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Miscarriage 16 weeks, similar experiences

13 replies

Hampstead16 · 03/05/2023 17:12

Hello,

I am after other people’s experiences if possible please..

On the 9th of April we experienced a miscarriage when we were 16+2 weeks. I had experienced some pink discharge, contacted maternity triage - received anti D (I’m rhesus -ve) and a swab for culture and sensitivity and discharged home. Next day the bleeding was worse, contacted again and advised to come down had a speculum - was referred to colposcopy due to ‘atypical appearance’ and sent for scan, baby was perfectly fine on the scan, we were told we were having a girl and were sent home again.

That night I woke at 2am with abdominal and lower back pain, eventually went to sleep with some paracetamol and hot water bottle. The following day I was in agony same pains but more intense and I had a temperature of 39, covid -ve, called triage crying in agony and informed them of my temp, explained this had reduced to 37.8 with paracetamol. I was informed that I may have a ‘stomach bug’ and if it was an infection my temp wouldn’t reduce with paracetamol (incorrect information) and that I should just use a hot water bottle and have a bath for the pain. I couldn’t even argue I was that unwell.

The following day was the 9th and I just couldn’t handle the pain anymore, my husband called and demanded I was seen. I went the triage unit where they gave me codeine, it didn’t help. I began vomiting, initially the bleeding was improving but I felt something trickling so I went to the toilet. The midwife shone a light between my legs to see what was happening and advised me she needed to do a speculum, I was in agony but they managed and they couldn’t see my cervix. I was wheeled to central delivery suite into the bereavement room, I was asking if I was miscarrying the whole time. I knew I was but I wanted confirmation, I was told they didn’t know. As soon as I got onto the bed my waters broke.

The doctor came, scanned me and explained my uterus was full on clots and the baby was stuck in the vaginal canal and after checking I was fully dilated. I gave birth to a perfect tiny baby girl. I was given an injection to pass the placenta which they told me came out whole. I had to remain in hospital for intravenous antibiotics and was discharged the following day.

10 days later I passed something unusual so I contacted my bereavement midwife who advised me to come in. I had a scan and have 5cm of retained products and required an ERCP. Another night in hospital with IVAB, discharged just in time for the babies funeral. We opted for a private service.

We have a 3 year old son already, pregnancy was fine - I was on aspirin due to low PAP-A but in this pregnancy it was normal so did not require aspirin. I’m 29, BMI is in range and other than an under active thyroid which is well controlled I’m relatively fit and healthy - they suspect from my colposcopy appointment that I may have endometriosis. We sent the placenta away for testing and didn’t have a PM for the baby as we had a low risk result from a NIPT blood test.

Has anyone had a similar experience that can enlighten me as to what may have happened?

What can I expect from our follow up appointment in 14 weeks where they discuss a potential cause?

What will happen in future pregnancies if we decide to try again?

Thank you to anyone who replies ♥️

OP posts:
seventyfour75 · 03/05/2023 17:14

I don't have any similar experience but I'm so sorry for your loss. Sending you much love xx

Notthatkindofbear · 03/05/2023 17:16

I’ve not had this experience, but I couldn’t read your post and not say how sorry I am to hear you went through this. You sound incredibly brave in your message. I hope you are getting support. Xxx

Hampstead16 · 03/05/2023 17:38

Thank you both, it’s been very hard for us as a family. Just hope we get some answers 💗 xxx

OP posts:
doozledog · 03/05/2023 18:34

I'm so so sorry what an awfull experiance x

LM88 · 03/05/2023 23:46

@Hampstead16

Not sure how helpful this will be, some similiarities.

I had a miscarriage at 19 weeks :-(
Bleeding since week 12, clots etc. Was on progesterone for threatened miscarriage for short period of time.

Fast forward a few weeks, horrendous pain and leaking fluid. Hospital reluctant to see me but did in the end. Long story short, my beautiful baby girl was born sleeping.

Still a long way off meeting with my consultant wont be until after June I believe so dont have any answers but it would appear things are pointing towards “incompetent cervix”

I have a 4 year old already and the labour was traumatic, it could be my cervix was damaged during that labour making it weaker - hence it has opened. I believe a stitch is an option to keep it closed and assist any future pregnancies.

Just thought id post, im sorry you are going through this. It is awful and the hurt is on another level. My heart is broken.

I hope you get the answers - sending lots of love x

Hampstead16 · 04/05/2023 06:45

Thank you for your reply, I am so sorry you have also been through this. It’s the worst pain and I’m so sorry for your loss.

I have googled what may have happened every day since and I had thought I may have an incompetent cervix but I was told if I had pain it’s unlikely the cause. They did mention a clot that may have gotten infected, but why would I just randomly develop a clot?! I think I just need to be patient, but that is really not in my personality!

My thoughts are with you and your family ♥️xxx

OP posts:
feralunderclass · 04/05/2023 07:52

So sorry for your loss OP 💔. Do be prepared for there being no actual established reason, it's very possible they might say "it could be due to...". You couldn't have prevented it, so don't be hard on yourself 💐

LM88 · 04/05/2023 09:25

@Hampstead16
I only had pain two days before she was born, that was the cervix contracting and slowly beginning to open they believe.

But until I actually speak to them, it could be anything I suppose.
I have been the same as you, googling - reading - researching.

I hope you eventually get the answers that you need. It is so difficult working your way through something so traumatic & can feel very lonely! x

Hampstead16 · 04/05/2023 09:37

Thank you @feralunderclass you are right there was nothing I could have done to prevent this from happening unfortunately, I just wished I pushed to be seen when I called for advice as I may have had a different experience 😣 xx

@LM88 I hope your appointment comes through soon 🤞🏻there is nothing worse than the wait! It can be very lonely, I hope you have lots of support to help you get through. I will likely repost in here once I have had my appointment just incase anyone reads this thread, as I have read posts from 2016 and earlier, it’s nice to know how others have gotten xx

OP posts:
Hampstead16 · 10/07/2023 19:19

Just for anyone in the future who comes across this thread and wants an update..

had my debrief today regarding the loss of our little girl at 16 weeks. The placenta came back with nothing wrong with it, initially they thought I had an infection but all blood cultures, bloods and swabs came back with no signs of infection, all chromosomes testing came back with concerns and it came back that she was definitely a baby girl. The consultant said in her opinion it was placental abruption however they don’t usually use that term before 24 weeks. She said she that the placenta likely has come away and caused bleeding in my uterus hence all the pain. She’s more inclined to think of abruption over cervical incompetence because that is usually a painless labour whereas I had a lot of pain and she said I had fully contracted however she cannot rule it out. Currently 5 weeks pregnant, in this pregnancy I’ll be on aspirin from 11 weeks, bloods are being taken for ‘sticky blood’ testing on Wednesday and if they come back positive I’ll need tinzaparin injections for the pregnancy, I’m getting an early scan at 8 weeks for reassurance the normal 12 week scan, a scan at 14 weeks to check measurements of my cervix and I’ll have them frequently throughout, then potentially more scans as well being high dependency. If my cervix shortens I’ll be given a stitch to prevent the cervix opening which is removed if I bleed heavily or go into labour xx

OP posts:
Norma27 · 10/07/2023 19:52

Wishing you all the best OP.
I had a loss at 16 weeks in 2013 although mine was a missed miscarriage so I didn’t know anything was wrong until I went for a 16 week checkup.
I did get pregnant again not too long later and have an amazing 9 yr old sitting with me now.

Turnleftturnright · 10/07/2023 20:10

Good luck OP. I am glad you are being taken care of. Wishing you all the best.

Hampstead16 · 10/07/2023 21:37

Thank you both 🤍🤍

OP posts:
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