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Strange symptoms and my GP can't explain it

31 replies

Shittenshite · 12/04/2023 21:58

For about 5-6 weeks I've had strange sensations in my left hand. It started with pins and needles and intermittent numbness. I also have horrible nerve pain, especially on contact with water - hot, cold or warm, even. Cold water (even brief contact) leaves me unable to feel my hand for at least half an hour after contact.

Weirdly, I have a sensation of pressure under the thumbnail too. No injuries, no damage to the nail or nail bed. No infection or fungal growth etc. My index finger feels similar. Both the 'pads' of the thumb and index finger are almost numb all the time.

Just recently I've developed a new symptom - my left hand occasionally goes into spasm and forms a tight fist which I can't release myself. I have to wait a few minutes for it ease off. Anyone who has suffered the agony of calf cramps in the middle of the night will appreciate the pain and intensity of these spasms. I feel it all down the inside of my wrist and forearm.

I've been referred for a nerve conduction study but it's not for over another 2 months. I'm not complaining - I understand and fully appreciate how stretched the NHS is. I've also had a CT scan of my head which didn't show anything concerning.

I've also had an ECG which was fine. I feel I'm wasting precious resources now.

My GP is perplexed. It is getting very rapidly worse and my GP thinks that carpal tunnel is unlikely given the rapid onset and deterioration.

I have two young children. Tasks I took for granted like changing a nappy or preparing a simple meal are becoming a huge challenge.

If anyone has any thoughts please feel free to add them. I am NOT looking for a diagnosis online but opinions, personal experiences or ideas from health professionals which may point me in a better direction would be great. Thank you!

PS. Please forgive me for highlighting in bold - I don't mean to shout or treat anyone like they're daft. I think it's a TL;DR post and many are likely to skip past that bit and suggest carpal tunnel as a possible explanation. Understandably!

OP posts:
JessBe · 13/04/2023 03:47

Forgot to say - make sure you’ve had a test for diabetes with an HbA1c as can cause a mononeuritis but I think the spasms would be less usual

eurochick · 13/04/2023 04:07

I was also going to suggest CRPS. A friend had something very similar.

romdowa · 13/04/2023 04:36

Did the gp do bloods? I had this with my left hand for months. Turns out my b12 was ridiculously low. After a course of top up injections it went away. My father had nerve pain in his arm from low b12

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Nandocushion · 13/04/2023 05:03

Hi OP. My friend had most of these symptoms and in her case it was MS. I hope you can get answers soon.

Pipsqueakpopsqueak · 13/04/2023 08:35

Have you had COVID in the last 6 months? I suffered some very mild nerve damage in my feet after covid, during the summer months in 2020. Doctor diagnosed raynaulds but I never felt the symptoms fit. My toes and heels are still permanently numb but had improved slightly. I recently got covid again and I’ve noticed the numbness has worsened and my feet are itchy which happened before. I swear it’s covid related in my case!

BerryPieandCustard · 13/04/2023 09:53

Last year I started having tingling/numbness in one hand (only really affecting the thumb and fire finger) odd sensation, I felt like I could not grip small things like pens/pencils. I also had odd feelings in my wrist from time to time.

Was referred to occupational health who assessed me and suspected carpal tunnel (as did my GP) but sent me to a physio who did a range of tests with my movements and I ended up with a diagnosis on Cubbital tunnel syndrome. It is an entrapment of the ulna nerve, gave me some advice and some exercises to do and asked my GP to refer for a nerve study. I’m still waiting on the nerve study but wearing an elbow brace to keep my arm straight as much as possible coupled with the exercises has made a huge improvement.

have you seen a physio? When I spoke to occupational health they said that they are very good at pinpointing things like this

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