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Continuing health care assessment

8 replies

Soupsetscared · 29/06/2023 22:24

Next week my DM is being assessed for continuing health care.
How likely is she to get it.
I have another thread about her life coming to the end.
(But she has other ideas)

Can't walk as broke hip and has had only 2 physio aids since June 5th.
Dementia and is having hallucinations seeing rabbits in her bed.
Hardly eating or drinking.
Weights less than 6st.
Can't dress herself.
Is incontinent.
Was discharged from hospital as they couldn't help anymore.
Has a DOLs in place.

Just wish it was all over. She has no life.

OP posts:
Soontobe60 · 29/06/2023 22:27

Sounds like my stepfather and he didn’t get it!

vipersnest1 · 29/06/2023 22:50

Oh, @Soupsetscared, I'm so sorry the placement isn't going as you hoped. (I was on your other thread.)
The only possible approach to this is to tell the home that you will visit when you have time (and make sure you stick to it!), but will go there in an emergency.
It's not a great scenario. My DM passed away in January and although she didn't have dementia, her brain function was affected by her oxygen levels. I came across voicemails from her last night. In one of them she sounded so lost it made me really upset.
I can empathise with how you're feeling. Does your DM have a DNR in place as well as the DOL? If she does, you can then pursue it as it would be her wish, but without, (sorry) you might have to have some very blunt conversations with her HCPs.
I know how difficult a time this must be for you, and I really sympathise. ((Hugs))

Soupsetscared · 29/06/2023 23:08

@vipersnest1 yes there is a DNR in place.
Thank you for your hugs.
Mum looks lost as she doesn't know where who she is.

OP posts:

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vipersnest1 · 29/06/2023 23:12

@Soupsetscared, that's very sad but there is little that you can do about it. That's very blunt, but might help you to lay down any guilt that you feel about how she is now.
All you can do is watch and wait. It's heart-wrenching I know. Flowers

morelippy · 29/06/2023 23:15

Sorry OP but she won't get it.

A dreadful time for all of you, I'm sorry x

VerityUnreasonble · 29/06/2023 23:25

It's more likely she will get funded nursing care than full CHC funding.

www.beaconchc.co.uk/ might be worth a look at, they have some good free information (although some of their services are paid)

LadyGardenersQuestionTime · 29/06/2023 23:40

Sadly it’s not about her condition, it’s about whether she needs nursing level care that would otherwise need to be given in hospital. I assume you’ve looked at the checklist?

Im so sorry for your and her situation Flowers

Flossiemoss · 30/06/2023 00:27

im sorry op . It’s horrible to watch your loved one like this.
if a dr is satisfied that to document that it is reasonable to think she is in the last 3 months of life then she could be assessed for fast track chc. This does not need a cancer diagnosis. End stage frailty will suffice. The problem with frailty is that it can be very difficult to call if it os the last 3 months or not. I have known people successfully appeal for a refund of care costs when it has become apparent this is the case.

the fact the hospital have suggested she not be re admitted may work in your favour. Unfortunately the family very often have to advocate for this option for frail relatives .access the chc website for more info and hopefully you will find the relevant info there.

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