Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

Chat

Join the discussion and chat with other Mumsnetters about everyday life, relationships and parenting.

NHS gagging order on 19 year old with mitochondrial disease.

578 replies

AbbeyGailsParty · 09/09/2023 16:56

The girl cannot be identified. Canjot identify the hospital she is in. Cannot make decisions about her own medical treatment. Neither she or her family can fund raise for alternative treatment in Canada or USA.
Unless I’m really missing something, she sounds perfectly reasonable and rational. Wtf is going on? Atm this is the only link I’ve found.
https://www.mirror.co.uk/news/uk-news/i-fight-doctors-who-say-30900078

'I will fight doctors who say it is time for me to die' says teen girl

A teenage girl has fought courts and doctors after outliving an estimate of 'days to live' for over a year. She suffers from the same disease as baby Charlie Gard did, and claimed that her life can be saved with experimental treatment.

https://www.mirror.co.uk/news/uk-news/i-fight-doctors-who-say-30900078

OP posts:
Thread gallery
5
TheShellBeach · 24/09/2023 11:10

@saffronsoup why do you think that the palliative care given to your friends' 19 year old would not be the same kind of palliative care offered to Sadiksha?
The answer is really that she herself had a very wrong impression of what palliative care would have entailed.
Because she thought that the doctors planned to give her an overdose of morphine, you have decided that that premise is correct.

MavisMcMinty · 24/09/2023 12:11

I worked in ICU before moving into palliative care, as did a lot of my cancer/palliative care colleagues. In both fields the patient and their family are the focus, it is “total patient care” at its absolute finest. They are vastly different environments yet fundamentally the same. When treatment became futile, we were honest. I never stuffed anyone full of morphine to make them die in 35 years of nursing, nor has any other nurse I know, and it’s sickening to read some of the ignorant judgemental posts on this thread.

mycoffeecup · 24/09/2023 17:20

nolongersurprised · 23/09/2023 23:00

This is why I don’t think an army would have gained traction. She would have looked so severely unwell/disabled - not just like she was sleeping and could have woken at any time - that she wouldn’t have won over “hearts and minds” in the same way as the other cases.

Plenty attracted to the armies for Charlie, Alfie and Archie, and it was obvious to anyone with half a brain that they were dying.

New posts on this thread. Refresh page
Swipe left for the next trending thread