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Autistic DC really struggling with build up to secondary school

10 replies

TheBeautifulTeapot · 21/08/2023 09:45

Morning all.

I've had a really hard weekend and this morning has been very difficult too. Is there anyone who can offer a bit of a virtual handout?

My DD is autistic and starting secondary school next term. She found the leaving process really emotional last term but we've had a fairly settled holiday on the whole.

Over the past few days, she's been really anxious and upset about the idea of secondary school getting closer. We need to start getting bits and pieces ready and that's a trigger for her.

She's very reactive and I totally understand why but we're walking on egg shells trying to keep her calm and regulated.

I've spent part of this morning crying in the bathroom into a towel which is really not like me. She knows I'm upset and this unsettles her even more, as she feels it's her "fault".

It's just really tough and overwhelming at the moment and I don't feel like I'm handling it well.

I assess for autism and am a specialist in this field, so it's not knowledge and understanding I lack. It's just really hard seeing her this way.

OP posts:
TheBeautifulTeapot · 21/08/2023 14:17

Bump 😔

OP posts:
OriginalUsername2 · 21/08/2023 14:24

Its so hard when you feel their pain! My dd is now 15 and I’m just starting to feel more separated from her and not so gutted when she’s gutted, more like this is not my pain, I’m just here to support and she’ll get through it.

Does she have anyone to go in with on the first day?

Sirzy · 21/08/2023 14:26

Can you get in touch with the Senco at the new school to discuss her worries and see if they can ease any of them a bit?

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ShutTheDoorBabe · 21/08/2023 14:31

I understand. One of my dc has adhd and traits of autism and we went thought the same thing when he started high school last year.

I can't really offer much on the way of advice because different children will of course respond to different things but I can say that although he doesn't like school, he doesn't absolutely hate it either now. He found a group of friends who are similar to him and has been to their houses a few times as well as walking to and from school with them and I think this has helped him.

The build up is horrible and stressful and it's similar to that feeling you get when you are about to start a new job; the worst part is that you can't just start early and get it over with yet neither can you put it off!

TheFormidableMrsC · 21/08/2023 14:35

Have they not offered a SEN transition day? My son did one late in the summer holidays which took a lot of the first day fear away. Admittedly it took him a few weeks to settle and we've had a few bumps but he's well supported. I'd speak to the SENCO. I hope she's ok, bless her, I do feel your pain Flowers

Whatsthepoint1234 · 21/08/2023 14:36

I feel you OP. My ds is 13 and going into year 9 and the anxiety the past few days has been overwhelming (he’s starting GCSEs and is quite a high achiever but he’s worried he’s not going to do well). Luckily he joined his primary school in year 5 and was bullied so he was happy to leave but he still struggled with the transition as he hates change. Starting secondary is already scary, even more so if you have ASD (change of routine etc) and it’s normal to feel scared but ASD makes it so feckin hard to deal with. We’ve had three meltdowns this week over what others would see as minuscule things and I feel the same, even the smallest change in plans can trigger tears. It’s the worst thing in the world seeing your child upset and not even knowing what to do. I honestly find myself doing the same thing sometimes. Ds is upset today as I’m back at work today after some time off and he came down at 5 this morning begging me to stay. He’s developed an eating disorder and what is likely OCD or a phobia and I worry me going to work compounds his stress. I don’t know what I’m saying OP, I guess I just want you to know your not alone, it’s fine to get upset sometimes and you sound like an amazing caring mother to your dd. Not really asd advice but could you get a relative to take her out if she’s stressed? I’ve got dh taking ds to a museum and shoe shopping today as a distraction!

itsmyp4rty · 21/08/2023 15:13

I think you really, really need to try to be strong here, turn your whole mind set around and be ultra positive about secondary school, coloured pens, fabulous pencil case and whatever else she needs. I think walking on egg shells and avoiding the topic because it's difficult is probably the worst way to handle it, because you're making it a bigger and scarier thing by it being 'the thing that no one can talk about'. The more it's talked about the better I think, just start in tiny steps.

Carry on the ultra positive even if she's not warming up to it - there's every chance she'll slowly come round. Be excited on her behalf, tell her the things you loved about secondary school, tell her about your favourite subject, tell her about what the crazy kids got up to and the funny things your teachers did, talk about what she's enjoyed at primary school and how much more of it she'll get at secondary school. Teach her how to tie a tie if she needs to learn, talk to her about the lay out of the school, look at the school website and find out any useful information from there that might help prepare her - obviously not all in one go so she's totally overwhelmed though.

Has she had visits to the school beforehand? DS had extra settling in visits before starting for anyone with SEN or who was very anxious, it helped so much. If she has remind her of those and talk about anything she did there that she enjoyed and how well she did. DS fell in love with the library not long after he started and the librarian is amazing - it's been his sanctuary for the last 7 years, he will miss it so much when he leaves. It would probably be great for her to have a safe space where she can decompress if she needs to so worth thinking about.

Has she got any primary school friends that she's moving up with that could come over to make her feel better or anyone she could go in on the first day with? Will she have someone from her primary school in her tutor group with her does she know? DS has always been quite happily a loner which worried me hugely at first but I had to accept he was ok - and now he's just started to catch up emotionally with his peers and is seeing that he can be sociable - just that certain ways of socialising suit him better than others. It just depends on your daughters personality.

Could you plan something special for the end of her first day - not anything big or busy but her favourite cake in front her favourite film when she gets home or something. Something to look forward to and decompress with at the end of the day.

Use the things she loves to make it easier - she loves art then get her loads of art stuff and talk about how great the art department will be for example. If she loves something random see if you can find a pencil case, rubbers etc with it on. Just try to make it all fun and positive.

I would also at some point talk through some of the problems she might face in a positive light and ways she could handle them - for example what would she do if she couldn't find her classroom? (Reception are really helpful in ds's school for help with finding your classroom). Don't panic! is always a good reminder and tell her that teachers will expect students to get lost and be late sometimes.
If you can give her ways to handle some of the problems she might face then she will feel much more prepared should they come up.

You could ask her what some of her worries are and think of ways to deal with them together. Think about what she might say beforehand though so if she says 'I'm worried no one will like me' you don't burst into tears! If she says that then remind her of the friends she had at primary school (if she did) or tell her everyone else will be worried about that too, it's perfectly normal and good ways to meet new friends are to chat to the person sitting next to you in class and get to know them, or join some clubs and chat to people there about what you're doing, or she could take something to do at breaktime if she doesn't want to be sociable or can't find a friend such as read a book or watch something on her phone,

Good luck! Hopefully the anticipation will have been much, much worse for you both than he actual event! If there are difficulties then don;t hesitate to contact the SENCO, tutor teacher etc and talk about what could be put in place to help.

MuggleMe · 21/08/2023 15:20

I'm where you are but with a 9yo heading to middle school and I hugely sympathise. She's been so upset all year at the thought of leaving the friends it took her years to make, and making new ones and coping with a bigger school. I asked her to clear her drawer of lower school uniform and she looked at me with fear and asked if it was school tomorrow (despite knowing it's not for weeks).

Her ehcp has been finalized and I hope to have an informal meet with her form tutor on the second inset day with her to ease her in (agreed in principle but can't be arranged before the first day). I'm bricking it.

barbie3 · 21/08/2023 16:41

My son is massively anxious and has been for weeks. We have a meltdown pretty much every day and lots of 'I won't be going to X school'.
The wait is not helping. I just want him to start already. In our case I'm relatively confident if I can get him past the first 2 weeks we'll be ok.
I'm massively sympathetic but I struggle to stay that way when it's daily and appears to be so disproportionate. He is moving to a specialist provision so not go worries about the move other than getting him through the door.

TheBeautifulTeapot · 21/08/2023 17:18

Thanks so much for the responses.

I really really appreciate it.

It's made me feel less alone in this. Parenting is so hard sometimes.

When I said "walking on egg shells" I meant as in, she's very reactive and can get very stressed at any moment about things that wouldn't usually be an issue. I didn't mean we weren't talking about secondary school and the upcoming transition. We are. She's wanting to talk about it a lot, which is positive but hard as she's so anxious.

She had extra transition visits last term. The school don't offer anything over the summer, which is a shame.

Again, thank you so much for the personal experiences and just general "I get that" responses.

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