Hypospadias.

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Sorry, don't really know where to put this thread but would like advice.

Our 10 month old has mild hypospadias. He had a hospital appointment at 6 months where we were told it was very mild and no surgery was needed.

We were asked if we would like to attend a appointment at 18 months old to do a double check on it which we have agreed to.

Does anyone else's DS have a history of this? Our son's Willy is small and it worries me although it's extremely functional and squirts me when peeing if I'm not quick enough when changing him 😂

I've been told hypospadias is common but I've never heard of it and I don't really know what happened for him to be born like it 🥲

Thank you for your reply, much appreciated. Like you my sons diagnosis was delivered to us hours after his delivery. Trying my best to keep positive and hope that it will be something and nothing x

Thank you very much for sharing your situation with me. It is so reassuring to hear other people’s experiences and how are you feeling. I guess I will just have to attend the consultant appointment with my husband and see what they say about our son and what the right thing to do for him x

A friend’s son had it - IIRC he had surgery as a baby so it must have been a more extreme case. He’s now over 40, married with 3 dcs, so AFAIK it’s never been a problem for him.

Has anyone NOT had this diagnosed at birth but had it picked up in childhood? DS is 3.5 and sometimes pees backwards. I first noticed it because sometimes if he wets himself only the back of his trousers gets wet, but having watched him pee on the toilet I see the stream sometimes goes backwards but not always. I also think he has quite a small penis but quite a lot of foreskin in comparison.
At his newborn check, though, the only thing they said was an undescrnded testicle, which had descended by the 8-week check, and nobody's seen his penis since then.

@Fernanie my son’s was picked up at the eight week check. Before that they just said he had a hooded foreskin. I took him to a GP about that who said he would ‘grow into it’ 🤔 no mention of hypospadias (which goes hand in hand with hooded foreskin). If it hadn’t been for the GP at his eight week check I might have taken their word for it - so I can see how it could potentially get missed.

Hey, where was your son’s urethra placed? My sons is sub coronal meaning under the head of the penis, he has chordee and a hooded foreskin, we have surgery in 3 weeks and I’m petrified
how was your son after the surgery?
im so scared of post op complications

My son has sub coronal hypospadias with chordee we have surgery in 3 weeks, he will be 14 months old
I’m terrified and im barely sleeping

My DS had his operation at 14 months! He's urethra was on the underside of the Penis quite low down. They removed the hooded foreskin too. He was discharge fully at 5 years old after having yearly checks, he is 10 now and I do worry about the size of his penis although as PP said no medical professionals have ever raised any concerns, they definitely are stubbier!

He passes urine fine although I would say it is a spray rather than a stream.

@Thistlelass I find that really interesting, DS also has dyspraxia but I wasn't aware there was possible links.

My sons is on the underside but I don’t think it’s too low down
he has a hooded foreskin too and also chordee (a curve in the penis) so at the moment he has a stubby little penis because it isn’t straight, I do hope he he’s sake they manage to give it more length when they straighten it

how was your son after surgery? were there any post op complications?
@Ithappenedfinally im so scared about the post op care, I’m losing sleep in these final weeks building up to the surgery!! I’ve been searching for so many days to find people who are and have walked our path already just to hear some real stories around hypospadias and you guys are hard to come by!!! The relief when I found this thread almost made me cry
I’m terrified for my son I don’t want him to have complications and I don’t want him to suffer as an adult because of this

My DS recovered really well, the initial two days were the worst as you need to keep up with the meds.
he was fully discharged at his 1 year post op check, so he had the op when he was just past his 2nd birthday.
he toilet trained really well and was so proud that he could stand up to wee.

he is nearly 5 now and doesnt remember the operation or recovery at all.

My sons surgery is in exactly 3 weeks he will be 14 months I’m petrified, I never knew about this birth defect although it seems to be common, I know no one that’s got it

My son’s was done at 14 months and I was also petrified! It all went fine, he was up in bed eating toast not long after the operation. They called me when he was waking up so I was there. He has no complications afterwards and apart from a few scheduled check ups that was it. I am sure it will go OK. I know it is hard not to worry.

I have wondered that too, about it being so common but knowing nobody who has it. I am guessing it is just not something people talk about.

My child is due to have his repair done the 8th time I need some serious advice because I don't know what to do. He's 6 years old and his most recent surgery was a few weeks ago another one due in two weeks.What on earth are they doing to my child. I need answers help or advice in any way, not sure how these forums work. We were initially told he'll need 2 repairs maybe a 3rd but he's still having them this year alone he's had an emergency op almost every month. I hadn't a clue how to start a new thread so I'm replying to this thread hoping someone can give me some advice I'm terribly worried for my son, so far I've read mums talking about their lo under going 2-3 repairs , unfortunately not in my case

@SAMKIING is he having emergency repairs done to the previous repair?

Hi Linda yes he is. He was born with severe hypospadias, the first two were to straighten widen and 3rd to move his uretha hole to the tip however he had narrowing each time after , so 4 emergency surgeries later it's still the same issue as soon as his catheter is out he doesn't last much till he starts to not pass urine properly. I'm due to take him back to A&E today as he is in so much pain with the finest of mist coming out of him but I'm so worried for him. I don't even know what to do because they mention the scar tissue causing the narrowing but they don't ever remove it just widen stretch and give a steroid injection to help heal but so far it hasn't worked. I've stayed very patient and strong up until now I don't think I can take it any longer because he's psychologically not well he freaks out the minute he can't pass urine and doesn't let nurses or doctors come anywhere near him

that sounds so stressful and awful for your DS, you have my sympathies.
do the surgeons explain why this is happening?
my DS was quite mild, we have no issues apart from when his catheter slipped and he had to have it pulled back up, that was awful enough.
I cant imagine how frustrating this must be for you. I hope they manage to sort it fully for your DS.

Poor kid. They say the surgery is straightforward but it is such a delicate area you just don't know.

I would look online to see if you can find an expert or specialist, someone who has done research in this area and contact them even if they're in another country. They won't be able to do the surgery but they might be willing to give you advice.

In the case of mild hypospadias where everything is absolutely fine you don't need to go with surgery. Improper urine stream is absolutely common. However, monitoring on hygiene issues, infections is important and if you find anything abnormal address them immediately. So many people with mild hypospadias are managing to lead the happy life without surgery. But, communicate to your son about it when he is matured enough to take it