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Original poster

Crying in pain with no more options I need help

28 replies

Grumpydog · 17/03/2023 06:00

I’ve got endometriosis gone through every treatment, private doctors, cream, food diets, tablets, hot water bottle and ten’s machine. I’m currently trying for a baby so on no hormones. The pain every month is unbearable. Since going to bed at 10 I’ve had 2 cocodamol 30/500 then 5mls of morphine 1 tramadol tablet and then 2 more cocodamol. Im lying here crying in pain and exhausted. I was sent to out of hours yesterday after going to an and e and he said he couldn’t no anything I just ended up crying to him. I’ve considered having a hysterectomy not a cure I know but would mean know periods and then adoption or not having kids. I also really hate taking all this pain relief and have been told to make sure I’m on top of my dosage to stop the pain getting really bad before it does. I used to hold of taking any until it was unbearable. Even with transanamic acid my flow is also unbearable too I’m wearing an extra large pad I’ve changed it constantly tonight and I’ve got a reusable bed pad on my side. I’ve already leaked on my pyjamas. Im also allergic to most hormonal contraceptives too . Im just desperate for some relief right now.

OP posts:
moggerhanger · 17/03/2023 06:02

I have no answers but just wanted to hold your hand for a bit. It sounds miserable, I'm so sorry.

LapinR0se · 17/03/2023 06:03

Have you had it lasered off?

DungballInADress · 17/03/2023 06:04

Couldnt read and run.

I have no significant advice but have you tried ibuprofen/naproxen? NSAID are anti-inflammatory and in my experience treat endo pain infinitely better than opioids which just make you fuzzy.

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Overthebow · 17/03/2023 06:06

Is it a handhold you want OP? I think you’ve posted about this a couple of time before, I’m not sure anyone can suggest anything that hasn’t been said on your previous threads.

Readyforspringtime · 17/03/2023 06:09

I think I was on another of your threads. I have the same issue. I'm in the luteal phase so the pain is increasing. Blood in my urine, kidney pain, bloating, nausea etc. It's living in fear as I know how much worse it could get over the coming 10 days or so. It's the planning to be bedbound, getting the puppy pads ready etc. I'm so sorry you're still on this awful roller coaster too.

Original poster
Grumpydog · 17/03/2023 06:14

Thank you yes I take naproxen too I had it lasered and then excision the second time which is better as they remove the root of it. I’ve posted before I just feel so frustrated that I’m allowed to be left crying in pain but I don’t no what else they can do.

OP posts:
Overthebow · 17/03/2023 06:21

Being honest it does sound like there’s not much more they can do. You’ve been to A&E a number of times, been given morphine and other medication. You’ve got the options of other medication or hysterectomy but you don’t want those as you’re ttc. I think you’re going to have to make the decision to carry on with this pain and accept there’s nothing else that can be done or take one of the other options which will mean not ttc. Sorry you’re in this position it’s a horrible decision to make.

Yorkshiredolls · 17/03/2023 06:24

Have you seen a pain management specialist? If not please seek a referral from your GP. There are things they can do to help

Msloverlover · 17/03/2023 06:58

If someone is in this much pain, they should be allowed to post about it as often as they want. OP, I have no suggestions but I’m so sorry you are going through this. I really hope things improve. (And who knows, this may be the thread to provide the answers you need).

Adrelaxzz · 17/03/2023 07:01

I'm so sorry you're going through this. I have a friend like this and it's horrendous. Have you ever tried acupuncture? It can really help with endometriosis, but you would have to get it regularly. It can be quite expensive so it's worth looking to see if there's a low-cost clinic near you.

Original poster
Grumpydog · 17/03/2023 07:13

I’m on the waiting list to see a pain management specialist

OP posts:
ElegantlyTouched · 17/03/2023 07:35

Have you tried anything like reflexology? I'm not sure I'm.convinced it does anything but in your shoes I'd be willing to give anything a go. Or an alternative medicine practice? I've seen someone who practices Chinese medicine for a couple of things (including him treating a pet, which can't be placebo) and have been impressed.

As for flooding,have you tried Tena pants? I used them after birth and found they helped massively.

9outof10cats · 17/03/2023 07:47

I am curious why you are taking those particular pain relief medications. Is that something your doctor gave you?

I would have thought an anti-inflammatory (NSAID) analgesic would be more effective for something like endometriosis.

In particular, 8% of the population cannot metabolise codeine, so it becomes non-affective for pain relief. It is possible you are one of those. I know it doesn't work for me.

Original poster
Grumpydog · 17/03/2023 07:55

@9outof10cats I take mefenamic acid and naproxen which is an NSAID the doctor has prescribed these for me. The cocodamol definitely helps sometimes when it’s a little painful not like it was last night I can take it and feel the pain go away

OP posts:
Timeforchangeithink · 17/03/2023 08:12

Is endometriosis not an inflammatory condition? If so a tens machine shouldn't be used. Apart from that I'm sorry you're in so much pain 😔

MrsRobinStrike · 17/03/2023 08:26

What about cutting out inflammatory foods from your diet? Has that had any effect?

Original poster
Grumpydog · 17/03/2023 08:57

It had an effect with bloating especially bread etc but I now make my own and I no longer feel like that. I have a pretty healthy diet I don’t drink smoke or have coffee or tea.

OP posts:
9outof10cats · 17/03/2023 19:19

Timeforchangeithink · 17/03/2023 08:12

Is endometriosis not an inflammatory condition? If so a tens machine shouldn't be used. Apart from that I'm sorry you're in so much pain 😔

You are wrong - it is associated with inflammation, and the recommended treatment is paracetamol or NSAIDs.

Gameofmoans81 · 17/03/2023 19:30

This was me for years before I had a laparoscopy and had it removed. You need surgery asap! I also became pregnant 4 months later after years of trying while having acupuncture treatment to help conceive. I’m now back on the mini pill to control it. Good luck to you, it can get better!

Original poster
Grumpydog · 17/03/2023 20:43

ive had surgery twice @Gameofmoans81 its grown back each time and had to be removed again. I’ve had acupuncture before but currently paying out for pelvic floor therapy and osteopath so have stopped although it didn’t really help

OP posts:
Original poster
Grumpydog · 17/03/2023 20:56

Still In pain this evening but hopefully I will sleep tonight.

OP posts:
Gameofmoans81 · 18/03/2023 08:50

My gp friend says there has been success using metformin for endo - has to be prescribed by a consultant though but worth asking about

Gameofmoans81 · 18/03/2023 08:53

My pain now is caused by endo irritating a nerve from my diaphragm to my shoulder so amitriptyline is only thing that works for me - depends on your type of pain tho

Isitjustathing · 18/03/2023 08:53

You may want to check about NSAIDS as it’s sometimes not recommended if ttc as can interfere with ovulation so may be worth trying to get an alternative prescribed