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I might have MS and I'm scared

8 replies

FourStringsNoWaiting · 03/10/2023 17:09

I have a lot of symptoms - pain, numbness/tingling, muscle stiffness, I've always had migraines but recently started having visual disturbances with it, balance and coordination issues, brain fog to the extent that it's impacting my ability to function

I've had blood tests to rule out other causes and everything came back absolutely fine which is some good news at least

Full neurological examination tomorrow and MRI soon, date tbc

This is scary

OP posts:
dueindecember10 · 03/10/2023 17:21

I’m really sorry you are going through this. I have a close family member who has MS and she is an absolute warrior. She shows MS who is boss. It’s easy to say but not easy to do but try not to worry too much. If diagnosed there are more and more treatments and support. It doesn’t have to be a death sentence.
Positive mental attitude will carry you far x

SnoopDogisamenace · 03/10/2023 17:23

I have MS. Don’t panic. Feel free to PM me.

TheYearOfSmallThings · 03/10/2023 17:27

To be honest it is much more likely not to be MS, and they will hopefully be able to reassure you tomorrow, although you will still need a scan. Not much point saying don't worry, but at least don't assume the worst.

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gotomomo · 03/10/2023 17:36

All of those symptoms could be other things, my friend had all those things and it was a congenital condition to do with her spinal cord, had a serious operation (which i know came with risks) but a few weeks later she was completely cured.

Wait and see. I know ms is bad, have 2 friends with it unfortunately but see what happens

Velvetpaws75 · 03/10/2023 17:48

One step at a time. Hard as it is try to focus on day to day stuff whilst you wait for a diagnosis.
I have three serious health issues and so have constant health anxiety and every new symptom is a huge worry for me but plenty of times I have been wrong in the sum total of google plus my knowledge as a retired nurse.
I was pretty sure I had MS this time last year and it turned out that I had a cyst on my spine plus visual disturbances which were thoroughly investigated and no cause ever found. They stopped after about four months.
Also, if it is MS treatment options change all the time and one of my health conditions would have killed me if I had got it a few years earlier but as it was I had treatment and am still here so far.
Distract yourself as much as you can with whatever works best for you.
I hope you get a diagnosis soon then you can plan from there.

Roselilly36 · 03/10/2023 18:29

I can totally understand your concern. But any number of conditions could cause the symptoms you are suffering. I have MS, when I suffered my first documented, acute attack, my symptoms were much more severe. Wishing you all the very best OP. Take one day at a time.

CatWithNoTeeth · 03/10/2023 19:15

I recently went through this. Started with facial paralysis out of the blue and associated double vision. An MRI showed 'significant unexpected results' which looked like MS. I have another appointment next year. It is terrifying. I went into full fear mode when they told me MS, panicking, feeling there was no hope, that I was trapped in my own body. It was dreadful. My acceptance levels are better now. I still don't know what is wrong. But I know how scary it is.

CareerChange24 · 25/06/2025 02:18

Did you ever find out if you had MS may I ask?

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