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Colonoscopy results can anyone make sense of these

19 replies

Mummmyy · 22/07/2023 10:40

Hi just as title says I had a colonoscopy and they didn't tell me much just gave me a piece of paper and said my results can take up to 12 weeks results are as follows...

Site A... Terminal ileum
Specimens: 2x biopsy

Site D... An area extending from the caecum to mid transverse.
Specimens: 4x random biopsy

Site E... An area extending from mid transverse to the distal sigmoid.
Mucosa: patchy mild erythema; multiple aphthous ulcers.
Specimens 4x random biopsy.

Site F... An area wholly within rectum
Specimens: 2x biopsy

Any help translating this to English I would appreciate thank you

OP posts:
ComeTheFckOnBridget · 22/07/2023 10:48

You posted this the other day didn't you?

They took 12 biopsies from different areas of your colon, found some ulcers and some patches of mild inflammation.

Now this could be indicative of a form of IBD such as ulcerative colitis or it might be something else, the biopsies will tell them and they will let you know.

Hope you're ok, don't stress too much about it nothing in there sounds like you need to panic

Mummmyy · 22/07/2023 10:57

Did I? I am so sorry I have forgotten what groups I have posted on im just really stressing out. As they didn't tell. Me anything will any of these biopsy be checking for cancer or will it all be for ibd? Thank you and again I do apologise for sounding like a broken record thank you for commenting.. X

OP posts:
gillybean2 · 22/07/2023 11:01

Can’t help with the translation sorry but just to say my results took 4 months to come back after I was told 6-12 weeks. I was back in hospital by then (ulcerated colitis flare up but I didn’t know that’s what I was having then).
Hopefully you’ll hear sooner but maybe contact your surgery to see if the GP can translate or if there are phone numbers on the letter for your appointment look for a secretary or consultant on there if you don’t already know who they are.

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Mummmyy · 22/07/2023 11:04

Oh wow @gillybean2 that's terrible hope your okay and it's a disgrace making you wait that long I have made an appointment with my gp on wed to see if she can help me I was just hoping someone on here may have some insight while I wait thank you for commenting and hope your dealing with it all okay.. Xx

OP posts:
GrannyAchingsShepherdsHut · 22/07/2023 11:09

Does this help OP? It will show you where each site is.

I've had loads of these for ulcerative colitis, but they've always talked me through the findings immediately afterwards in recovery, when they've given me the print out you've got. It's a shame they've not explained it to you at all.

Colonoscopy results can anyone make sense of these
Mummmyy · 22/07/2023 11:24

Thank you @GrannyAchingsShepherdsHut they didn't tell me anything at all which I thought was strange I can see where they have took all biopsy from but it's just what they have found and what the biopsy are for I would like to understand thank you so much.. Xx

OP posts:
Kettering · 22/07/2023 11:25

That's a description of four areas of the bowel they looked at.
Eg terminal ileum is just a part of your large intestine - they name the different bits. You can see it in the diàgram pp posted.

They took biopsies, different numbers in different places, hence 2x means two biopsies 4x means four taken from that area.

In one part of the bowel they describe what they saw. Erythema is reddening. Aphthous ulcers are the type you get in your mouth too I think. I guess the other areas were clearer since they don't list anything (but I'm not a doctor).

The results of the biopsies they took will take a while longer.

user1471505356 · 22/07/2023 11:49

As mentioned by PP nothing sounds alarming.

SgtPercyTwentyman · 22/07/2023 11:59

Sounds like every colonoscopy I have ever had (& I've had 10). There's nothing to worry about here. You need to get the results to find out what the situtaion actually is and, until those are available, nobody can tell you.

JenniferBarkley · 22/07/2023 12:32

Mummmyy · 22/07/2023 10:57

Did I? I am so sorry I have forgotten what groups I have posted on im just really stressing out. As they didn't tell. Me anything will any of these biopsy be checking for cancer or will it all be for ibd? Thank you and again I do apologise for sounding like a broken record thank you for commenting.. X

My dad had bowel cancer three times due to a genetic condition, and other family members have had it too. Each time they were told directly from the scope, the doctors knew what they were looking at.

I'm not a doctor and obviously the genetic condition will have meant a benign tumour was vanishingly unlikely, so perhaps others will have had a different story but if they were my biopsy results I wouldn't be worrying about cancer based on our family's (extensive haha) experience.

GrannyAchingsShepherdsHut · 22/07/2023 12:34

OP, why did you have the colonoscopy? Did they tell you what they suspected or were hoping to rule out?

I am not diagnosing you. But it sounds very similar to how my bowel presented when I first was diagnosed with Ulcerative Colitis. They explained to me what they were doing and why during the diagnosis, which seems to be sadly lacking for you.

I remember the utter terror I felt while waiting for the first appointment and thinking it was something like cancer, so I really feel for you.

I was told, when they started investigations into my symptoms, that they suspected UC, from looking just inside my bottom with a very very short endoscope. Have you had that, or did they just go straight to colonoscopy? I was told that with UC, it always starts at the end of your large intestine, and as it worsens it spreads further back. As it improves, the length of colon affected gets shorter, but always the last bit to heal up is the bit closest to your rectum. It only affects your colon. If you imagine your intestine as a tube made up of loads of layers, one inside the other, UC ulcers are in the layer that's closest to the inside, the surface they can see on a colonoscopy. It sounds like your bowel has redness and ulcers on approx the last half of your colon.

Crohns disease is similar, but can affect anywhere in your digestive tract, from mouth to bottom. It can also affect any of the layers. So the lesions might be there but completely hidden from view because they're on the middle of the sandwich, so to speak.

So when I had my first colonoscopy, they had a look, could see ulcers that looked like UC, and took biopsies. But they also took biopsies from healthy looking bits to check it wasn't Crohns, with hidden lesions. Or that there weren't lesion too small to see with the camera that would show up under the microscope.

Fraaahnces · 22/07/2023 12:42

There is nothing indicating any suspicion of cancer in the language used. When I have had colonoscopies, if they find a polyp or a suspicious lesion, they write what they found and that they biopsied that specific bit. Your worry might make your symptoms worse. Try and relax until you see your GP. Also, no news is good news re results. They hurry through the ones they’re worried about.

Mummmyy · 22/07/2023 13:31

@JenniferBarkley thank you for commenting sorry to hear about your dad's experience. I know I shouldn't be worrying the way I am I am just over anxious.. X

OP posts:
Mummmyy · 22/07/2023 13:34

@GrannyAchingsShepherdsHut I had the colonoscopy due to blood through stools everytime I have a bowel movement I also scored >400 on a qfit test they just went straight to colonoscopy and im so disheartened that they didn't explain anything to me it would have at least let me know what I am dealing with thank you so much for your Insight and for commenting it does help me understand it a bit more for me i really appreciate it. Xx

OP posts:
Mummmyy · 22/07/2023 13:38

Thank you @Fraaahnces thank you I know I need to try stop worrying I have gp on Monday and hopefully she can break it down for me thank you.. X

OP posts:
JenniferBarkley · 22/07/2023 13:42

Mummmyy · 22/07/2023 13:31

@JenniferBarkley thank you for commenting sorry to hear about your dad's experience. I know I shouldn't be worrying the way I am I am just over anxious.. X

Oh perfectly understandable, I think most people worry about bad news while waiting for test results Smile Hopefully you get a diagnosis, and one with a straightforward fix!

Rockschooldropout · 22/07/2023 13:44

I was a nurse on a surgical ward many years ago specialising in vascular and gastrointestinal medicine - I was also the stoma link nurse .
I’m surprised they didn’t talk you through the colonoscopy as they did it unless you were sedated ? However try not to worry - it’s standard for them to take biopsies as they go round to check for changes and as PP have said , they are just describing the sections of the bowel that have been examined
I’m not diagnosing you but it sounds as though there is inflammation and possibly ulcers which would be indicative of ulcerative colitis , which is treatable and not cancer .
If you get a lot of mucous in your stool as well as blood that can be a sign

Kettering · 22/07/2023 14:07

Crohns can go deeper into the tissue than ulcerative colitis so what they see on biopsies can help distinguish these conditions.

ComeTheFckOnBridget · 22/07/2023 23:55

@Mummmyy I'm sorry you're so stressed by this, op and agree they should have talked you through the results. But, like others said, if anything looked cancerous i think they would have told you at the time.

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