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Health anxiety/OCD - how the hell do you control it?

17 replies

complexmess · 02/07/2023 17:29

For full disclosure, I'm bad enough that I've been to A&E 6 times since April - 4 times in June alone - and know 111 ie when I start speaking to them they recognise me now. I've got a CMHT/CPN and care plan etc.

There is a background of v complex and prolonged trauma in childhood, I've been on a waiting list for therapy for over a year. Now being told I've got to do 2-3 months of intensive CBT before I can start doing proper psychology therapy.

I've previously had at least 11-12 bouts of therapy (admittedly, of that, only three times has it ever proven useful.)

I've had anxiety problems since I was about 3 years old which fits with my childhood experiences. That's now about 30 years.

I'm absolutely exhausted with constantly worrying about illnesses. The current worry I've got I've had for over a decade. That's a decade of having the same worry most or all of the time. For at least 5 years it's had a profound effect on daily life, i.e. I don't leave the house, exercise, some days I can't even stand up from bed because of it.

I try to switch worries just so I can give my brain a break but I can't. Even though I work in the NHS and know there's millions of things can go wrong.

Have tried the DARE method but my brain just says, 'what if I'm the one person where they've got it wrong and there is something serious?'

Used to have different worries about contamination and poisoning, and other intrusive thoughts. Used to eg wash my shoes 6 times after coming in from outside in case I had stood on something poisonous. I wish I could go back to that as that was easier to deal with (cleaning and checking).

I've had lots of different SSRIs, have been told no-one is willing to change my meds just now as it'll potentially make things even worse in the short term. Never been admitted to hospital directly for mental health, never been an inpatient in a psychiatric unit. It's never been offered, and I was brought up with my mother telling me stories about her own inpatient stays in the 80s that's terrified me of ever asking.

It's having a negative effect on relationships as I cling to the 2-3 people I feel safe with, if I'm anxious enough I'll text/email them every single day in some sort of attempt to feel reassured and safe. I've just had to email 1 friend apologising profusely for emailing her 25 times this week.

I want a normal life, want a job, friends, a partner and kids, to be able to just get up and do the dishes without worrying I'll become seriously ill whilst doing so.

I don't know what to do anymore and am so, so tired and feel so alone. NHS just say, watch a film or have a cup of tea or a shower, or go for a nap. But when you wake up its just the same all over again.

OP posts:
complexmess · 02/07/2023 21:39

Bump, sorry

OP posts:
GeneHuntsCowboyBoots · 02/07/2023 22:29

Big hugs to you. I have both OCD and Health Anxiety and they are vile to live with. I’m lucky that mine has respnded to SSRIs and the Dare method so are generally well controlled but I still have bad times.

I don’t really know what to suggest but didn’t want to leave you with no replies. The only thing I would say is how much have you used Dare? I pay for their premium subscription which is great.. but I also found their YouTube videos and podcasts really helpful too. They’re great for explaining why you have the thoughts you do.

complexmess · 03/07/2023 21:08

It’s horrendous. I was suggested by my CMHT to join a support group for people with moderate-severe MH issues, but I spent the entire time wondering if they were trained in CPR if I might collapse. Was meant to go along this morning but couldn’t face it as I knew if I went for a walk I’d come home and my anxiety would be unbearably high for a long time after. I went last week, and then spent all day Tuesday in A&E in a panic. It’s a truly horrendous way to feel.

I’ve spent all day on the phone again today to mental health team, crisis team etc but nothing seems to be changing or getting any better. If anything I just feel worse. I really miss the person I used to be before getting so unwell too. Not nice at all.

OP posts:
complexmess · 03/07/2023 21:10

Re Dare, I’ve bought the book and I’ve got the app… I’ve never paid for the app though. Do get emails about podcasts but if I’m honest I’ve never actually sat and listened to them so maybe that’s something I should try and do.

I get the feeling mental health services are almost fed up with me now, when I ring crisis team etc I just get a ‘what is it this time’ sort of tone of voice which doesn’t make me feel any better!

OP posts:
JudgeAnderson · 03/07/2023 21:29

Oh bless you. I have OCD as well and it's an exhausting prison of a condition.

Gilead · 03/07/2023 21:37

May I ask which meds you are taking?

complexmess · 03/07/2023 21:41

Diazepam, beta blockers and mirtazapine. Was suggested to switch to venflaxine or quetiapine but they need to get cardiology and psychiatry approval first and apparently neither are able to see me for review for a while. GP has been told they aren’t allowed to change my meds, without a psychiatrist say so.

I have been told I’m starting CBT a week tomorrow, with a CPN, but got very close to making a decision I couldn’t reverse earlier which has frightened me, going to try to see someone tomorrow. All I get from GP is a 30 second phone call. Crisis team said to write a diary of how I’m feeling and have a shower.

OP posts:
complexmess · 03/07/2023 21:42

They did say earlier they could whack the diazepam dose up a bit to 15mg a day but I’m fuzzy headed enough, I feel like I’m on another planet half the time and find when I’m showering I have to sit down as blood pressure drops so much. It’s just completely shit.

OP posts:
RedHelenB · 03/07/2023 21:48

Are you scared of dying?

complexmess · 03/07/2023 21:51

RedHelenB · 03/07/2023 21:48

Are you scared of dying?

Yes, very much so. Lost someone last year, likely to lose another within the next couple of years or so. Brought up to believe in heaven/hell. I’m terrified I’ll end up in hell, but the idea of heaven lasting forever terrifies me too.

OP posts:
complexmess · 03/07/2023 21:53

I’m screwing up my life though by being so frightened. I miss normal people things like going for a walk in the evening.

OP posts:
complexmess · 04/07/2023 13:28

Back to same state this morning. Managed to get something small to eat and get a shower (of sorts, I made myself sit down as was having palpitations). GP is phoning in an hour, MH team are going to phone apparently. I’ve got a zoom appt at 3 and then my support worker is coming round at 4. This is hell.

OP posts:
Gilead · 04/07/2023 18:55

Fluvoxamine has a reputation as being particularly good for OCD. It would mean coming off Mirtazipine first though. Might be worth a try.

complexmess · 04/07/2023 19:35

Will ask about that yeah. GP’s answer was ‘have you tried just not worrying?’ and then said, double your diazepam - so now taking 12mg daily as opposed to 6mg. He said once I get in and see CPN next week to start CBT she’ll hopefully be able to help me come down on the dose.

OP posts:
complexmess · 04/07/2023 19:36

thanks ☺️

OP posts:
Gilead · 14/07/2023 22:43

@complexmess How are you?

Hotpinkangel19 · 14/07/2023 23:06

It's awful. Had it since the age of 13-14. 39 now. Taking Venlafaxine long term. It's been amazing for me!

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