywhere, won’t tidy away and moves onto new toys.
  • for example, mashed orbeez into bathroom floor, whilst I cleaned up, she drew all up her arm in pen. A little later I catch her mixing paints with a toy kitchen mixer. Refuses to help tidy.
  • breaks things but gets very upset and worried after it. Recently bought new sofa and she unpicked the staples on the back making a hole. Tells me she didn’t know what she was doing.
  • I struggle to get her to sleep at night, she’ll want stories, songs, wriggles about. Then she’ll remember she HAS to do something and will get out of bed and the routine starts all over again.
  • restless at night, grinds teeth awful in sleep and has nightmares.
  • gets angry quickly , used to hit and bite during meltdowns. Over past few months this is better because we avoid putting demands on her, trying to reduce any stress and don’t go in to pick her up when she’s angry.
  • Will not listen. Her older brother’s friends cannot visit because she jumps all over them, throws things at them etc.
  • cant take her shopping, climbing in and out of trolly, swinging off trolley, not listening. Swinging off every bollard/bike rack she sees.
  • loves sharks and knows lots of facts but is terrified they are in the bath or when having meltdown thinks a shark is going to eat her?!
  • another odd thing she does is squeezes any cut, corner of nail etc to make it bleed a lot more. She was doing it to her gum the other day.

im struggling so much I’ve had to finish work. School feel it is not adhd/asd as the difference in behaviour is so extreme between settings. I’m just at a complete loss as to what to do! As we’re in wales any referral for diagnosis needs to go through school. I feel sorry for my dd but don’t know where to go or how to support her? If it’s not ADHD or ADD, surely this can’t just be ‘behaviour issues’. Do I just wait to see if it progresses over next year? Any advice greatly appreciated. Thanks.

OP posts:
Easipeelerie · 30/01/2024 23:33

She sounds autistic to me with elements of adhd. There’s a lot online about people who have ‘audhd’.

Wonderingaboutlifeandeverything · 30/01/2024 23:36

Following as recognise a lot of these in my 5 year old too

strawberryandtomato · 30/01/2024 23:42

Fucking hell. Why is schools still so ignorant in this day and age.
ASD adhd for sure.

Schools are struggling with the sheer number of SEN kids and if the academic side of things is fine and your daughter is clearly masking at school, then the school won't be bothered. Doesn't help the child in the long term though does it,

Go to the GP. Get a referral. Do it yourself OP. No one else is going to fight for your daughter.

Support and advice will help your daughter come on so much. I promise it's not all doom and gloom and the right support and understanding will be major for your daughter. Get researching. She sounds very sensory.
Sensory breaks.
Knowing what's happening during the day (routine)
Comfy clothes. Buy 5 of those leggings.
Make a timetable at home, talk through everything.
Simple instructions.
I use first we are, then we will...

Interested in this thread?

Then you might like threads about this subject:

strawberryandtomato · 30/01/2024 23:43

And at the very least- a fidget toy for school. Speak to the SENCO and just relay everything you have here

strawberryandtomato · 30/01/2024 23:45

And social stories! Get a Twinkl account (£8.99) a month. Or 30 days free. So many resources on there that schools use. But useful for home! I use them with my daughter who is diagnosed adhd

Metamorphosising · 30/01/2024 23:46

Hey. She sounds as though she probably is autistic and poss has ADHD. Seek a diagnosis, but they take ages.

In the meantime, make sure you give her advance warnings about any demands you make of her, for example, say “In five minutes time you must brush your teeth”. It will greatly reduce her anxiety and you will have a less stressful life with immediate effect.

Metamorphosising · 30/01/2024 23:51

Also I agree with PPs about sensory issues. Buy exact copies of the clothes she likes to wear. Go with her, not against her in things, - and the neurodivergence could be almost undetectable in a few years time.

Fernsfernsferns · 30/01/2024 23:54

Remove all unnecessary demands out of school.

if she hates parties - don’t go.

great idea to get her the same set of clothes, anything that is a non issue (ie not about safety) let her get on with.

I agree talk to the senco. Could you afford to pursue a private diagnosis?

the good news is you’ve spotted it early. I have a friend who struggled on covering things up and feeling awful about it until her DD aged 11 developed full blown school
refusal and a whole host of other stress related issues.

getting the right adjustments and support for her asap will help

BestZebbie · 31/01/2024 00:02

Ironically, it is masking (being on "best behaviour"/trying to blend in) at school that causes a lot of the stress symptoms of autism at home - the common description is that it is like shaking a can of coke all day and then coming home and opening it.

When you look into autism, be aware that girls present somewhat differently to the default male presentation.

Also be aware that some of the really famous "autistic traits" (big meltdowns, curling up on the floor, hand-flapping etc etc) are often actually expressions of stress/distress/emotions running high** rather than some kind of inevitable behaviour for everyday life - with proper accommodations reducing overall stress, quite a few things on your list might dial down quite a lot to produce a more calm everyday life.

**Most of the 'traits' are not even limited to ND people, just more easily triggered, possibly by living in a constant higher state of stress - consider an NT young woman who has just won the lottery and is being handed a giant cheque, there might well be jumping and squealing and flapping...

lookforsilverlinings · 31/01/2024 00:08

Dear OP from your description, it reminds me of my autistic niece.
I would highly recommend scheduling a meeting with the SEN co-ordinator, known as the 'SENCO', at your child's school or nursery. Bring along your notes and explain your concerns to them. Additionally, it would be beneficial to make an appointment with your GP to discuss all of your very valid concerns in more detail. Make sure you advocate for your daughter and emphasise the challenges she endures, as if it were her most difficult day. If you need a second opinion don't be scared to seek one.

To become more familiar with terms like SEN, SENCO, and EHC, I suggest either having a Google or having a look at this resource: Children with special educational needs and disabilities (SEND) . It will provide you with additional information on how to secure additional support for children with special educational needs. You might like to take a look at this helpful website on the meantime: Ambitious about autism

And there'll be many other online resources :)! There's even a SEN community on mumsnet.

Please remember that none of us here can provide a diagnosis for your daughter. It is crucial to seek guidance from both your GP and the special educational needs co-ordinator. I must warn you that the diagnostic process may take some time, as they tend to proceed slowly 🐌 but it's worith sticking with. Wishing you and your beloved LO the best of luck🌟🌻.

Children with special educational needs and disabilities (SEND)

Children with special educational needs (SEN) can get the help they need to get an education - SEN support, education, health and care plans, SEN before September 2014

https://www.gov.uk/children-with-special-educational-needs/extra-SEN-help

junebirthdaygirl · 31/01/2024 00:13

As said, the school are showing gross ignorance here as not appreciating that she is storing up all her feelings for when she gets home which is very common for children with autism. Could you type out that full list and say you want them to put through the assessment as school is too stressful for her and its all coming out at home. You are being very wise in your decisions around her eg with clothes and the more you read up on Autism the more you will find things that help.
A weighted blanket for a little while after school might help or any other experience that soothes her as underneath she is up to 90 and needs a save place to unwind.
A visit to an Occupational Therapist would help with her sensory issues too and they would give you supportive things to do at home. In lreland so not sure how your system works.
Your dd is a classic case of Autism and if school can't see this on reading your list they shouldn't be teaching.

Dizzy82 · 31/01/2024 01:27

Sounds very similar to my son at that age, different behaviours in different settings. My son was a nightmare at school but at home he wasn't too bad, taking him out anywhere that wasnt his choice usually ended up in meltdown with everyone staring at us.

I found that as school work got harder and less play involved the behaviour deteriorated. I was fortunate that his school kept a record of everything and he was moved aged 7 to a special school. Have you seen the GP for support?

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