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Low B12 but no treatment or diagnosis

28 replies

SimplySoo · 17/10/2023 14:37

I've been feeling fatigued and getting awful stomach bloating/constipation/piles for a few weeks. GP gave me blood test results yesterday: low vitamin B12 (but iron levels fine). Told me treatment is six B12 injections, but when I went to book I have been told the first appointments are mid November, so a month away! I am also due to have more blood tests and another stool test to rule out coeliac and autoimmune issue as no idea why I have low B12. My diet should be fine.

I am worried about feeling worse over this month. Can anyone offer any lived experience or insight into similar? I am otherwise usually fit and healthy, but feeling really low now.

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SteaknSalad · 18/10/2023 11:10

To add to my comment above - if you do decide to get B12 injections privately, make sure you do get the follow up investigations for coeliacs, pernicious anaemia, etc with the NHS. Don’t let them fob you off with “oh your B12 levels seem fine now, case closed”. You need to know why your levels dropped so low so that you know how best to manage in the future.

ScattyHattie · 18/10/2023 11:23

You may find this B12 & pernicious anaemia FB group useful. I would check if boosting B12 prior to further testing on absorption issue may skew results before getting private b12 injections.

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SimplySoo · 18/10/2023 11:24

Thank you for the helpful replies.

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