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Original poster

Medical records stipulating I suffer with mental health condition I do not have??

6 replies

SaunteringDownwards · 30/03/2023 10:49

I was briefly hospitalised 12 years ago for mental health issues. I now realise this was almost certainly due to post natal psychosis from which I recovered and never experienced again. Though I have suffered with some mental health difficulties now and again since then (I have an anxiety disorder) I have never since suffered from any sort of psychosis. However, a few years ago upon attending a new GP I was asked why I wasn't being medicated for my 'Schizophrenia'. As I am not schizophrenic and to my knowledge have never been diagnosed as such I questioned this and was told to contact the health board somewhere which I did and still have the email saying it was the working diagnosis at the time and I could not remove the diagnosis they thought I had then, but that it wouldn't be used again on my records as I am not schizophrenic.

Cut to early this week after a hospital stay and my discharge papers list one of my comorbidities as 'schizoaffective disorder' Shock. I do not have this disorder, and though a few possible diagnosis were thrown around when I was unwell, to my knowledge this was never made official.

WTAF do I do about this? Though there is no shame in having these conditions and needing treatment for them, I do no have them and it's all over my medical records.

OP posts:
CheeseMeltCracker · 30/03/2023 10:52

It will be because hospital records and GP records are separate. Sounds like one set at the GP was updated but not the hospital ones as there is no automated way of making every record in every hospital you’ve been to match the GP record.

Thats incredibly frustrating for you though! I would consider asking hospital how their records can be updated. Sorry, I wish I knew something else to suggest. Best of luck getting it cleared up - you are absolutely right to want your records to be accurate and current.

Original poster
SaunteringDownwards · 30/03/2023 10:57

CheeseMeltCracker · 30/03/2023 10:52

It will be because hospital records and GP records are separate. Sounds like one set at the GP was updated but not the hospital ones as there is no automated way of making every record in every hospital you’ve been to match the GP record.

Thats incredibly frustrating for you though! I would consider asking hospital how their records can be updated. Sorry, I wish I knew something else to suggest. Best of luck getting it cleared up - you are absolutely right to want your records to be accurate and current.

I did ask if this was the case when I received my discharge papers and they told me that they get all my records from the GP so I would need to contact them? I just read the email I still have from years ago which even says on it that my final diagnosis was not schizophrenia. No idea where schizoaffective disorder has come from however as that isn't even the same thing!

OP posts:
stopbeeping · 30/03/2023 10:58

Hi I went through exactly this
How many years pp are you I wonder if you can contact local trust mental health and say you want to see a nurse and then ask nurse for a review with psychiatrist
I did this on zoom for bipolar xx

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Original poster
SaunteringDownwards · 30/03/2023 11:12

stopbeeping · 30/03/2023 10:58

Hi I went through exactly this
How many years pp are you I wonder if you can contact local trust mental health and say you want to see a nurse and then ask nurse for a review with psychiatrist
I did this on zoom for bipolar xx

Well the mental health issues didn't happen again after the birth of my third child so I am 11 years pp with my son. Looking back I really do wonder if this has affected the care I have received for other issues I have had and really just do not feel comfortable it is still on all of my records.

OP posts:
stopbeeping · 30/03/2023 11:18

Of course it does
I got judged the shit out of

Call the local mental health trust

Original poster
SaunteringDownwards · 30/03/2023 13:55

stopbeeping · 30/03/2023 11:18

Of course it does
I got judged the shit out of

Call the local mental health trust

Ok I'll have to look into this as I emailed a few years ago and was told it wouldn't be included in any medical records going forwards.

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