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Tonsillectomy as an adult - how bad is recovery?

215 replies

HermioneKipper · 17/08/2023 15:42

I’m going to have my tonsils out shortly after lots of horrible episodes of Tonsillitis as an adult. I was hospitalised last time.

Ive been thinking that if I can cope with Tonsillitis then surely I can cope with having them out?! But even the consultant told me that the recovery is awful.

Is it really horrific? Think I need to be prepared for the level of pain 😭

I’m 39

OP posts:
Ilikeviognier · 19/08/2023 18:28

@HermioneKipper following with interest. When are you having this done? I’m just recovering from my third bout of quinsy in three months (hospitalised every time) so now on an urgent tonsillectomy list (both private and nhs to see which comes up first!). I kept wondering if the recovery is worse than the quinsy or not…🙈😳

Ilikeviognier · 19/08/2023 18:29

Sorry KEEP wondering….

Ilikeviognier · 19/08/2023 18:31

@NeverDropYourMooncup have you had yours out due to quinsy? Very interested in your experience if so!

Interested in this thread?

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HermioneKipper · 19/08/2023 18:45

Ilikeviognier · 19/08/2023 18:28

@HermioneKipper following with interest. When are you having this done? I’m just recovering from my third bout of quinsy in three months (hospitalised every time) so now on an urgent tonsillectomy list (both private and nhs to see which comes up first!). I kept wondering if the recovery is worse than the quinsy or not…🙈😳

Having it done next week and now TERRIFIED 😱

But I can’t keep getting Tonsilitis that takes me out for a week at a time

OP posts:
Ilikeviognier · 19/08/2023 18:51

@HermioneKipper how long have you had to wait for it out of interest? And I don’t blame you for being scared.however as you say you can’t go on like that - how often have you been getting tonsillitis? I was completely fine until 3 months ago when I suddenly started getting repeated quinsy for some reason.

HermioneKipper · 19/08/2023 18:54

Ilikeviognier · 19/08/2023 18:51

@HermioneKipper how long have you had to wait for it out of interest? And I don’t blame you for being scared.however as you say you can’t go on like that - how often have you been getting tonsillitis? I was completely fine until 3 months ago when I suddenly started getting repeated quinsy for some reason.

Getting it done privately as I was told I couldn’t get a referral unless I had it 7 times in a year or 5 times in 3 consecutive years. I missed out on the consecutive year thing as one year I only had it 3 times.

Have been getting it regularly since my twenties and I’m now almost 40. Had a quinsy once and it was horrific. Everytime I say I’m going to scrape them out personally but now I seem to be forgetting just how awful it is.

OP posts:
Ilikeviognier · 19/08/2023 18:57

@HermioneKipper yes having quinsy on repeat has been one of the worst things I’ve ever experienced….hence wondering if the recovery from the op will be the same as that or worse- or what!

NorthernChinchilla · 19/08/2023 19:02

Had them out in my early 20s. Still occasionally get strep throat, but NOTHING like the tonsillitis and quinsy previously.
Recovery not too bad- felt a bit mad having to eat hard food, but it works in terms of scraping the scabs off (sorry for anyone eating dinner Grin)
I took a bag of painkillers home with me, which were pretty hardcore. Main issue was the constipation it caused, went once in a fortnight!

Definitely worth it, you'll be so grateful once the recovery is done with.

NeverDropYourMooncup · 19/08/2023 19:06

Ilikeviognier · 19/08/2023 18:31

@NeverDropYourMooncup have you had yours out due to quinsy? Very interested in your experience if so!

I had the most painful sore throat I'd ever had in my life, one where I could not swallow, was crying with pain and didn't want to breathe anymore - I made an appointment, got a locum GP who refused to even look 'as it's going to be viral'. I went home to cry facedown in a rolled up towel, taking tiny breaths in through my nose and drooling because swallowing my own saliva might as well have been battery acid.

Eventually, it went down after some awful tasting gloop came out, but I felt as though I was eating and breathing through a drinking straw and couldn't get my toothbrush to the back of my teeth, along with breath of evil, all of the time.

The dentist contacted the GP who referred me to ENT without seeing me, where they stuck a camera up my nose and referred me for surgery, which took several months of further painful throats and sleeping propped up, as I felt like I was suffocating if I laid down. I went in for surgery, it didn't go smoothly, but nobody had looked into my mouth for about a year by then.

After the operation, the surgeon told me that 'I cut and I cut, but I just kept meeting more and more infection' and that the infection was underneath extensive scarring from an untreated quinsy, in the process of infiltrating into the tissues of my neck/throat/mouth. He asked 'Why didn't you do anything about it?' - I tried, but the GP said it would be viral and wouldn't listen. When I could finally look, everywhere including the back of what looked like a cavern compared to my original mouth was black.

I felt pretty rough afterwards, but after two weeks, I was pretty much back to normal, except no sore throats, a change in my voice, no snoring, no choking and I could brush my molars for the first time in memory. So I still think it was worth it - I just wish that I had ignored the 'it's just a virus, stop being so dramatic, I'm not even going to look at it because I know what it is' twat locum and gone somewhere else. I did moan at the senior partner about her at the GP's, as I think he might have received a slightly pointed discharge letter going by how I was asked about the surgery at my next appointment for something entirely unconnected.

tl;dr The quinsy was shit, the operation wasn't simple, the recovery wasn't fun, but it was worth it in the end.

Ilikeviognier · 19/08/2023 19:20

@NeverDropYourMooncup yikes. Poor you! That untreated quinsy sounds terrible!

vipersnest1 · 20/08/2023 21:11

@NeverDropYourMooncup, that saddens me but doesn't surprise me - DC1 fell ill and ended up in hospital where they had a battery of blood tests.
Nearly all of them were abnormal and at the bottom of the report there was a line which said 'X% of patients testing positive for Y antibodies have Z condition'.
After googling it was obvious something was seriously wrong, so I called the GP surgery, to be told airily by a GP 'it's fine for them to wait for a few weeks for an appointment' - six in this case, but I knew that treatment needed to be started ASAP as the condition could cause kidney failure and death within four months. Luckily I trusted my own instincts and began ringing around to get someone to see DC. The outcome was that DC was admitted to hospital two weeks later, biopsies were taken and treatment was started immediately.
DC continued to test positive for antibodies for two and a half years, but have been in remission for several years now 🤞
I shudder to think what might have happened if I'd accepted the GP's dismissal.
Sorry for the slight derail, @HermioneKipper.

KingsArmy · 20/08/2023 21:31

Similar to you @Ilikeviognier my daughter has been completely fine her whole life and then on the 2nd January last year had her first quinsy, couldn't even swallow her own saliva or talk, hospitalised for days, drip etc etc. When this happened for the third or fourth time in as many months she was given the green light for removal. First time was cancelled as she had tonsillitis so was given preventative antibiotics as she was flaring up every two weeks at this point (failed her college year too due to missing so much time from January onwards).
Recovery was brutal but it was a year ago to the day last week and she has been fine ever since......she would say it was worth it now, but in the week or so afterward the op I'm not so sure.
I had to remind her frequently in the week afterwards of the relief at not having a bloody massive needle down her throat aspirating all the pus out the quinsy.

vipersnest1 · 20/08/2023 21:54

@KingsArmy, I think that's the story for many off us - brutal as an adult, but worth it to be free from the constant infections.

Ilikeviognier · 22/08/2023 17:58

@KingsArmy that’s very interesting Thankyou! Did they ever say why she was suddenly getting quinsy every 5 minutes?

Ilikeviognier · 22/08/2023 18:01

I must admit I’m not looking forward to the op/ but equally I can’t go on like this!

Good luck @HermioneKipper come back and tell us how it’s going (be truthful if it’s awful!) I hope not though. X

weebleswobblebuttheydontfalldown · 22/08/2023 18:25

I had them out as a 20 year old, my tonsils were really big too. Ended up going home and thought I was fine but by about day 5/6 it got much more sore and ended up at GP in a state - then got on top of pain with soluble stuff and alternating different ones. The key is keeping ahead of the pain so it doesn't break through really badly or it takes a day to get back to a manageable level. I was fine after 2 weeks tho and haven't looked back!

FOffULEZ · 22/08/2023 19:05

Like with everything else, everyone reacts differently
I had mine out when I was 28 and it wasn't too bad at all, just keep your painkilliers (I had co codomal) topped up.
No mention of morphine, nowhere near that bad for me

HermioneKipper · 28/08/2023 21:25

I’m on day 3 and my throat so sore I can’t swallow even with codeine.

Is there anything else I can request from the GP tomorrow?

my uvula is so swollen it even hurts to swallow sips of water

OP posts:
vipersnest1 · 28/08/2023 21:38

@HermioneKipper, did you get the difflam spray I mentioned? It's available OTC and really works. I didn't have it immediately after my tonsillectomy as an adult, but got it when I was in the same position as you about a week in. I also got some when I got an infection in my uvula, which was not only painful, but it was so swollen it was causing me to retch continuously.

clipclop5 · 28/08/2023 21:50

@HermioneKipper Our consultant recommended that if she was too sore then to ask the GP or contact him to arrange a prescription for a short (3-5 day) course of steroids to dampen down the inflammation + help with pain. Maybe worth asking about?

HermioneKipper · 28/08/2023 21:52

vipersnest1 · 28/08/2023 21:38

@HermioneKipper, did you get the difflam spray I mentioned? It's available OTC and really works. I didn't have it immediately after my tonsillectomy as an adult, but got it when I was in the same position as you about a week in. I also got some when I got an infection in my uvula, which was not only painful, but it was so swollen it was causing me to retch continuously.

Thanks have been using difflam but hasn’t seemed to make much difference ☹️

OP posts:
HermioneKipper · 28/08/2023 21:53

My uvula is so swollen that I can feel it constantly and feels impossible to get anything past it, even water

OP posts:
HermioneKipper · 28/08/2023 21:54

clipclop5 · 28/08/2023 21:50

@HermioneKipper Our consultant recommended that if she was too sore then to ask the GP or contact him to arrange a prescription for a short (3-5 day) course of steroids to dampen down the inflammation + help with pain. Maybe worth asking about?

Oh thank you, I’ll get my husband to phone the gp tomorrow. I had steroids when I was last hospitalised with Tonsilitis and they really helped, aside from the fact I then couldn’t sleep!

OP posts:
vipersnest1 · 28/08/2023 21:56

@HermioneKipper, make sure you're aiming it at your throat, not the back of your tongue. It takes a bit of practice.
Make sure you are keeping on top of the pain, including taking anti-inflammatories if you can.
Ice pole type lollies are also good, as they cool and soothe.

Ilikeviognier · 30/08/2023 20:16

@HermioneKipper is it as bad as you expected it to be? 🙈 I hope it doesn’t last xx