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Do you suffer or have after effects from something that is now curable?

15 replies

LivingDeadGirlUK · 18/06/2023 21:45

Just reading the thread about lens replacement surgery, it wasn't a thing when I had cataracts surgery shortly after birth. As a result there is no way to retrofit an artificial lens in my eye and I've spend my life registered sight impaired with all the difficulties that come of that. I imagine research into resolving my condition isn't much of a priority as when people go in for cataracts surgery the come out with similar vision.

As I get older it does make me think, because my eyesight will degenerate with age related conditions from an already very low basepoint.

Anyone else with similar musings?

OP posts:
LivingDeadGirlUK · 19/06/2023 16:36

tumble weed ah well we cant win them all!

It also occurred to me that I was hospitalised with mumps age 3 and that isn't something anyone has to go through anymore either.

OP posts:
lljkk · 19/06/2023 17:03

My dad is deaf in 1 year from meningitis as a kid. There's a jab for that, now.

overthinkersanonnymus · 19/06/2023 17:07

HPV vaccine is a good example

RampantIvy · 19/06/2023 17:07

I had measles and rubella as a child as the MMR wasn't introduced until I was 29.

RampantIvy · 19/06/2023 17:08

Oh yes, and the HPV vaccine.

Crustsamongus · 19/06/2023 17:13

No, I don't think so. In fact, I was born just after they discovered the causes of rH disease so my mum was able to have the jab. Had I been born a couple of years earlier I would not have had any siblings.

My great uncle had polio as a child and has had a limp ever since.

GarlicGrace · 19/06/2023 17:22

Had measles & mumps together (horrid) as a child. Had shingles in adulthood, due to childhood chicken pox. Shingles triggered ME-CFS, which is now disabling.

Had a string of miscarriages, one 2nd trimester, which were all shrugged off. PCOS diagnosed at 40. Still a very long way to go, but a woman with irregular periods like battlefields and multiple failed pregnancies would at least merit medical attention these days.

cocksstrideintheevening · 19/06/2023 17:23

Not me but friend's dad 70+ has a pronounced limp from polio

Uni friend deaf in one ear from mumps (age 39)

I and my children would have died in childbirth for numerous reasons so we are very lucky.

LivingDeadGirlUK · 19/06/2023 17:37

overthinkersanonnymus · 19/06/2023 17:07

HPV vaccine is a good example

Yes this is! such a simple thing is going to save so many lives.

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LivingDeadGirlUK · 19/06/2023 17:39

I have a relative with addiction issues who I am 90% sure has ADHD, never even heard of it as a child and I do wonder if proper diagnosis could have changed their life trajectory.

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Whataretalkingabout · 19/06/2023 18:14

I have a DS age 68 who has OI, Osteogenisis Imperfectes, also known as brittle bone disease who has broken hundreds of bones over her lifetime. There is no cure but there is now treatment. Her son has only broken a few bones thanks to this new treatment. A life changer for people with this "rare disease".

LivingDeadGirlUK · 19/06/2023 18:20

Whataretalkingabout · 19/06/2023 18:14

I have a DS age 68 who has OI, Osteogenisis Imperfectes, also known as brittle bone disease who has broken hundreds of bones over her lifetime. There is no cure but there is now treatment. Her son has only broken a few bones thanks to this new treatment. A life changer for people with this "rare disease".

Thats really great to hear as an acquaintance who I've admittedly not seen in 20 years had this condition and had to be so careful. I'm pleased to think life is easter for her now.

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Whataretalkingabout · 20/06/2023 18:04

@LivingDeadGirlUK
I hope for your friend she was able to get treatment. But it would have to have been treated during childhood . My sister unfortunately was already an adult when this medication was made available around 1985. The problem was calcium wouldn't fix to their bones, so they developed a sort of osteoporosis.

CMOTDibbler · 20/06/2023 18:12

Not me, but my grandmother had bilateral congenital dislocated hips - that now all babies are checked at birth for, and for most who have clicky hips don't even need surgery, or if they do its very simple. Hers weren't found till she wasn't walking at 2, then they didn't have the surgery they do now so she spent 5 years in Great Ormond St. That didn't fix it fully, so she spent a year in hospital aged 30 and had her hip fused. Now she'd have had a hip replacement and lived a normal life.

My dad had rheumatic fever as a child and not getting antibiotics affected his heart permanently

Lilyhatesjaz · 20/06/2023 19:07

Doesn't effect me personally but people with cystic fibrosis can now have treatment which is life changing.
People who would have died in early 20s can now hope to live long enough to have families and may be into old age, no one knows yet as this is very recent

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