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Original poster

Please hold my hand, I’m so scared. Awaiting urgent pelvic/ovary ultrasound results

36 replies

legofansmum · 28/08/2023 14:26

I’ve been suffering from heavy irregular periods, bloating and discomfort for a while, I’ve just thought it was maybe the peri menopause - I’m 41.

The past two weeks it’s intensified,Friday I was in agony went to Dr, she took a urine test which was positive for pregnancy- that was a false result as not sexually active and had blood in urine. She was worried about appendicitis though given symptoms. She rang the hospital and I was sent to a surgical ward for tests. Had an urgent CT scan, it showed a nodule on spleen and on lung, apparently these can just be incidental, follow up scan in 3 months for those.

They said that there were very large cysts on my ovaries and they can feel them as masses .They took further bloods and my height & weight. They said I’d have urgent ultrasound as they give clearer pics and I’d be discussed at their (gynaecology ) multi person meeting . Sent home Saturday night.
Phone call Sunday asking me to go for ultrasounds today. Had one with full bladder and then a vaginal one with probe. The lady said she’d write report today and send to gynae. She said I should hear back soon given urgency of referral.

I can’t stop crying and shaking, my heart is racing and I’m convinced I’m going to die as I’m petrified it’s cancer -leaving my son, who has ASD. I’m a single mum and petrified.

Has anyone else had similar please? The fact I was referred for an urgent Bank Holiday scan has made me think it can only be cancer.

I’m sorry to ramble, but I’m desperate.

Thanks for reading.

OP posts:
NowWhattt · 31/08/2023 08:35

I’m sorry you are going through this op. One day at a time is all you can do.
I understand how you feel: I have horrendous anxiety at the best of times and am about to have an urgent op to remove a mass and have biopsies taken.
Best of luck to you- keep posting and keep us updated.
Hugs xx

sentinent · 31/08/2023 08:43

legofansmum · 30/08/2023 21:11

Thank you so much for your kind responses, they really helped.

I had a phone call from the hospital.
I have two types of cyst - one is 9 cm and one 10 cm.

One is suggested to be an endometriosis type one that is known as the chocolate filled, the other is fluid filled but with different compartments that they don’t know what the compartments are yet.
Raised blood tests, but that might not necessarily be cancer, could be endometriosis based.
It’s being put before the next multi disciplinary team meeting which depending on cut off point for referral, could be end of this week or end of next week.

I have had some blood test results come back which aren’t great either.

My Dr has prescribed me Diazepam as I was having horrendous anxiety attacks, they are taking the edge off.

It’s such a scary time.

That's not too bad news OP! So one cysts is heterogenic. That will probably have to come out & they'll send it for histology, but not necessarily cancer. However even in the unlikely event it is, it hasn't spread!

rainbowstardrops · 31/08/2023 08:55

Hand hold here @legofansmum Flowers
Hoping your results bring positive news x

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nowtygaffer · 31/08/2023 09:12

Hi OP, I had a benign ovarian cyst (and ovaries) removed last year. It had fluid filled compartments. In my experience the doctors tend to think of the worst case scenario and treat accordingly. I really hope you are ok, the waiting is horrible. Try to focus on the fact that you are getting whatever it is treated and that's a good thing. All the best.

Robotalkingrubbish · 31/08/2023 12:50

It’s great that your GP is looking after you now @legofansmum . This is the worst part, tests and waiting for results. 💐

Original poster
legofansmum · 31/08/2023 13:07

Thank you ladies. @nowtygaffer how long did you wait for your surgery please?

@Robotalkingrubbish the waiting is tougher isn’t it!

OP posts:
nowtygaffer · 31/08/2023 14:35

I think it was about 4 months wait. They did am MRI scan so think they were fairly confident nothing sinister. But they still wanted it out!

Reepicheepy · 31/08/2023 20:09

OP - just to say I also had slightly funny bloods which really freaked me out, but mine ended up being just a fibroid. Hoping all will be ok and as simple as possible to treat for you.

watchingfromthesideline · 31/08/2023 20:14

Have they done a CA125 blood test?

NowWhattt · 02/09/2023 20:16

My surgery is on Monday . Hope you’re doing as best you can op 🩷

Robotalkingrubbish · 03/09/2023 11:31

watchingfromthesideline · 31/08/2023 20:14

Have they done a CA125 blood test?

The CA-125 is not an accurate test for cancer. My CA-125 was normal yet I had a 10cm x 6cm malignant tumour on my left ovary.

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