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Hyoscine patches/scopoderm- HELP please

19 replies

EllebellyBeeblebrox · 24/01/2024 06:42

Request for help please!
Long story short, my Mum is on this medication following major surgery and radiotherapy for cancer. They have been increasingly difficult to get hold of and there isn’t an alternative. I have rung round all our local pharmacies and even tried online pharmacies, but can’t get hold of it anywhere. Her consultant is sympathetic but also out of ideas.
does anyone have any in the back of their cupboard or not in use or sat in their emergency cupboard that I could buy off them…please…it is used as a travel sickness remedy but mum
is prescribed it off license for secretion management. obviously happy to pay for postage too.
Thankyou for reading

OP posts:
EllebellyBeeblebrox · 24/01/2024 08:36

Thankyou, I’ve tried to order from here before and once i got to checkout they didn’t have any stock but I’ll try again

OP posts:
inappropriateportioncontrol · 24/01/2024 08:45

Bumping and hoping.OP Has it got A more common name that you could get MN to add to your thread title ?

Interested in this thread?

Then you might like threads about this subject:

EllebellyBeeblebrox · 24/01/2024 08:48

Thankyou. SCOPODERM is the brand name I think but the product is hyoscine.

Hyoscine patches/scopoderm- HELP please
OP posts:
EllebellyBeeblebrox · 24/01/2024 13:35

Hopeful bump

OP posts:
equinoxprocess · 24/01/2024 13:38

So how did her consultant leave things?

Please don't pay random strangers to send you drugs. You have no idea who they might be and this forum comes up in Google searches so literally anyone could target you in response to this post and send you anything.

Miiaaoow · 24/01/2024 13:40

I wonder if Kwells travel sickness pills would be helpful. It's the same ingredient but in pill form, very slowly melts in your mouth or you can chew them.
They give me a very dry mouth, so may help with secretions?

IHS · 24/01/2024 13:44

Buscopan contains hyoscine butylbromide, I wonder if that would be a satisfactory substitute. Ask at a pharmacy perhaps.

HappyHamsters · 24/01/2024 13:47

There are plenty of online pharmacist advertising it as being in stock, that would be safer than on social media.

CornishPorsche · 24/01/2024 13:53

I have the patches for chronic migraine to manage the vomiting.

The only place I've managed to get it recently (as in 3 weeks ago) is via Chemist4U and they deliver it to my home. I emailed them first to check on availability and they had it in stock.

I get the GP to send them my prescription electronically.

For everyone recommending alternatives, that's not always an option. For me it's cyclical vomiting and I can't get the pills down and buccal tablets have become ineffective due to years of use! These patches can last 72hrs so they are very very useful.

ochnanoch · 24/01/2024 13:54

We have had the same problem of not being able to get the patches for my Mum. Her GP prescribed atropine eyedrops taken orally, between 1 and ,8 drops a day as needed. They have done a good job so far (though she would def prefer the patches.) so maybe worth an ask.

HappyHamsters · 24/01/2024 13:57

Pharmacy Online
CHEMIST4U
health Express

Is mum known to the macmillan nurses or could a local hospice suggest anything

ochnanoch · 24/01/2024 14:02

There was another alternative offered too (her GP was brilliant and really looked into it for us) which Mum couldn't take because she is peg fed and they needed chewed. I can't remember the name but it's worth pushing a bit if you can't get the patches - there are alternatives.

EllebellyBeeblebrox · 24/01/2024 14:27

Thankyou all for your advice and experience, really appreciate it.
her consultant has said we can only try ringing round pharmacies to try and find some in stock, but I will ask about the other options too.
I know asking online for medication isn’t ideal but I’m at the point of desperation…and the only reason I haven’t tried the online chemists before is because it’s so expensive but if I can get the GP to send the script it might work.
thankyou again all

OP posts:
Katieflake · 24/01/2024 14:31

Travel sickness tablets can sometimes work for secretions too so worth trying them OTC while you search for the patches

CornishPorsche · 24/01/2024 15:03

So this hasn't been prescribed by your mum's GP previously? They need to do that for her and send to an online pharmacy. Then it's a standard NHS prescription fee / free if she doesn't pay for her prescriptions.

I have a prepayment certificate for prescriptions, it is much cheaper.

HappyHamsters · 24/01/2024 15:54

The consultant should have sent her gp a letter with a list of meds they prescribed so the gp can write a prescription, was she on the patches in hospital, can their pharmacy supply some. I would be cautious giving her tablets that contain hyoscine which are for ibs especially as she had abdominal surgery. Is she at home, hope she is comfortable, was she referred to any community nurses.

EllebellyBeeblebrox · 24/01/2024 16:05

She had a total glossectomy and neck dissection for tongue cancer, and then had a tracheostomy because she couldn’t manage to swallow her secretions and was at risk of aspirating. Eventually they agreed to take the trache out which she hated, as long as the hyoscine dried things up, which they do quite well. They’re just so difficult to find anywhere in stock now, and the use for secretion management is off license. She’s been on it for months, doesn’t have current support from Macmillan or anyone. She’s independent and doing well with everything including her PEG but struggles to talk on the phone since her surgery and doesn’t use the internet so I try to sort her meds out.
really appreciate everyone’s suggestions, I’ve sent an email to chemist4u to see if they have someone

OP posts:
DirtyMis · 24/01/2024 16:23

It might be worth trying private/independent pharmacies too. .. I hope you are able to source these, I know how helpful they are for secretion management.

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