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Anxious about getting dementia when I’m older

92 replies

Stumpedasatree · 09/01/2024 22:00

Does anyone else feel like this? I am currently fit and healthy, nearing 50, but feel a massive dread of developing dementia when I’m older. I don't know how to minimise my risk either, apart from trying to keep healthy and active.

OP posts:
SouthEastCoast · 13/01/2024 10:31

PoinsettiaLives · 09/01/2024 22:16

Maintain an active social life
Get your hearing checked.

Why hearing?

SouthEastCoast · 13/01/2024 10:32

I’m terrified too. I really hope euthanasia will be legal soon and we will be able to sign a living will to avoid drawn out suffering for relatives.

dickdarstardlymuttley · 13/01/2024 10:33

Dementia: Photos lay bare agony of slowly losing mum www.bbc.co.uk/news/uk-wales-67762173

Interested in this thread?

Then you might like threads about this subject:

dickdarstardlymuttley · 13/01/2024 10:38

There's a big difference between the dementia's. Vascular dementia is generally caused by cardiovascular issues like a stroke or abnormal heart rhythm such as long term undiagnosed atrial fibrillation. Some scientists think that Alzheimer's is connected to poor diet, ultra processed foods and carbohydrate intolerance. The one sure thing is lack of investment and dementia friendly society promised by governments. Poor care is what terrifies me such as elder abuse.

TheFormidableMrsC · 13/01/2024 10:43

This does really worry me. My maternal grandmother had Alzheimer's but she was in her very late 70's when that happened. My Dad is 84, he has it, his sister had it too. However, both their consultants insist that it's just been bad luck rather than being connected. Neither of their parents had it.

I'm 55 this year and I have a 12 year old (autistic and I'm a lone parent). I do really worry but equally, I try to keep stress to a minimum, daily exercise, strength training too. I read a lot. When I get brain fog I think "shit" but every other person in my age group has the same and I think currently more likely menopause related. I'm going to try and improve my gut health and I know that my diet could do with some improvement too. Ultimately, you can't stop it if it's going to happen but you can minimise risk. Such a bloody cruel affliction.

Mrsjayy · 13/01/2024 10:48

Stumpedasatree · 09/01/2024 22:00

Does anyone else feel like this? I am currently fit and healthy, nearing 50, but feel a massive dread of developing dementia when I’m older. I don't know how to minimise my risk either, apart from trying to keep healthy and active.

yes it really scares and .bothers me, as a handful of extended family have had or .have a form of dementia . I think it is totally normal to be anxious about it.

TheFormidableMrsC · 13/01/2024 10:50

I should add that my Dad is still doing OK. He's sociable, but repetitive. My stepmum keeps him active and busy, lots of theatre and cinema, social occasions, museums etc. I have wondered if he had been affected by long term extreme stress. He had a high powered job for many years, worked ridiculously long hours and was never able to switch off. He was also prone to severe panic attacks that replicated heart attacks. He was always stressed. I can remember still from childhood. He also drank a lot. These days he still likes a couple of glasses of red wine a day but at almost 85, I think that's fine. His long term memory is fascinating as it's so good. I hate that this has happened to him but he has an amazing support network and is content currently.

Theresit · 13/01/2024 11:11

ICouldEat · 09/01/2024 22:05

I’m terrified.
Both grandmothers were in homes with dementia, and now my father is too.

You can sign up and take a cognitive function test here, you then get a reminder annually to do it and compare. There is also advice on how to minimise the risks through lifestyle advice, keeping social, active good diet etc.

https://foodforthebrain.org/test-your-cognitive-function-today-updated/

Thank you for this! Just done the test and my risk is 50%. Mainly because I’m lazy with things.

Theresit · 13/01/2024 11:13

SouthEastCoast · 13/01/2024 10:31

Why hearing?

Loss of hearing results in social isolation, missing out in conversation,losing confidence in interaction.

NotAnotherPylon · 13/01/2024 11:49

Take any actions you can now to plan for/mitigate (e.g. power of attorney, advance directives, talk to relatives about what you would want) and then....forget about it

In my view @NealBrose this is by far the best, most sensible advice on the thread.

GETTINGLIKEMYMOTHER · 13/01/2024 14:13

Iwishmynamewassheilah · 13/01/2024 08:50

My uncle died from dementia recently. He was slim, a high ranking academic, non smoker, non drinker, sporty. I think talk of prevention is not that straight forward. My dad, on the other hand died fairly young from vascular dementia related to smoking, so an obvious link there. Of the two, my uncle was 20 years older at time of death. Natural ageing is a factor in a lot of disease.

My FiL developed vascular dementia in his late 70s. He’d never been remotely overweight, never smoked, hardly drank, and was still cycling and playing tennis until then.

IMO it’s largely a lottery, and a very unfair one.

Pickledprawn · 13/01/2024 18:55

Take a look at an article published by the Lancet (2020) and the 12 risk factors for dementia. Most dementias aren't hereditary some rarer forms can be.

SouthEastCoast · 14/01/2024 19:35

Theresit · 13/01/2024 11:13

Loss of hearing results in social isolation, missing out in conversation,losing confidence in interaction.

Yes of course, that makes sense. Thanks

Theresit · 15/01/2024 10:23

SouthEastCoast · 14/01/2024 19:35

Yes of course, that makes sense. Thanks

👍

amenuniversity · 12/06/2025 10:02

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GETTINGLIKEMYMOTHER · 12/06/2025 10:19

Boomboom22 · 09/01/2024 22:07

But op, you won't know about it. As far as you are concerned you're fine. Even if you don't know who you are / think you are 16 again it's mostly distressing for others close to you more than you. Especially if they go along with what you say.
And by the time you are unwell enough to be distressed you won't recall it 5 mins later.

Dementia is often very distressing for the sufferer! To suppose otherwise is a popular misconception. Do you have much actual experience of it? My DM was often anxious or frightened of things she couldn’t even name.

And just one more example, the poor lady (80s) in DM’s care home who was so often crying and very distressed because her mother wouldn’t know where she was. Or because she needed to get home ‘for the baby’. Staff were very kind and did their best, but nothing really helped.

OP, I feel exactly the same in dreading it. One thing I’ve done, though, is to add a paragraph to my health and welfare power of attorney, to request very firmly in the case of dementia, or certain other conditions, absolutely no life saving or life prolonging treatment.

IMO too many people with dementia are kept going when Nature is trying to let them go. Endless meds, drips, in and out of hospital - in any case a terrible place for anyone with dementia, when they can’t understand what is going on, or why.

HatsOffToThePigeons · 12/06/2025 10:43

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Great job resurrecting a zombie to spam it. 🙄

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