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Daughter aged 18 has autism is struggling with going to college

18 replies

lockdownrainbow · 23/01/2024 18:30

My daughter aged 18 end of August last year was diagnosed with autism 2 years ago. She struggles mostly with social situations. Really struggling getting her into school, she ended up in her own room one on one with a teacher.
Went to college for a few years on and off struggled to get in as she couldn't cope with the bus gets to anxiety.
Started at a better college last September doing foundation animal management. Also managed to get her her own taxi to get to college.
She seemed to be semi enjoying it to start with and even made friends. Now she is adamant that she wants to stop going and find a job.
Me and her dad divorced 3 years ago he got her into the college etc which took alot.
He is adamant that she won't be living with him if she doesn't go to college or get a job as she will sit around gaming all day which is her favourite thing to .
We currently have our daughter 50/50 which then means I would have her living with me all the time
I understand her autism more and that she supports

OP posts:
TeenDivided · 23/01/2024 18:37

When you say 'foundation animal management' what level is that?
Does she have an EHCP?
What adjustments does she have for her anxiety & autism?

DD's college (in Hants) were supportive / flexible with her on her Level 1 animal care course, but she really wanted to do the course, the only compromise for her was the level.

junebirthdaygirl · 23/01/2024 18:57

Is there any way she could do her course online?

Flidina · 23/01/2024 19:48

Is it possible that she could do her course at home online? My son is nearly 18 and has Aspergers and Adhd and really struggled in college. He only has to go in for about 4 hours on a Monday, which he can manage, and the rest of the week he is allowed to do his course online, could this be an option for your daughter?

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lockdownrainbow · 08/02/2024 20:36

Sorry yes she has and echp the animal course is fairly low more for students like her with autism and similar problems . She has now left college was the only option for her she wasn't copying admitted that she was having panic attacks thinking about going in. Not for her. Sounds that the e hcp will no longer be valid now she is mot in education. We are having a meeting with college senco.
We are now hoping we can support her getting a job which is what she wants to do , otherwise she will be sitting around all day everyday gaming

OP posts:
itsgettingweird · 08/02/2024 21:10

Will the college support you with call8mg an emergency annual review.

If your dd is struggling with transitions but wants to learn and has a talent (computers) you could look at a residential socialist college being named on her ehcp and her doing a course in something computer based.

TeenDivided · 09/02/2024 08:18

DD's EHCP is still running this year, though not in college.
But we are doing English FS and career related work experience.
She may even return to college in September.

Have you looked at supported internships?

I would try very hard to keep the EHCP live.

08557lemon555 · 09/02/2024 08:43

Currently experiencing very similar with my 19 year old. I thought EHCPs were valid until 25.

TeenDivided · 09/02/2024 08:50

08557lemon555 · 09/02/2024 08:43

Currently experiencing very similar with my 19 year old. I thought EHCPs were valid until 25.

They are, but I think they may stop once working / not progressing.

08557lemon555 · 09/02/2024 08:53

I’d not heard that. Surely the whole point is working with young people where things are tricky and how can you define not working. If things aren’t working the whole point is the EHCP is supposed to make things work. Are you supposed to be able to call for a review. If things were so easily rectified then nobody would need an EHCP.

TeenDivided · 09/02/2024 09:04

Just to clarify, I mean EHCPs stop once the young person is 'in work' or 'reached best situation they are expected to attain' or something. I am not an expert however so may very well be wrong.

SearchingForSolitude · 09/02/2024 09:57

Have you requested an early review of the EHCP? If college is inappropriate have you looked at EOTAS?

EHCPs can continue until 25, or in some cases 26. The LA cannot just cease because DD can’t attend college but the rules are slightly different for post 18 pupils.

lockdownrainbow · 10/02/2024 18:05

Yes meeting with college re echp review

OP posts:
SearchingForSolitude · 10/02/2024 18:30

Is the meeting with the college actually a formal EHCP review or just an informal meeting?

Bagpuss51 · 02/10/2025 18:44

I too I'm going through similar struggles my daughter lost her Ehcp plan through Hampshire county council the mainstream further education college would not meet her needs this is in the Rushmoor Hampshire area.
Been three years at home as we not giving any course at the college for her to do so we've been trying online learning at home for example national numancy challenge. She's just got a diagnosis on the NHS but ASd and ADHD going medication review.
Just enrolled with lots of help in the hants and Surrey NHS recovery college is a positive.
We just don't know what to do college seem to be so difficult in the past and at home it's got lots of challenges.
She is a young 21 year old with an outlooking life without being negative quite child like
Lots of times I feel like just dropping or the so-called learning at home forget the maths forget the digital skills forget the English skills get the whole lot of these certificates that I'm trying to do with her and get her into some part-time voluntary work so she feels part of the real world and I think that voluntary work help her enormously with her money and maths skills . Really worry about her future more she'll be able to get a job I think I think and over analyze absolutely everything to the worst possible scenarios.
Any suggestions any advice would be really appreciated thank you ever so much xxx

Bagpuss51 · 02/10/2025 18:46

Apologies for any spelling mistakes I have made .
I have discovered BBC bitesize that do some brilliant quizzes and videos for functional skills .
Think we will just stick with recovery college and look for some voluntary work I just don't think I could face another year in the total for four years trying too chase a pipe dream.

ZaZathecat · 02/10/2025 18:54

I think voluntary work is a very good plan as being out in the world mixing with people is very important for her social skills and mental health, if she can do it.

LieborCookin · 02/10/2025 18:55

Op have you been able to find out what went wrong at college .
Ok she has an ehcp but have any tutors read it ? Do they understand what your DD needs ?

Bagpuss51 · 02/10/2025 19:05

My daughter went to the further education college with an ehcp plan issued in October 2020 with the history of attending camhs undergoing NHS treatment for medication before her formal diagnosis.
She did not sit her GCSE exams because of covid school closures and without being negative had she sat her exams they may I think sit down being lower than the mark she was given from teacher based GCSES.
On the basis of two of her GCSE grade has been level five not in maths or science or English they would not give a place on the focus on life skills and vocational pathways courses that would have helped to immensely with practical skills social skills.
My daughter isn't sporty or Arty has occupational therapy in the past so this was not some thing we could look in as an alternative. Struggled in functional maths skills was unable to do the exam she struggled hugely in the two courses they could only offer her it just level two in travel tourism as unfortunately she only managed to a level one. Hugely social skills and in making friends and she was told by a learning support assistant that it was not primary school.
Every time we ask if they could merge to the courses that would suggested by sendiass it was told by my husband and I not possible so unfortunately we're ended up at home June 2022 it is an ideal and it's also if we're really pushy parents that you know you expect something from college.
Now has a formal diagnosis and the NHS so I wonder if that would make a difference if she were to rejoin college I'm not sure I wanted if we should just completely forget about education settings I don't think they agree with her I looked at just do some voluntary work in lots of people have gap years from university to do voluntary work this is what we should look at along with the NHS recovery college I'm so sorry for such a long post but it's been a really difficult past couple of years and on top of that we've had a family sickness long term bereavements of family members.
I think really I'm trying to tell myself out loud that I think my daughter should have a completely fresh start forget the academic stuff do some voluntary work and attend recovery college!!!!

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