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Cross on behalf of SEN families

6 replies

elliejjtiny · 30/12/2023 17:18

We have a post diagnosis autism support group in our area which I know we are very lucky to have. It stopped running during covid but it's back now, although less than it was before. My 9 year old's referral has finally come through, 3 years after diagnosis and 9 years after I first said I thought he had autism.

One of the local soft plays have a general SEN session once a month in the evening which has been a lifeline for us and several other families. Although it runs at reduced capacity it's always well attended with about 10 families there. I normally take my autistic son and his 2 brothers, one who has GDD and one who is waiting for an autism assessment. My boys love the soft play but can't use it on the days when it's not the SEN session as it's too busy and they aren't allowed to use the sensory room in the main sessions.

Anyway, I've just found out that they are changing the general SEN session to a session which you have to be referred to the post autism diagnosis support team to attend. We will be ok (just) because ds's referral has come through but it's just awful for the families who are still waiting for support from the post diagnosis team, still waiting for a diagnosis or have SEN that isn't autism.

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PTSDBarbiegirl · 30/12/2023 17:23

That sounds a bit draconian. Services that cater for SEN aren't great, across the board. Could you look into renting a church hall or suchlike to provide activities. It's usually cheap to rent as are community centre halls.

myweecalvie · 30/12/2023 17:31

Usually this sort of thing happens after someone pushes the boundaries too far and it makes so many people lose out.

elliejjtiny · 30/12/2023 18:43

myweecalvie · 30/12/2023 17:31

Usually this sort of thing happens after someone pushes the boundaries too far and it makes so many people lose out.

Do you mean things like going to a SEN session because the parent likes it quieter (had to explain to BOL the "quiet" session at one place was for children who can't cope with a loud environment, not so he can read his newspaper in peace) or children running wild while parents ignore that their child is climbing up the slide. Just wondering as I didn't see any of that kind of behaviour any of the times I've been.

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BettyBakesCakes · 30/12/2023 19:04

Sounds like it's being used by those who don't need it so they're cracking down. It does make it awkward for those awaiting referrals and support though.

FortunataTagnips · 30/12/2023 19:11

That’s really shit. There will be so many children who could benefit from that who aren’t at that exact stage in the referral process.
If only 10 families usually attend, it seems very weird that they feel the need to tighten the criteria.
I’d be questioning who made that decision and pushing back a bit if possible.

elliejjtiny · 30/12/2023 20:26

The waiting list to see a community paediatrician in our area is 2 years and then there is 6 months to wait for an autism or adhd assessment. There are so many families who need these kind of sessions where you don't have to be on dla or have a diagnosis to attend. Also there are lots of children like my 10 year old who have a disability that isn't autism but still find crowded places difficult.

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