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Original poster

PIP renewals - how to complete help please!

11 replies

itsgettingweird · 02/07/2023 10:49

Hi all.

My ds (18) has had his forms through for renewal of PIP.

The form seems too easy which is making me feel nervous!

It seems they only want to know about any changes to his condition.

Also it says to send supporting evidence. Do we need to send the same evidence we sent before or only any supporting evidence of any changes?

Ds has a genetic neurological condition (neuromuscular and degenerative) and autism. So many things won't change as he won't get any better and a few things that have changed don't require anything other than extra physical support (but not to the point I would have thought changed descriptors) and I've just written these in.

Problem with new supporting evidence is other than what's already submitted we don't have any as he's switched to adult services and he's still on waiting list for most appointments and they don't send reports it seems from others. And obviously consultants don't write a load of stuff we already know when they see him - they just action what's needed and off we toddle!

So do they just keep the award at same level if most things are the same or so they then go through all the assessment by phone stuff again?

OP posts:
PrincessofWellies · 02/07/2023 10:51

Write no change everywhere where there has been no change.

Original poster
itsgettingweird · 02/07/2023 11:22

Yes I've done.

What I'm wondering is if they accept then that his award is correct unless I've stated a change? Or can I still expect them to decide to change it from their previous decision based on - god knows - some system they've dreamt up along the way!

OP posts:
eetee · 02/07/2023 11:27

When you say renewal of PIP do you actually mean transfer from DLA to PIP?

If the latter you must give as much evidence as possible and treat it as a new application. PIP and DLA are very different.

Juts guessing based on his age here

Interested in this thread?

Then you might like threads about these subjects:

18 years old SEN
Original poster
itsgettingweird · 02/07/2023 11:29

eetee · 02/07/2023 11:27

When you say renewal of PIP do you actually mean transfer from DLA to PIP?

If the latter you must give as much evidence as possible and treat it as a new application. PIP and DLA are very different.

Juts guessing based on his age here

No. It's renewal of his current PIP award. (With all due respect if it was transfer from DLA to pip I would have said that 😉)

His award he has is until Feb 25 (3 year award) but the forms that arrived yesterday have to be back in 2 weeks 🤷‍♀️

OP posts:
Oblomov23 · 02/07/2023 11:43

Then just put:
no changes.
It's the same.
Same as before.

If it's got worse at all, in any way at all, put that down, if at all possible. It's got worse because ......

Original poster
itsgettingweird · 02/07/2023 11:55

Yes I've done that.

What I'm asking is when people have written no change etc have they just had a renewal at same rate as before or is there another assessment process via phone with all the questions asked again?

Or has anyone had a renewal award at different rate despite stating no changes?

For anyone who's been through any disability system before they'll understand why I'm anxious that this seems too easy!

OP posts:
FadeAwayAndRadiate · 07/07/2023 12:00

My friend had her PIP renewal drop through her letterbox 2 days ago @itsgettingweird And as you said, it's bizarrely easy and straightforward, and seems to be about two thirds smaller than usual. Took her and me an hour and a half to fill in, compared to the usual 5 hours over 2 days. (I always help her with this kind of stuff...) Would have been quicker but we were really careful, and made sure everything was filled in correctly/nothing missed out etc...

And yes, it IS a 'has anything changed at all' kind of form, rather than explain everything, in minute detail over 40 pages. (It's about a dozen pages to fill in now, but some will just have the answer 'not applicable...')

They do still ask a few questions more than once though. They ask something, and you answer, and then 2 pages on they ask the same question, but ask it differently. Possibly to trip people up. I don't know, but it's odd that they ask at LEAST 4 or 5 questions twice.

I do wonder if everyone up for renewal has had this same (much easier/more basic) form to fill in? Or if it's just people they are pretty sure will be staying on it (due to long-term conditions and illnesses that will never go away?) I know they are way behind because of covid - my friend was due to have hers in November last year - so maybe they want to get the ones they suspect will just be an obvious renewal out of the way quickly, with this much quicker 'has anything changed' stance..

As for the supporting evidence. I don't think it's a MUST to get the benefit, or remain on it if you're already on it, moreso a send it if you have it. My friend also has nothing really, other than the write up from her specialist who she sees twice yearly. Don't forget to include the prescription request sheet too. (From the GP.) If you don't have it, ask the GP receptionist, and they will print one out.

Good luck. Hoping for you/your son (and my friend) that this is just like 'procedure' to make sure you still live where you say, and you still qualify etc... and the PIP will just continue....

Original poster
itsgettingweird · 07/07/2023 15:52

Thanks.

Yeah it seemed too easy 🤔🤣🤣🤣

Like there must be a catch somewhere!!!
Mint as you say for long term conditions they know won't change it's hopefully that they've realised an easier system is required.

We have no new evidence since we did the original claim - have you sent the old evidence off again?

Can send repeat script

OP posts:
FadeAwayAndRadiate · 08/07/2023 19:54

Hmmm, I don't remember sending any 'evidence' for my friend @itsgettingweird The DWP asked her for details of her GP so they could access her medical records, but she has been on disability benefits now since around 2008 as she had a lifelong chronic health condition. She was on incapacity benefit originally, and then went onto DLA (as well,) after a couple of years on incapacity benefit. All she needed at the time was a sick note from the GP I think (to say she was on sick indefinitely,) and benefits coughed up.

Incapacity benefit changed to Employment Support Allowance around 6 years ago, and DLA changed to PIP 3 years ago. She has just filled in the forms, and gone for several assessments for each over the past 7-10 years. Sent in copies of reports from her specialist and a list of her prescription meds, but I don't think she has submitted any 'evidence.' Maybe that's a new thing for people who have only been on it for the last few years (less than 5 or 6 maybe?)

FadeAwayAndRadiate · 08/07/2023 19:55

Maybe the reports from my friend's specialist is the evidence?

Original poster
itsgettingweird · 09/07/2023 06:35

Yes evidence is consultant reports etc.

All this went off with original claim.

Ds has a degenerative neurological condition and is autistic. So he won't suddenly get better!

I'll send off script and a letter to say no new evidence but he is seeing x y and z in august and saw physio in May (no report given) but give contact details should they need them.

Ds has been on Dla and pip since 2015 so he's also not a new claim

OP posts:
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