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Anyone know of a child diagnosed with leukaemia (ALL) and have a happy outcome? Some positive stories needed please.

57 replies

Myworldjusthim · 28/09/2023 07:58

My DS has been very unwell. Has had covid and a few other viruses for about 4-5 weeks. He was getting over the viruses but kept spiking temperatures. He was also sleeping a lot.
took him to the GP twice he said just viral. Took him A&E they said just viral but because his fever was high they would admit and start antibiotics.
Long story short, he had lots of blood tests that showed he had low wbc, low platelets and low red cells. So they admitted him. I asked several times about leukaemia and was told bit would show in his bloods especially the film. His fever kept stopping and starting. Sometime high, sometimes mild. They then said they wanted to look at his bone marrow as he wasn’t making any new cells at all. They suspected aplastic anaemia.
Last night we got the news he has ALL leukaemia. And they want to start treatment straight away.

Anyone know of anyone who has been in a similar situation? What is the outlook for leukaemia? What can I expect? Can he go into remission or recover?

OP posts:
CurlewKate · 03/09/2024 19:55

How terrifying for you, op. It might be worth having a look for Gary Lineker talking about his son George, who is a happy, healthy 30 year old after having leukemia as a baby.

FuckMeUpFlorida · 03/09/2024 20:10

I was diagnosed with ALL at 13, about 30 years ago. I am still here alive and kicking!

I was put on experimental chemotherapy (this was the early 90s) and I got better. Not to say it wasn't uncomfortable or the results of which were high up on my beauty agenda (being 14 with no hair over winter was not ideal) but, I'm living proof there are positive outcomes.

I'm so very sorry you're all going through this. Be there for your DS, listen to how he's feeling and make things as comfortable at home as possible because he'll want to leave isolation unit as quickly as possible (at least, I was put in isolation for that first month to avoid infection as I was neutropenic).

Survival rates are very high nowadays, as my Dr said, it was a 'blip' and there are lots of treatment pathways. Happy to chat over PM if you had any questions,

x2boys · 04/09/2024 11:18

TidyQuail · 03/09/2024 19:50

Thankyou so much everybody from the bottom of my heart. These postings mean the world to me as it feels like an isolating experience so far. None of my work colleagues, nor friends, nor family members can relate to the experience. I still have flashbacks to the 4 grand mal seizures she had last october during the first round of chemo which put her in a coma and is the reason she still can't walk. Even though the nightmare began last August, its still so raw, and I find myself obsessing about relapse, and constantly asking the nurses if adolescents can go on to live a normal life, as a lot of these postings refer to very small children, less so 17 year olds, but I have to think positive for lily's sake. I will probably post regular now that I have found you guys

Hi I'm so sorry to hear about your daughter.
I'm just letting you know there is a children with cancer board on here ,hopefully there are other parents who understand what you are going through on there.

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LadyGabriella · 04/09/2024 11:21

Sorry to hear this. It’s so unfair.

pigletinthewoods · 04/09/2024 11:26

Sorry to hear about your child. It must be so stressful for all of you.

I went to high school with someone who had leukaemia as a kid. From what they said I understand the treatment was sometimes uncomfortable but it was a long time ago so likely they have better treatments and protocols now.

Afaik it never returned and they’re an adult with their own teenage kids now.

Noshowlomo · 12/09/2024 13:01

@Myworldjusthim I followed your thread when it was new and have thought about your and your son often. How is he doing and how are you? xx

1nquisitive · 22/06/2025 21:18

Hi. To people asking about positive outcomes...I had ALL Leukemia when I was 17, over 30 yrs ago (and I also needed open heart surgery to remove 2 clots which became lodged in my heart from Hickman lines). I later graduated from Uni and had a relatively snr job for some years. My health has deteriorated in recent years which is down to excess stress but it didn't have to be that way. So, yes, I think a healthy, meaningful life is very possible. But all the fundamentals of a healthy life become of increased importance: good diet, rest, exercise, relaxation/mindfulness and most importantly loving kindness (self, family, friends,partner). Good luck.

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