Indi Gregory- granted Italian citizenship

[GotMooMilk]

https://www.bbc.co.uk/news/uk-england-derbyshire-67333834

Another really heartbreaking case but I’m so confused why doctors in Rome have offered treatment and citizenship. The poor child has a mitochondrial disease, there appears to be no known cure or examples of children who’ve lived a high quality of life with it. I understand the parents would be pursuing any avenue (supported by Christian Concern who I have issue with in these cases…) but it all just seems so sad.

The hospital is literally administered by the Vatican. The politics in Italy around it and it's funding are complex but politically it's position on this is straightforward - the Catholic Church is pro life. With infant disease this can mean taking heroic efforts to prolong life where others would judge prolonging life where there is no real likelihood of long term recovery and any risk of pain or distress would be balanced in favour of ending treatment. That's why doctors there will opt to prolong treatment where doctors here would not. I don't think on either assessment they think the child will recover. They just don't want to deny an opportunity. Right now Italy has a far right government strongly aligned to it's Catholic identity so that may smooth processes like securing citizenship.

Realistically airlifting the child will still have to be in her best interests and would need another court order. I don't know if it will happen. It makes these issues and the different perspective the Catholic Church has on the care of the terminally ill to others visible. It does nothing for Indi Gregory who sadly is unlikely to get to Italy. Perhaps it will help her parents to know they did everything they could.

It's an area of law I work in and I was raised Catholic but am lapsed. I don't agree with but can emphasize with their perspective - believe me they will find it very distressing and shocking that a court would consider allowing treatment to end when the parents oppose it and another hospital is willing to meet the costs on the basis that is in Indi's best interests. On a pro life analysis that makes little sense too.

I am reserved to the diagnosis of Mitochondrial Disease.
5 years ago my 22 month daughter died following a 5 month period in Sydney Childrens Hospital, Australia. She had a history of a Chronic & repeating Enterovirus, but the Neurologists chose to ignore her history and treat her for a genetic disorder.

She suffered incredibly and we had concerns the Doctors were lying, so we made video and audio recordings

Finally we managed to persuade them to trial anti-viral (auto-immune) medication and it was very effective, abating the seizures. However by this point, it was clear the medics had caused irreversible brain damage

The Hospital then withdrew the medication against our wishes and very quickly fabricated a (in-silica) Mitochondrial disease diagnosis to a match with the error of the original (and since dismissed by myself and partner) Specialist Neurologist

We had to request Palliative care when the medicine wore off, and the seizures returned

A review by the Medical Board and Health Care Complaints (even the Police, Minister of Health) would not allow our contribution of audio and video, as well as published medical papers to show that the Doctors had falsified the Hospital Notes and fabricated a disorder to hide their mistake

It was very much a case of how Doctors can attribute an illness to genetic because their testing equipment and knowledge is at fault, in our case (and very likely a duplicated globally in the Western health care systems) a faulty RT-PCR protocol

I have since written this up as a website RememberingAlina and should you wish to understand more on Chronic Viruses, to include not only a model for the cause of "long Covid", vaccine injury, auto-immune diseases (Hashimutos/Diabetes), epilepsy, the ketogenic diet and of course how Doctors evade investigation and prosecution, then I'll try my best to answer any questions

My heart goes out to the Gregory Family and the pain and struggle they have had to face, if I can help in anyway, in support or to review their medical notes I hope they will be in contact

Because they are driven by religious ideology not by any realistic medicine.

@AlisDad - I'm sorry for your loss, but I don't think it's helpful to compare your dc to this baby.

QMC is an excellent hospital with excellent doctors. I'd trust their medical opinion much more than I'd trust a hospital that is driven by religious ideology rather than medical opinion.

Rest in peace, Indi Gregory.

Thank you for your thoughts

Sydney Childrens Hospital also has an excellent reputation. It was not my motive to compare. I am simply raising concerns and reservations to a diagnosis of "mitochondrial disease" (as was similar cases with Charlie Gard and Alfie Evans)

From very painful personal experience, I would like to say that Doctors can and do make mistakes, fatal ones and they will also lie and fabricate an illness to an "unknown" or absolving genetic cause, such as Mito

The Christian legal firm really needs to be reigned in. It's cruel to offer false hope. Nothing was going to save her. Glad she went to the local hospice. It's a beautiful place, and they can now access the care and support they offer. RIP Indi.

As a PP said QMC is an excellent hospital. Both local heart centres turned her down for surgery. Which speaks volumes. If you read the judgement from 2nd November. It stated that the Italian doctors hadn't read her notes. What happens to Italian children with similar diagnoses?

I think the reporting of it hasn't helped either. The talk of Italy offering treatment but really was palliative care. The Christian support group of course have jumped on it...especially that they weren't allowed to take her home but from sounds wouldn't have worked and also had never been there.

RIP.

I think the problem with taking her home is that it would have caused her considerable pain and distress, as it wouldn't have been possible to give her the support she would need there to avoid that.

It really is a disgrace - it's almost routine for the so-called Christian Legal Centre and the Italian hospital to intervene in these cases, and their agendas are clearly nothing to do with the welfare of the individual child and everything to do with their pro-life anti-abortion stance.

According to the judgment, the baby's principal diagnoses were:

1. i) Combined D-2, L-2 hydroxyglutaric aciduria, a devastating metabolic disorder which causes progressive damage to the brain;
2. ii) Severe bilateral progressive ventriculomegaly in which the brain ventricles are enlarged due to a build-up of spinal fluid;
3. iii) Tetralogy of Fallot which affects normal blood flow through the heart

And there was an awful lot of evidence that ongoing treatment was causing her pain and distress. I really don't understand how so-called Christians can think it's OK to subject a very ill and terminal baby to several weeks' more pain just to promote their own agenda.

From the looks of it she’s on a vent via her nose too and italy are talking about inserting a valve with a stent which made me wonder if that’s another way of saying trachy. My dh had a trachy and it’s not a nice thing at all and brings its own complications.

These babies are literally born terminally ill and this Christian law firm does nothing but give them false hope their baby will live, it’s beyond cruel.

You couldn’t pay me enough to train in children’s nursing now.

Poor little mite, RIP.

@FormerlyPathologicallyHappy no, I believe it was a stent in her heart. She had Tetrology of Fallots. So that would make sense. Which both Birmingham and Glenfield had refused to do. The judgments are very clear about everything that had been done.

The photos that were being published of her, are old ones. She didn't look like that in some of the more recent ones.

I did wonder because it said valve with stent for breathing in one report and i thought wtf are they talking about a trachy.

Her poor parents & siblings.

Charlie Gard and Alfie Evans died of mitochondrial disease. The doctors did nothing wrong.