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When do you push for more help with Chronic Pain/Degenerative conditions?

1 reply

PhantomUnicorn · 20/08/2023 13:52

re-posting this here as its been in GH for 4 days and no-ones replied.

I have degenerative disk disease. It affects my L5/S1 mostly, causes referred pain into my right hip, and sciatica, mostly down the right side, but it does also sometimes affect my left.
I also have what we think is arthritis in some of my joints. definitely in my right ankle from multiple sprains.
I'm also learning I am probably hypermobile.

I use a walking stick on bad days. Yes, I am overweight but when I went for an MRI 8 years ago I was told by my specialist that it made no difference to my mobility or the degeneration of my disks (I have the desiccated crispy disks of a 70yo) and had not contributed to my condition.

I'm finding more and more that I'm deteriorating recently, having to spend more and more time recovering if I go out and do anything more active than normal.

This is ridiculous.. last time I approached the Dr they did an x-ray and said 'no change' so I think I need another posting through the MRI.. but I don't know how to fight my corner to push for it this time.. it took me years to persuade them last time as they kept fobbing me off with 'lose weight'.

I've been in pain now for 25 years, I'm tired, and I hurt, and I'm fed up of having to spend days recovering.. I'm only 42 ffs, my mothers only response (complained to her when I took her shopping the other day) was 'you're not getting any younger, its only going to get worse' gee.. thanks mom, lol.

But yeah.. do I just grit my teeth, or try and push for something from the Dr.. another MRI or something.. don't know what though.

OP posts:
Sssudio · 20/08/2023 14:02

I havé hyper mobile EDS, have worn out facet joints, and collapsed vertebrae in lower back and neck.

i pushed and pushed and was finally referred to a specialist hypermobility pain management program. I learnt how to move safely and manage my pain with mindfulness and movement.

It has been life-changing, honestly, beyond what I could imagine.

If you look in you tube for chronic pain meditation you’ll find some exercises to try. And sorry, losing weight really will help (I say this as someone also overweight).

Do you have any other symptoms of peri menopause? HRT has made a huge difference to my pain

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